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Developing a Conceptual Framework for Socioeconomic Impact Research in European Cancer Patients: A ‘Best-Fit’ Framework Synthesis

Author

Listed:
  • Phu Duy Pham

    (German Cancer Research Center (DKFZ)
    University of Heidelberg)

  • Michael Schlander

    (German Cancer Research Center (DKFZ)
    University of Heidelberg
    University of Heidelberg
    Institute for Innovation and Valuation in Health Care (InnoVal-HC))

  • Rachel Eckford

    (German Cancer Research Center (DKFZ))

  • Karla Hernandez-villafuerte

    (German Cancer Research Center (DKFZ))

  • Jasper Ubels

    (German Cancer Research Center (DKFZ)
    University of Heidelberg)

Abstract

Background Multiple studies have indicated a socioeconomic impact of cancer and cancer care on patients and their families. Existing instruments designed to measure this impact lack consensus in their conceptualization of the issue. Further, various terminologies have been used in the literature (e.g., financial burden, financial hardship, financial stress) without clear definitions and consistent conceptual background. Based on a targeted review of existing models addressing the socioeconomic impact of cancer, our goal was to develop a comprehensive framework from a European perspective. Method A ‘best-fit’ framework synthesis was applied. First, we systematically identified existing models to generate a priori concepts. Second, we systematically identified relevant European qualitative studies and coded their results against these a priori concepts. Inclusion and exclusion criteria were predefined and applied thoroughly in these processes. Thematic analysis and team discussions were applied to finalize the (sub)themes in our proposed conceptual framework. Third, we examined model structures and quotes from qualitative studies to explore relationships among (sub)themes. This process was repeated until no further change in (sub)themes and their relationships emerged. Result Eighteen studies containing conceptual models and seven qualitative studies were identified. Eight concepts and 20 sub-concepts were derived from the included models. After coding the included qualitative studies against the a priori concepts and following discussions among team members, seven themes and 15 sub-themes were included in our proposed conceptual framework. Based on the identified relationships, we categorized themes into four groups: causes, intermediate consequences, outcomes and risk factors. Conclusion We propose a Socioeconomic Impact Framework based on a targeted review and synthesis of existing models in the field and adapted to the European perspective. Our work contributes as an input to a European consensus project on socioeconomic impact research by an Organization European Cancer Institute (OECI) Task Force.

Suggested Citation

  • Phu Duy Pham & Michael Schlander & Rachel Eckford & Karla Hernandez-villafuerte & Jasper Ubels, 2023. "Developing a Conceptual Framework for Socioeconomic Impact Research in European Cancer Patients: A ‘Best-Fit’ Framework Synthesis," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 16(5), pages 515-536, September.
    • Handle: RePEc:spr:patien:v:16:y:2023:i:5:d:10.1007_s40271-023-00632-z
    DOI: 10.1007/s40271-023-00632-z
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    References listed on IDEAS

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    2. Cylus, Jonathan & Papanicolas, Irene, 2015. "An analysis of perceived access to health care in Europe: How universal is universal coverage?," Health Policy, Elsevier, vol. 119(9), pages 1133-1144.
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