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The Psychosocial Burden of Families with Childhood Blood Cancer

Author

Listed:
  • Florencia Borrescio-Higa

    (Business School and GobLab UAI, Universidad Adolfo Ibáñez, Santiago 7941169, Chile)

  • Nieves Valdés

    (Business School and GobLab UAI, Universidad Adolfo Ibáñez, Santiago 7941169, Chile)

Abstract

Cancer is the second leading cause of death for children, and leukemias are the most common pediatric cancer diagnoses in Chile. Childhood cancer is a traumatic experience and is associated with distress, pain, and other negative experiences for patients and their families. Thus, psychosocial costs represent a large part of the overall burden of cancer. This study examines psychosocial experiences in a sample of 90 families of children with blood-related cancer in Chile. We provide a global overview of the family experience, focusing on patients, caregivers, and siblings. We find that most families report a negative impact upon diagnosis; disruptions in family dynamics; a range of negative feelings of the patient, such as depression, discouragement, and irritability; and difficulty with social lives. Additionally, they report negative effects in the relationship between the siblings of the patient and their parents, and within their caregivers’ spouse/partner relationship, as well as a worsening of the economic condition of the primary caregiver. Furthermore, over half of the families in the sample had to move due to diagnosis and/or treatment. Promoting interventions that can help patients, siblings, and parents cope with distress and promote resilience and well-being are important.

Suggested Citation

  • Florencia Borrescio-Higa & Nieves Valdés, 2022. "The Psychosocial Burden of Families with Childhood Blood Cancer," IJERPH, MDPI, vol. 19(1), pages 1-14, January.
    • Handle: RePEc:gam:jijerp:v:19:y:2022:i:1:p:599-:d:718311
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    References listed on IDEAS

    as
    1. Hye Chong Hong & Ari Min & Sungkyoung Choi, 2021. "Living with the Late Effects of Childhood Cancer Treatment: A Descriptive Qualitative Study," IJERPH, MDPI, vol. 18(16), pages 1-14, August.
    2. Florencia Borrescio-Higa & Nieves Valdés, 2021. "Medical Cost of Cancer Care for Privately Insured Children in Chile," IJERPH, MDPI, vol. 18(13), pages 1-15, June.
    3. Raimundo Soto & Arístides Torche, 2004. "Spatial Inequality, Migration and Economic Growth in Chile," Latin American Journal of Economics-formerly Cuadernos de Economía, Instituto de Economía. Pontificia Universidad Católica de Chile., vol. 41(124), pages 401-424.
    4. Atanu Sengupta & Sanjoy De, 2020. "Review of Literature," India Studies in Business and Economics, in: Assessing Performance of Banks in India Fifty Years After Nationalization, chapter 0, pages 15-30, Springer.
    5. Raimundo Soto & Aristides Torche, 2004. "Spatial Inequality in Chile," Econometric Society 2004 Latin American Meetings 241, Econometric Society.
    6. Filiberto Toledano-Toledano & David Luna & José Moral de la Rubia & Silvia Martínez Valverde & Carlos Alberto Bermúdez Morón & Marcela Salazar García & Mario José Vasquez Pauca, 2021. "Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study," IJERPH, MDPI, vol. 18(2), pages 1-13, January.
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    Cited by:

    1. Silvia Spaggiari & Giulia Calignano & Maria Montanaro & Silvana Zaffani & Valerio Cecinati & Claudio Maffeis & Daniela Di Riso, 2024. "Examining Coping Strategies and Their Relation with Anxiety: Implications for Children Diagnosed with Cancer or Type 1 Diabetes and Their Caregivers," IJERPH, MDPI, vol. 21(1), pages 1-17, January.
    2. Maria Carolina Neves & Ana Bártolo & Judith B. Prins & Célia M. D. Sales & Sara Monteiro, 2023. "Taking Care of an Adolescent and Young Adult Cancer Survivor: A Systematic Review of the Impact of Cancer on Family Caregivers," IJERPH, MDPI, vol. 20(8), pages 1-17, April.

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