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Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol

Author

Listed:
  • Eva-Carin Lindgren

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden
    First authors Eva-Carin Lindgren, and Jeanette Källstrand.)

  • Jeanette Källstrand

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden
    First authors Eva-Carin Lindgren, and Jeanette Källstrand.)

  • Åsa Alftberg

    (Department of Social Work, Faculty of Health and Society, Malmö University, SE-20506 Malmö, Sweden)

  • Pia Johansson

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Lars Kristén

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Linn Håman

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Andreas Ivarsson

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

  • Ing-Marie Carlsson

    (School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden)

Abstract

Age-related macular degeneration (AMD) is the most common cause of incurable visual impairment and impacts daily life. These impacts include loss of social activities, decreased functional independence, and reduced physical activity. This protocol aims to describe a prospective, mixed-methodology for studying a population with AMD before, during, and after an empowerment-based physical activity intervention (EPI). A study framework was also developed for EPI. The intervention will include 20 older individuals (age 65+ years) with AMD recruited in Sweden. The intervention period is six months and comprises adapted physical activity and social activities in a group twice a week and individual health coaching on three occasions. The quantitative pre-test and three follow-ups include physical functional tests, an accelerometer that monitors physical activity continuously for one week, and questionnaires. Individual and focus-group interviews and ethnographic observations will explore the experience of living with AMD and what it means to participate in the EPI for individuals with AMD. The chosen methodology offers a structured way for researchers to explore the experiences and factors that may provide insights into the potential of creative supervised, adapted physical activity in groups, health coaching, and socialising that are significant to enable well-being among older individuals with AMD.

Suggested Citation

  • Eva-Carin Lindgren & Jeanette Källstrand & Åsa Alftberg & Pia Johansson & Lars Kristén & Linn Håman & Andreas Ivarsson & Ing-Marie Carlsson, 2022. "Empowerment-Based Physical Activity Intervention for People with Advanced Dry Age-Related Macular Degeneration: Mixed-Methods Protocol," IJERPH, MDPI, vol. 20(1), pages 1-12, December.
    • Handle: RePEc:gam:jijerp:v:20:y:2022:i:1:p:643-:d:1019832
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    References listed on IDEAS

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    1. Kristina Burström & Fitsum Sebsibe Teni & Ulf-G. Gerdtham & Reiner Leidl & Gert Helgesson & Ola Rolfson & Martin Henriksson, 2020. "Experience-Based Swedish TTO and VAS Value Sets for EQ-5D-5L Health States," PharmacoEconomics, Springer, vol. 38(8), pages 839-856, August.
    2. Nancy J. Devlin & Richard Brooks, 2017. "EQ-5D and the EuroQol Group: Past, Present and Future," Applied Health Economics and Health Policy, Springer, vol. 15(2), pages 127-137, April.
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