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The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity

Author

Listed:
  • Siqi Li

    (Department of Neonatal Surgery, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing 100045, China)

  • Michaela Dellenmark-Blom

    (Department of Pediatric Surgery, Queen Silvia Children’s Hospital, Sahlgrenska University Hospital, 416 85 Gothenburg, Sweden
    Department of Pediatrics, Institute of Clinical Sciences, Gothenburg University, The Queen Silvia Children’s Hospital, 416 86 Gothenburg, Sweden)

  • Yong Zhao

    (Department of Neonatal Surgery, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing 100045, China)

  • Yichao Gu

    (Department of Neonatal Surgery, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing 100045, China)

  • Shuangshuang Li

    (Department of Neonatal Surgery, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing 100045, China)

  • Shen Yang

    (Department of Neonatal Surgery, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing 100045, China)

  • Julia H. Quitmann

    (Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Martinistraße 52, D-20246 Hamburg, Germany)

  • Jinshi Huang

    (Department of Neonatal Surgery, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing 100045, China
    Department of Neonatal Surgery, The Affiliated Children’s Hospital of Nanchang University, Nanchang 330006, China)

Abstract

Background: After repair of esophageal atresia (EA), children risk digestive and respiratory morbidity, but knowledge of their health-related quality of life (HRQOL) in China is lacking. The EA-QOL questionnaires were developed in Sweden and Germany to evaluate condition-specific HRQOL in children with EA aged 2–7 and 8–17. This study aimed to evaluate the linguistic and content validity of the Chinese Mandarin version of the EA-QOL questionnaires. Methods: The procedure was conducted in compliance with international standards, including a forward-backward translation procedure, expert reviews, and cognitive debriefing interviews with 14 Chinese families of children with EA (parents of 8 children aged 2–7/6 children aged 8–17 and their parents). Results: Following forward-backward translation, minor issues were identified and solved. In interviews, all participants rated all EA-QOL items easy to understand, none expressed negative emotions about them and most described them comprehensive and relevant for EA. Leading from cognitive debriefing, three EA-QOL items in the questionnaire version for children aged 2–7 and three EA-QOL items in the questionnaire version for children aged 8–17 were modified in the Chinese language to improve cultural appropriateness and/or clarity. Conclusion: The Chinese Mandarin version of the EA-QOL questionnaires achieved satisfactory linguistic and content validity. This can help increase focus of HRQOL in research and clinical practice of children with EA in China.

Suggested Citation

  • Siqi Li & Michaela Dellenmark-Blom & Yong Zhao & Yichao Gu & Shuangshuang Li & Shen Yang & Julia H. Quitmann & Jinshi Huang, 2022. "The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity," IJERPH, MDPI, vol. 19(22), pages 1-13, November.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:22:p:14923-:d:971239
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    References listed on IDEAS

    as
    1. Anna Rozensztrauch & Robert Śmigiel & Dariusz Patkowski & Sylwester Gerus & Magdalena Kłaniewska & Julia Hannah Quitmann & Michaela Dellenmark-Blom, 2022. "Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal At," IJERPH, MDPI, vol. 19(13), pages 1-14, June.
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