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Dirty, diseased and undeserving: The positioning of HIV positive women

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  • Lawless, Sonia
  • Kippax, Susan
  • Crawford, June

Abstract

The discursive construction of HIV/AIDS associates deviance and disease. Women living with HIV/AIDS, in particular, have been positioned as a source or potential source of infection, and have attracted guilt and blame: in becoming 'diseased' they have failed in their appropriate roles as carers and nurturers, responsible for the next generation. Based on in-depth interviews with 27 women living with HIV/AIDS this paper focuses on three ways of positioning HIV positive women: through discrimination on the part of medical professionals; through internalisation of stigmatisation; and through multiple stigmatisation of women who are or have been illicit drug users or sex workers. The implications of stigmatisation are discussed in relation to accessing health care and support.

Suggested Citation

  • Lawless, Sonia & Kippax, Susan & Crawford, June, 1996. "Dirty, diseased and undeserving: The positioning of HIV positive women," Social Science & Medicine, Elsevier, vol. 43(9), pages 1371-1377, November.
    • Handle: RePEc:eee:socmed:v:43:y:1996:i:9:p:1371-1377
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    Citations

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    Cited by:

    1. Loubiere, Sandrine & Peretti-Watel, Patrick & Boyer, Sylvie & Blanche, Jérôme & Abega, Séverin-Cécile & Spire, Bruno, 2009. "HIV disclosure and unsafe sex among HIV-infected women in Cameroon: Results from the ANRS-EVAL study," Social Science & Medicine, Elsevier, vol. 69(6), pages 885-891, September.
    2. Sanders, Teela, 2006. "Female sex workers as health educators with men who buy sex: Utilising narratives of rationalisations," Social Science & Medicine, Elsevier, vol. 62(10), pages 2434-2444, May.
    3. Zhou, Yanqiu Rachel, 2007. ""If you get AIDS... You have to endure it alone": Understanding the social constructions of HIV/AIDS in China," Social Science & Medicine, Elsevier, vol. 65(2), pages 284-295, July.
    4. Marija Pantelic & Mark Boyes & Lucie Cluver & Mildred Thabeng, 2018. "‘They Say HIV is a Punishment from God or from Ancestors’: Cross-Cultural Adaptation and Psychometric Assessment of an HIV Stigma Scale for South African Adolescents Living with HIV (ALHIV-SS)," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 11(1), pages 207-223, February.
    5. Szu‐Szu Ho & Aisha Holloway, 2016. "The impact of HIV‐related stigma on the lives of HIV‐positive women: an integrated literature review," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(1-2), pages 8-19, January.
    6. Heidi Hoefinger & Srorn Srun, 2017. "“At-Risk” or “Socially Deviant”? Conflicting Narratives and Grassroots Organizing of Sex/Entertainment Workers and LGBT Communities in Cambodia," Social Sciences, MDPI, vol. 6(3), pages 1-20, August.
    7. Doyal, Lesley & Anderson, Jane, 2005. "'My fear is to fall in love again...' How HIV-positive African women survive in London," Social Science & Medicine, Elsevier, vol. 60(8), pages 1729-1738, April.
    8. Marshall, Wende Elizabeth, 2005. "Aids, race and the limits of science," Social Science & Medicine, Elsevier, vol. 60(11), pages 2515-2525, June.
    9. Valerie Møller & Ida Erstad & Dalinyebo Zani, 2010. "Drinking, Smoking, and Morality: Do ‘Drinkers and Smokers’ Constitute a Stigmatised Stereotype or a Real TB Risk Factor in the Time of HIV/AIDS?," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 98(2), pages 217-238, September.
    10. Liamputtong, Pranee & Haritavorn, Niphattra & Kiatying-Angsulee, Niyada, 2009. "HIV and AIDS, stigma and AIDS support groups: Perspectives from women living with HIV and AIDS in central Thailand," Social Science & Medicine, Elsevier, vol. 69(6), pages 862-868, September.
    11. Class, Deena M., 2014. "Effects of HIV prevention messages on treatment-seeking and adherence for HIV-infected children in Maputo, Mozambique: A qualitative study," Children and Youth Services Review, Elsevier, vol. 45(C), pages 64-73.
    12. Peretti-Watel, P. & Spire, B. & Schiltz, M.A. & Bouhnik, A.D. & Heard, I. & Lert, F. & Obadia, Y., 2006. "Vulnerability, unsafe sex and non-adherence to HAART: Evidence from a large sample of French HIV/AIDS outpatients," Social Science & Medicine, Elsevier, vol. 62(10), pages 2420-2433, May.

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