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Using Photovoice in a Mindfulness-Based Program to Understand the Experiences of Caregivers of Young Adults with Psychosis

Author

Listed:
  • Herman Hay Ming Lo

    (Faculty of Health and Social Sciences, Department of Applied Social Sciences, Hong Kong Polytechnic University, Hong Kong
    Professional Practice and Assessment Centre, Department of Applied Social Sciences, Hong Kong Polytechnic University, Hong Kong)

  • Ken Ho Kan Liu

    (Faculty of Health and Social Sciences, Department of Applied Social Sciences, Hong Kong Polytechnic University, Hong Kong)

  • Wing Chung Ho

    (Department of Social and Behavioural Sciences, City University of Hong Kong, Hong Kong)

  • Elsa Ngar Sze Lau

    (Department of Education Administration and Policy, Chinese University of Hong Kong, Hong Kong)

  • Man Fai Poon

    (Baptist Oi Kwan Social Service, Hong Kong)

  • Cola Siu Lin Lo

    (Castle Peak Hospital, Hospital Authority, Hong Kong)

  • Hillman Shiu Wah Tam

    (Faculty of Health and Social Sciences, Department of Applied Social Sciences, Hong Kong Polytechnic University, Hong Kong
    Heartfelt Listening Counselling Space, Hong Kong)

Abstract

Studies have consistently shown that family caregivers experience caregiver burden and depression when they provide care for family members with psychosis. Photovoice is a participatory action research method of fostering dialogues about personal experiences by sharing and discussing photographs that may improve our understanding about how a mindfulness-based family psychoeducation program (MBFPE) can reduce the caregiver burden and improve their caregiving experience. We explored the experiences of the participants in their use of photovoice in a MBFPE. We investigated whether the MBFPE program generated positive changes for caregivers of young adults with psychosis. Using photovoice, we collected qualitative data to help develop a unique contextual understanding of MBFPE program outcomes and generate novel ideas, insights, suggestions, and questions on the basis of participant’s perceptions. Participants in our pilot study and randomized controlled study of MBFPE were invited to participate in this photovoice activity. On the basis of a procedure developed for MBFPE, caregivers were invited to use photographs to express how mindfulness contributed to caregivers’ management of their caregiving stress and burden. Caregiver’s inquiry with the MBFPE instructors were transcribed for analysis together with the photographs. A grounded theory approach was adopted to analyze the photovoice images, participants’ reflections, and inquiries of photographs. Six themes were developed in understanding the lived experience of caregivers in participation of MBFPE: (1) I pay attention to the present moment; (2) I care about my family; (3) I trust my children; (4) I appreciate the connection with and support from nature and the universe; (5) I observe my worries and guilt and learn not to be reactive; and (6) I find space in offering care and exercising self-care. The application of photovoice can offer an additional approach to enhance the awareness and insights of participants in a mindfulness-based program. Specific guidelines may be developed to enhance the learning of participants.

Suggested Citation

  • Herman Hay Ming Lo & Ken Ho Kan Liu & Wing Chung Ho & Elsa Ngar Sze Lau & Man Fai Poon & Cola Siu Lin Lo & Hillman Shiu Wah Tam, 2022. "Using Photovoice in a Mindfulness-Based Program to Understand the Experiences of Caregivers of Young Adults with Psychosis," IJERPH, MDPI, vol. 19(23), pages 1-20, November.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:23:p:15461-:d:980491
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    References listed on IDEAS

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    1. Hennie Boeije, 2002. "A Purposeful Approach to the Constant Comparative Method in the Analysis of Qualitative Interviews," Quality & Quantity: International Journal of Methodology, Springer, vol. 36(4), pages 391-409, November.
    2. Maria Moudatsou & Sofia Koukouli & Eleutheria Palioka & Garyfalia Pattakou & Panagiota Teleme & Georgia Fasoi & Evridiki Kaba & Areti Stavropoulou, 2021. "Caring for Patients with Psychosis: Mental Health Professionals’ Views on Informal Caregivers’ Needs," IJERPH, MDPI, vol. 18(6), pages 1-14, March.
    3. Jacek Wciórka & Piotr Świtaj & Marta Anczewska, 2015. "The sense of empowerment in the early stage of recovery from psychosis," Psychosis, Taylor & Francis Journals, vol. 7(3), pages 249-260, July.
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    Cited by:

    1. Zoe Jiwen Zhang & Herman Hay Ming Lo & Siu Man Ng & Winnie W. S. Mak & Samuel Yeung Shan Wong & Karen S. Y. Hung & Cola Siu Lin Lo & Jessica Oi Yin Wong & Simon S. Y. Lui & Edmund Lin & Clara Man Wah , 2023. "The Effects of a Mindfulness-Based Family Psychoeducation Intervention for the Caregivers of Young Adults with First-Episode Psychosis: A Randomized Controlled Trial," IJERPH, MDPI, vol. 20(2), pages 1-17, January.

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