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Learning and Action in Community Health: Using the Health Belief Model to Assess and Educate African American Community Residents about Participation in Clinical Research

Author

Listed:
  • Latrice Rollins

    (Department of Community Health and Preventive Medicine, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Angela Sy

    (John A. Burns School of Medicine, University of Hawai’i at Manoa, 651 Ilalo Street, BSB 320, Honolulu, HI 96813, USA)

  • Nicole Crowell

    (Clinical Research Center, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Desiree Rivers

    (Department of Community Health and Preventive Medicine, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Assia Miller

    (Department of Community Health and Preventive Medicine, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Pamela Cooper

    (Clinical Research Center, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Debra Teague

    (Clinical Research Center, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Cassandra Jackson

    (Clinical Research Center, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Tabia Henry Akintobi

    (Department of Community Health and Preventive Medicine, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

  • Elizabeth Ofili

    (Clinical Research Center, Morehouse School of Medicine, 720 Westview Dr., Atlanta, GA 30310, USA)

Abstract

The Learning and Action in Community Health project was implemented to gather preliminary data needed to inform community-engaged educational approaches to increase clinical research participation among racial minorities. The Health Belief Model was the theoretical framework utilized to develop the intervention and assessment tools. An educational session about clinical research and biorepository participation was designed using clinicaltrials.gov information and administered to adult, African American community residents ( n = 60) in Atlanta, Georgia. Pre- and post-tests were collected and analyzed to assess changes in participants’ knowledge, perceptions, and willingness to participate in clinical studies and biorepositories. There were statistically significant changes in knowledge about joining a clinical study ( p < 0.001) and registry or biorepository ( p < 0.001). There was no statistically significant change in willingness to participate in clinical research or biorepositories after the educational session. Focus groups were conducted to gather feedback on the educational session and perceived barriers and benefits to participating in clinical research. Perceived benefits were improving health, receiving incentives, early detection of health issues, and access to care. Perceived barriers included fear, lack of knowledge, historical mistrust of research, and time constraints. Results have implications for subsequent community-engaged approaches to increasing minority participation in clinical research.

Suggested Citation

  • Latrice Rollins & Angela Sy & Nicole Crowell & Desiree Rivers & Assia Miller & Pamela Cooper & Debra Teague & Cassandra Jackson & Tabia Henry Akintobi & Elizabeth Ofili, 2018. "Learning and Action in Community Health: Using the Health Belief Model to Assess and Educate African American Community Residents about Participation in Clinical Research," IJERPH, MDPI, vol. 15(9), pages 1-14, August.
  • Handle: RePEc:gam:jijerp:v:15:y:2018:i:9:p:1862-:d:166227
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    References listed on IDEAS

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    1. Paula M. Frew & Jay T. Schamel & Kelli A. O’Connell & Laura A. Randall & Sahithi Boggavarapu, 2015. "Results of a Community Randomized Study of a Faith-Based Education Program to Improve Clinical Trial Participation among African Americans," IJERPH, MDPI, vol. 13(1), pages 1-12, December.
    2. David Wendler & Raynard Kington & Jennifer Madans & Gretchen Van Wye & Heidi Christ-Schmidt & Laura A Pratt & Otis W Brawley & Cary P Gross & Ezekiel Emanuel, 2005. "Are Racial and Ethnic Minorities Less Willing to Participate in Health Research?," PLOS Medicine, Public Library of Science, vol. 3(2), pages 1-1, December.
    3. George, S. & Duran, N. & Norris, K., 2014. "A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders," American Journal of Public Health, American Public Health Association, vol. 104(2), pages 16-31.
    4. Freimuth, Vicki S. & Quinn, Sandra Crouse & Thomas, Stephen B. & Cole, Galen & Zook, Eric & Duncan, Ted, 2001. "African Americans' views on research and the Tuskegee Syphilis study," Social Science & Medicine, Elsevier, vol. 52(5), pages 797-808, March.
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    1. Elizabeth O. Ofili & Laura E. Schanberg & Barbara Hutchinson & Felix Sogade & Icilma Fergus & Phillip Duncan & Joe Hargrove & Andre Artis & Osita Onyekwere & Wayne Batchelor & Marcus Williams & Adefis, 2019. "The Association of Black Cardiologists (ABC) Cardiovascular Implementation Study (CVIS): A Research Registry Integrating Social Determinants to Support Care for Underserved Patients," IJERPH, MDPI, vol. 16(9), pages 1-16, May.
    2. Xingyuan Wang & Yun Liu & Hongchen Liu, 2020. "Examining Users’ Adoption of Precision Medicine: The Moderating Role of Medical Technical Knowledge," IJERPH, MDPI, vol. 17(3), pages 1-16, February.

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