The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research
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References listed on IDEAS
- Dumit, Joseph, 2006. "Illnesses you have to fight to get: Facts as forces in uncertain, emergent illnesses," Social Science & Medicine, Elsevier, vol. 62(3), pages 577-590, February.
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Keywordspatients’ organizations; rare diseases; France; Portugal; hybrid collective model; delegation model; singularization-generalization;
- Z10 - Other Special Topics - - Cultural Economics - - - General
- I10 - Health, Education, and Welfare - - Health - - - General
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