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Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia

Author

Listed:
  • Anna Rozensztrauch

    (Department of Nursing and Obstetrics, Division of Family and Pediatric Nursing, Wroclaw Medical University, 50-556 Wrocław, Poland)

  • Robert Śmigiel

    (Department of Nursing and Obstetrics, Division of Family and Pediatric Nursing, Wroclaw Medical University, 50-556 Wrocław, Poland)

  • Dariusz Patkowski

    (Department of Paediatric Surgery and Urology, Wrocław Medical University, Borowska 213, 50-556 Wrocław, Poland)

  • Sylwester Gerus

    (Department of Paediatric Surgery and Urology, Wrocław Medical University, Borowska 213, 50-556 Wrocław, Poland)

  • Magdalena Kłaniewska

    (Department of Nursing and Obstetrics, Division of Family and Pediatric Nursing, Wroclaw Medical University, 50-556 Wrocław, Poland)

  • Julia Hannah Quitmann

    (Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, 20251 Hamburg, Germany)

  • Michaela Dellenmark-Blom

    (Department of Paediatrics, Institute of Clinical Sciences, University of Gothenburg Sweden, 405 30 Gothenburg, Sweden
    Department of Pediatric Surgery, Queen Silvia Children’s Hospital, 416 50 Gothenburg, Sweden)

Abstract

Aim: This study reports the reliability and validity of the Polish version of the Esophageal Atresia Quality of Life (EA-QOL) questionnaires, which were originally developed in Sweden and Germany. Methods: A total of 50 families of children (23 aged 2 to 7, and 27 aged 8 to 17) with EA/TEF (esophageal atresia/tracheoesophageal fistula) participated in the study. The development and validation of the Polish version of the EA-QOL involved forward-backward translation of the survey items following the guidelines for cross-cultural translation, cognitive debriefing and evaluation of psychometric properties, including assessment of internal and retest reliability, linguistic validity, content validity, known-group validity and convergent validity. The medical records of patients and standardized questionnaires were used to obtain clinical data. The level of significance was p < 0.05. Results: The Polish versions of the EA-QOL questionnaires demonstrated strong linguistic and content validity, are slightly discriminative for esophageal and respiratory problems, but do not show convergent validity with the PedsQL 4.0 generic core scales. In terms of reliability, the internal consistency of the subscale and total scale of Polish versions as measured by Cronbach’s alpha is good, and retest reliability is excellent. Conclusions: The Polish versions of the EA-QOL questionnaires meet most psychometric criteria that confirm the EA-QOL questionnaires’ reliability and validity. This study enables application of these questionnaires in future research among children with EA in Poland and participation in international multicenter studies focusing on advancing knowledge of condition-specific QOL in this population. Future cross-cultural research using larger sample sizes is still needed to better address the relationship between condition-specific and generic QOL, as well as the discriminative ability of the EA-QOL questionnaires.

Suggested Citation

  • Anna Rozensztrauch & Robert Śmigiel & Dariusz Patkowski & Sylwester Gerus & Magdalena Kłaniewska & Julia Hannah Quitmann & Michaela Dellenmark-Blom, 2022. "Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal At," IJERPH, MDPI, vol. 19(13), pages 1-14, June.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:13:p:8047-:d:852698
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    References listed on IDEAS

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    1. Artur Niedzielski & Lechosław Paweł Chmielik & Anna Kasprzyk & Tomasz Stankiewicz & Grażyna Mielnik-Niedzielska, 2021. "Health-Related Quality of Life Assessed in Children with Adenoid Hypertrophy," IJERPH, MDPI, vol. 18(17), pages 1-7, August.
    2. Ebrahim, Shah, 1995. "Clinical and public health perspectives and applications of health-related quality of life measurement," Social Science & Medicine, Elsevier, vol. 41(10), pages 1383-1394, November.
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    Cited by:

    1. Siqi Li & Michaela Dellenmark-Blom & Yong Zhao & Yichao Gu & Shuangshuang Li & Shen Yang & Julia H. Quitmann & Jinshi Huang, 2022. "The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity," IJERPH, MDPI, vol. 19(22), pages 1-13, November.

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