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The ‘over-researched community’: An ethics analysis of stakeholder views at two South African HIV prevention research sites

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  • Koen, Jennifer
  • Wassenaar, Douglas
  • Mamotte, Nicole

Abstract

Health research in resource-limited, multi-cultural contexts raises complex ethical concerns. The term ‘over-researched community’ (ORC) has been raised as an ethical concern and potential barrier to community participation in research. However, the term lacks conceptual clarity and is absent from established ethics guidelines and academic literature. In light of the concern being raised in relation to research in low- and middle-income countries (LMICs), a critical and empirical exploration of the meaning of ORC was undertaken.

Suggested Citation

  • Koen, Jennifer & Wassenaar, Douglas & Mamotte, Nicole, 2017. "The ‘over-researched community’: An ethics analysis of stakeholder views at two South African HIV prevention research sites," Social Science & Medicine, Elsevier, vol. 194(C), pages 1-9.
  • Handle: RePEc:eee:socmed:v:194:y:2017:i:c:p:1-9
    DOI: 10.1016/j.socscimed.2017.10.005
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    References listed on IDEAS

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    1. Ma Ching-to Albert, 2008. "Health Care Economics and Policy: An Introduction," The B.E. Journal of Economic Analysis & Policy, De Gruyter, vol. 8(2), pages 1-4, January.
    2. Guta, Adrian & Strike, Carol & Flicker, Sarah & J. Murray, Stuart & Upshur, Ross & Myers, Ted, 2014. "Governing through community-based research: Lessons from the Canadian HIV research sector," Social Science & Medicine, Elsevier, vol. 123(C), pages 250-261.
    3. London, L., 2002. "Ethical oversight of public health research: Can rules and IRBs make a difference in developing countries?," American Journal of Public Health, American Public Health Association, vol. 92(7), pages 1079-1084.
    4. Salim S. Abdool Karim & Quarraisha Abdool Karim, 2010. "AIDS research must link to local policy," Nature, Nature, vol. 463(7282), pages 733-734, February.
    5. Donald B. Hausch & Victor S. Y. Lo & William T. Ziemba, 2008. "Introduction to Economics and Mathematical Insights," World Scientific Book Chapters, in: Donald B Hausch & Victor SY Lo & William T Ziemba (ed.), Efficiency Of Racetrack Betting Markets, chapter 12, pages 87-91, World Scientific Publishing Co. Pte. Ltd..
    6. N/A, 2008. "Introductory Remarks," China Report, , vol. 44(1), pages 31-32, February.
    7. Menezes, Flavio M., 2008. "An Introduction to Auction Theory," OUP Catalogue, Oxford University Press, number 9780199275991, Decembrie.
    8. Barsdorf, Nicola Wendy & Wassenaar, Douglas Richard, 2005. "Racial differences in public perceptions of voluntariness of medical research participants in South Africa," Social Science & Medicine, Elsevier, vol. 60(5), pages 1087-1098, March.
    9. Maureen Njue & Francis Kombe & Salim Mwalukore & Sassy Molyneux & Vicki Marsh, 2014. "What Are Fair Study Benefits in International Health Research? Consulting Community Members in Kenya," PLOS ONE, Public Library of Science, vol. 9(12), pages 1-21, December.
    10. Lairumbi, Geoffrey Mbaabu & Molyneux, Sassy & Snow, Robert W. & Marsh, Kevin & Peshu, Norbert & English, Mike, 2008. "Promoting the social value of research in Kenya: Examining the practical aspects of collaborative partnerships using an ethical framework," Social Science & Medicine, Elsevier, vol. 67(5), pages 734-747, September.
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    Cited by:

    1. Bradbury-Jones, Caroline & Isham, Louise & Taylor, Julie, 2018. "The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review," Social Science & Medicine, Elsevier, vol. 215(C), pages 80-91.
    2. Akhenaten Siankam Tankwanchi & Emmanuella N. Asabor & Sten H. Vermund, 2023. "Global Health Perspectives on Race in Research: Neocolonial Extraction and Local Marginalization," IJERPH, MDPI, vol. 20(13), pages 1-23, June.

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