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The impact of patient and public involvement in health research versus healthcare: A scoping review of reviews

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  • Modigh, Anton
  • Sampaio, Filipa
  • Moberg, Linda
  • Fredriksson, Mio

Abstract

Many policies promote patient and public involvement (PPI) in health research and healthcare provision. However, research points to uncertainties about its impact. The aim of the article was to compare what types of impact have been reported in reviews of PPI in health research and healthcare, respectively, and to map differences and similarities between the review studies. A review of reviews was undertaken with a search strategy based on the PCC mnemonic for scoping reviews. Four online databases were searched. Studies published in English between the years 2000-2020, using a review-based method and aiming to demonstrate impact of PPI were included, resulting in sixty-one articles.

Suggested Citation

  • Modigh, Anton & Sampaio, Filipa & Moberg, Linda & Fredriksson, Mio, 2021. "The impact of patient and public involvement in health research versus healthcare: A scoping review of reviews," Health Policy, Elsevier, vol. 125(9), pages 1208-1221.
    • Handle: RePEc:eee:hepoli:v:125:y:2021:i:9:p:1208-1221
    DOI: 10.1016/j.healthpol.2021.07.008
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    References listed on IDEAS

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    1. repec:mpr:mprres:6177 is not listed on IDEAS
    2. Marie-Anne Durand & Lewis Carpenter & Hayley Dolan & Paulina Bravo & Mala Mann & Frances Bunn & Glyn Elwyn, 2014. "Do Interventions Designed to Support Shared Decision-Making Reduce Health Inequalities? A Systematic Review and Meta-Analysis," PLOS ONE, Public Library of Science, vol. 9(4), pages 1-13, April.
    3. Boote, Jonathan & Baird, Wendy & Beecroft, Claire, 2010. "Public involvement at the design stage of primary health research: A narrative review of case examples," Health Policy, Elsevier, vol. 95(1), pages 10-23, April.
    4. Michael Saheb Kashaf & Elizabeth McGill, 2015. "Does Shared Decision Making in Cancer Treatment Improve Quality of Life? A Systematic Literature Review," Medical Decision Making, , vol. 35(8), pages 1037-1048, November.
    5. Jo Brett & Sophie Staniszewska & Carole Mockford & Sandra Herron-Marx & John Hughes & Colin Tysall & Rashida Suleman, 2014. "A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 7(4), pages 387-395, December.
    6. Djellouli, Nehla & Jones, Lorelei & Barratt, Helen & Ramsay, Angus I.G. & Towndrow, Steven & Oliver, Sandy, 2019. "Involving the public in decision-making about large-scale changes to health services: A scoping review," Health Policy, Elsevier, vol. 123(7), pages 635-645.
    7. Boote, Jonathan & Baird, Wendy & Sutton, Anthea, 2011. "Public involvement in the systematic review process in health and social care: A narrative review of case examples," Health Policy, Elsevier, vol. 102(2), pages 105-116.
    8. Julia M. Kim & Catalina Suarez-Cuervo & Zackary Berger & Joy Lee & Jessica Gayleard & Carol Rosenberg & Natalia Nagy & Kristina Weeks & Sydney Dy, 2018. "Evaluation of Patient and Family Engagement Strategies to Improve Medication Safety," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 11(2), pages 193-206, April.
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