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Experiential caring and the mobilisation of peerhood in group clinics

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  • van Dael, Jackie
  • Shaw, Sara
  • Papoutsi, Chrysanthi

Abstract

The concept of ‘peer support’ has generated much interest in mainstream health services. In policy discourse, peer-based initiatives are often described as ‘empowering’ and seen as contributing to more ‘democratic’ and ‘holistic’ forms of care. Focusing on group clinics as one such example, this article challenges the assumption that peer-based initiatives represent a straightforward and unequivocal ‘good’ when embedded in clinical care. We draw on qualitative data from three studies (2016–2025), including 118 interviews and ethnographic observation in 59 in-person, remote, and hybrid group clinics for diabetes and menopause at 5 primary and secondary care sites in England. Adopting a sociomaterial lens, we uncover how different forms and practices of peerhood emerge (or not) in the circumstances through which these clinics are materialised. We show how biomedical artefacts (e.g. diabetes test results, menopause symptom lists) used as part of consulting play a key role in constituting forms of affiliation and differentiation between patients, in turn determining whether and what forms of peer ‘support’ (e.g. disciplinary, affirmative) are accomplished. We go on to explore how being presented as a peer as part of clinical consulting brings about new roles and responsibilities for patients, and introduce the term ‘experiential caring’ to denote a new mode of consulting that mobilises roles, practices, and subjectivities associated with peerhood.

Suggested Citation

  • van Dael, Jackie & Shaw, Sara & Papoutsi, Chrysanthi, 2025. "Experiential caring and the mobilisation of peerhood in group clinics," Social Science & Medicine, Elsevier, vol. 377(C).
  • Handle: RePEc:eee:socmed:v:377:y:2025:i:c:s027795362500437x
    DOI: 10.1016/j.socscimed.2025.118107
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    1. Mazanderani, Fadhila & Locock, Louise & Powell, John, 2012. "Being differently the same: The mediation of identity tensions in the sharing of illness experiences," Social Science & Medicine, Elsevier, vol. 74(4), pages 546-553.
    2. Ellis, J. & Boger, E. & Latter, S. & Kennedy, A. & Jones, F. & Foster, C. & Demain, S., 2017. "Conceptualisation of the ‘good’ self-manager: A qualitative investigation of stakeholder views on the self-management of long-term health conditions," Social Science & Medicine, Elsevier, vol. 176(C), pages 25-33.
    3. Thompson-Lastad, Ariana & Rubin, Sara, 2020. "A crack in the wall: Chronic pain management in integrative group medical visits," Social Science & Medicine, Elsevier, vol. 258(C).
    4. Mullard, Jordan C.R. & Kawalek, Jessica & Parkin, Amy & Rayner, Clare & Mir, Ghazala & Sivan, Manoj & Greenhalgh, Trisha, 2023. "Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review," Social Science & Medicine, Elsevier, vol. 320(C).
    5. Wanda J Orlikowski, 2006. "Material knowing: the scaffolding of human knowledgeability," European Journal of Information Systems, Taylor & Francis Journals, vol. 15(5), pages 460-466, October.
    6. Essén, Anna & Oborn, Eivor, 2017. "The performativity of numbers in illness management: The case of Swedish Rheumatology," Social Science & Medicine, Elsevier, vol. 184(C), pages 134-143.
    7. Madeleine Akrich, 2010. "From Communities of Practice to Epistemic Communities: Health Mobilizations on the Internet," Sociological Research Online, , vol. 15(2), pages 116-132, May.
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