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"I Just Stay in the House So I Don't Need to Explain": A Qualitative Investigation of Persons with Invisible Disabilities

Author

Listed:
  • Gillian Hendry

    (School of Education and Social Sciences, Paisley Campus, University of the West of Scotland, Paisley PA1 2BE, UK)

  • Claire Wilson

    (School of Education, University of Strathclyde, Glasgow G1 1XQ, UK)

  • Mairi Orr

    (School of Education and Social Sciences, Paisley Campus, University of the West of Scotland, Paisley PA1 2BE, UK)

  • Rebecca Scullion

    (School of Education and Social Sciences, Paisley Campus, University of the West of Scotland, Paisley PA1 2BE, UK)

Abstract

Research has shown that persons with disabilities continually face discrimination. More research attention has focused on individuals’ experiences of visible disability, despite evidence that there are higher numbers worldwide of people with invisible disabilities. As such, persons with invisible disabilities can feel under-represented in disability literature. A qualitative study was conducted to address this. Twenty-five persons with an invisible disability were recruited to take part in focus groups and interviews aimed at understanding the lived experience of invisible disability on social life and within the workplace. Data were analyzed using Braun and Clarke’s reflexive thematic analysis, identifying themes of (1) Incongruity between looking and feeling, (2) The impact of others, (3), Adaptation, (4) Talking about disability, (5) (Un)supported and (un)accepted, and (6) Discrimination/legislation. The findings indicate that the language, attitudes and behaviour of others are important to support inclusion in the social and working lives of those with invisible disabilities. Persons without a disability should be willing to talk about disability, see the strengths of those with an invisible disability and be mindful of language used around visibility. Suggestions relating to what we can do to be better support those with an invisible disability in society are discussed.

Suggested Citation

  • Gillian Hendry & Claire Wilson & Mairi Orr & Rebecca Scullion, 2022. ""I Just Stay in the House So I Don't Need to Explain": A Qualitative Investigation of Persons with Invisible Disabilities," Disabilities, MDPI, vol. 2(1), pages 1-19, March.
    • Handle: RePEc:gam:jdisab:v:2:y:2022:i:1:p:12-163:d:771457
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    References listed on IDEAS

    as
    1. Kendall Goodrich & Rosemary Ramsey, 2013. "Do people with disabilities feel excluded? Comparision of learning and physical disabilities," Journal of Community Positive Practices, Catalactica NGO, issue 3, pages 74-87.
    2. Santuzzi, Alecia M. & Waltz, Pamela R. & Finkelstein, Lisa M. & Rupp, Deborah E., 2014. "Invisible Disabilities: Unique Challenges for Employees and Organizations," Industrial and Organizational Psychology, Cambridge University Press, vol. 7(2), pages 204-219, June.
    Full references (including those not matched with items on IDEAS)

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