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Patient-experienced burden of treatment in patients with multimorbidity – A systematic review of qualitative data

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  • Michael Rosbach
  • John Sahl Andersen

Abstract

Objective: To synthesize existing qualitative literature on patient-experienced burden of treatment in multimorbid patients. Methods: A literature search identified available qualitative studies on the topic of burden of treatment in multimorbidity and meta-ethnography was applied as method. The authors’ original findings were preserved, but also synthesized to new interpretations to investigate the concept of the burden of treatment using the Cumulative Complexity Model. Results: Nine qualitative studies were identified. The majority of the 1367 participants from 34 different countries were multimorbid. The treatment burden components, experienced by patients, were identified for each study. The components financial burden, lack of knowledge, diet and exercise, medication burden and frequent healthcare reminding patients of their health problem were found to attract additional attention from the multimorbid patients. In studies conducted in the US and Australia the financial burden and the time and travel burden were found most straining to patients with deprived socioeconomic status. Conclusions: Healthcare providers need to increase the focus on minimizing multimorbid patients’ burden of treatment. Findings in this review suggest that the weight of the burden needs to be established in the individual patient and components of the burden must be identified.

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  • Michael Rosbach & John Sahl Andersen, 2017. "Patient-experienced burden of treatment in patients with multimorbidity – A systematic review of qualitative data," PLOS ONE, Public Library of Science, vol. 12(6), pages 1-18, June.
    • Handle: RePEc:plo:pone00:0179916
    DOI: 10.1371/journal.pone.0179916
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    References listed on IDEAS

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    1. Shikha Gupta & Mary Ann McColl & Sara J.T. Guilcher & Karen Smith, 2019. "Managing Medication Cost Burden: A Qualitative Study Exploring Experiences of People with Disabilities in Canada," IJERPH, MDPI, vol. 16(17), pages 1-17, August.
    2. Léontine Goldzahl & Jonathan Stokes & Matt Sutton, 2022. "The effects of multi‐disciplinary integrated care on healthcare utilization: Evidence from a natural experiment in the UK," Health Economics, John Wiley & Sons, Ltd., vol. 31(10), pages 2142-2169, October.
    3. Aurore Lesage & Brice Leclère & Leïla Moret & Clément Le Glatin, 2021. "Decreasing patient-reported burden of treatment: A systematic review of quantitative interventional studies," PLOS ONE, Public Library of Science, vol. 16(1), pages 1-15, January.
    4. Cheng Cheng & Jie Bai & Cong‐Yan Yang & Ming Li & Kerry Inder & Sally Wai‐Chi Chan, 2019. "Patients' experiences of coping with multiple chronic conditions: A qualitative descriptive study," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(23-24), pages 4400-4411, December.
    5. Lawless, Michael T. & Tieu, Matthew & Feo, Rebecca & Kitson, Alison L., 2021. "Theories of self-care and self-management of long-term conditions by community-dwelling older adults: A systematic review and meta-ethnography," Social Science & Medicine, Elsevier, vol. 287(C).

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