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The statutory duty of physicians to inform patients versus unmet patients' information needs: The case of breast cancer in France

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  • Moumjid, Nora
  • Charles, Cathy
  • Morelle, Magali
  • Gafni, Amiram
  • Brémond, Alain
  • Farsi, Fadila
  • Whelan, Tim
  • Carrère, Marie-Odile

Abstract

Objectives (1) To explore empirically the extent to which early stage breast cancer patients in France, wish to be informed about their disease and treatments and (2) in view of the statutory duty of physicians to inform patients, to explore, from the patients' point of view, the type of information given by physicians and whether it meets their information needs.Methods A retrospective, cross-sectional survey questionnaire using standardized questions was administered by mail to newly diagnosed breast cancer patients and evaluated their relationships with the different physicians involved in their treatment at different points in time. Focus was placed on the relationship between surgeons and patients.Results Two hundred and thirty-eight patients completed the questionnaire on their relationship with their surgeon. Patients' reported information needs are considerable, though significantly different depending on the item. Patients report that surgeons do not fully respond to their needs. Even though physicians are legally required to provide information to their patients, in routine practice they seem to favour providing information about disease and treatment side effects over treatment consequences, even though patients express a need for information on these latter items.Conclusion More research is needed on the development, use and outcomes of the various strategies and interventions designed to facilitate and improve information transfer in the physician-patient encounter in France.

Suggested Citation

  • Moumjid, Nora & Charles, Cathy & Morelle, Magali & Gafni, Amiram & Brémond, Alain & Farsi, Fadila & Whelan, Tim & Carrère, Marie-Odile, 2009. "The statutory duty of physicians to inform patients versus unmet patients' information needs: The case of breast cancer in France," Health Policy, Elsevier, vol. 91(2), pages 162-173, July.
    • Handle: RePEc:eee:hepoli:v:91:y:2009:i:2:p:162-173
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    References listed on IDEAS

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    1. Nora Moumjid & Magali Morelle & Marie-Odile Carrère & Thomas Bachelot & Hervé Mignotte & Alain Brémond, 2003. "Elaborating patient information with patients themselves: lessons from a cancer treatment focus group," Post-Print halshs-00335479, HAL.
    2. Blanchard, Christina G. & Labrecque, Mark S. & Ruckdeschel, John C. & Blanchard, Edward B., 1988. "Information and decision-making preferences of hospitalized adult cancer patients," Social Science & Medicine, Elsevier, vol. 27(11), pages 1139-1145, January.
    3. Annette M. O'Connor & Dawn Stacey & Michael J. Barry & Nananda F. Col & Karen B. Eden & Vikki Entwistle & Valerie Fiset & Margaret Holmes-Rovner & Sara Khangura & Hilary Llewellyn-Thomas & David R. Ro, 2007. "Do Patient Decision Aids Meet Effectiveness Criteria of the International Patient Decision Aid Standards Collaboration? A Systematic Review and Meta-analysis," Medical Decision Making, , vol. 27(5), pages 554-574, September.
    4. Guadagnoli, Edward & Ward, Patricia, 1998. "Patient participation in decision-making," Social Science & Medicine, Elsevier, vol. 47(3), pages 329-339, August.
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