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Experiencing everyday ethics in context: Frontline data collectors perspectives and practices of bioethics

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  • Kingori, Patricia

Abstract

Data collectors play a vital role in producing scientific knowledge. They are also an important component in understanding the practice of bioethics. Yet, very little attention has been given to their everyday experiences or the context in which they are expected to undertake these tasks. This paper argues that while there has been extensive philosophical attention given to ‘the what’ and ‘the why’ in bioethics – what action is taken place and why – these should be considered along ‘the who’ – who are the individuals tasked with bioethics and what can their insights bring to macro-level and abstract discussions of bioethics. This paper will draw on the philosophical theories of Paul Ricoeur which compliments a sociological examination of data collectors experiences and use of their agency coupled with a concern for contextual and institutional factors in which they worked.

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  • Kingori, Patricia, 2013. "Experiencing everyday ethics in context: Frontline data collectors perspectives and practices of bioethics," Social Science & Medicine, Elsevier, vol. 98(C), pages 361-370.
    • Handle: RePEc:eee:socmed:v:98:y:2013:i:c:p:361-370
    DOI: 10.1016/j.socscimed.2013.10.013
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    References listed on IDEAS

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    Cited by:

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    2. Gouda, H.N. & Kelly-Hanku, A. & Wilson, L. & Maraga, S. & Riley, I.D., 2016. "“Whenever they cry, I cry with them”: Reciprocal relationships and the role of ethics in a verbal autopsy study in Papua New Guinea," Social Science & Medicine, Elsevier, vol. 163(C), pages 1-9.
    3. Hutchinson, Eleanor & Nayiga, Susan & Nabirye, Christine & Taaka, Lilian & Staedke, Sarah G., 2018. "Data value and care value in the practice of health systems: A case study in Uganda," Social Science & Medicine, Elsevier, vol. 211(C), pages 123-130.
    4. True, Gala & Alexander, Leslie B. & Fisher, Celia B., 2017. "Supporting the role of community members employed as research staff: Perspectives of community researchers working in addiction research," Social Science & Medicine, Elsevier, vol. 187(C), pages 67-75.
    5. Gouda, Hebe N. & Flaxman, Abraham D. & Brolan, Claire E. & Joshi, Rohina & Riley, Ian D. & AbouZahr, Carla & Firth, Sonja & Rampatige, Rasika & Lopez, Alan D., 2017. "New challenges for verbal autopsy: Considering the ethical and social implications of verbal autopsy methods in routine health information systems," Social Science & Medicine, Elsevier, vol. 184(C), pages 65-74.
    6. Chiumento, Anna & Rahman, Atif & Frith, Lucy, 2020. "Writing to template: Researchers’ negotiation of procedural research ethics," Social Science & Medicine, Elsevier, vol. 255(C).

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