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The Voice of the Patient Methodology: A Novel Mixed-Methods Approach to Identifying Treatment Goals for Men with Prostate Cancer

Author

Listed:
  • Christopher S. Saigal

    (University of California, Los Angeles
    West Los Angeles Veteran Affairs Medical Center)

  • Sylvia I. Lambrechts

    (University of California, Los Angeles)

  • V. Seenu Srinivasan

    (Stanford University)

  • Ely Dahan

    (University of California, Los Angeles
    University of California)

Abstract

Background Many guidelines advocate the use of shared decision making for men with newly diagnosed prostate cancer. Decision aids can facilitate the process of shared decision making. Implicit in this approach is the idea that physicians understand which elements of treatment matter to patients. Little formal work exists to guide physicians or developers of decision aids in identifying these attributes. We use a mixed-methods technique adapted from marketing science, the ‘Voice of the Patient’, to describe and identify treatment elements of value for men with localized prostate cancer. Methods We conducted semi-structured interviews with 30 men treated for prostate cancer in the urology clinic of the West Los Angeles Veteran Affairs Medical Center. We used a qualitative analysis to generate themes in patient narratives, and a quantitative approach, agglomerative hierarchical clustering, to identify attributes of treatment that were most relevant to patients making decisions about prostate cancer. Results We identified five ‘traditional’ prostate cancer treatment attributes: sexual dysfunction, bowel problems, urinary problems, lifespan, and others’ opinions. We further identified two novel treatment attributes: a treatment’s ability to validate a sense of proactivity and the need for an incision (separate from risks of surgery). Conclusions Application of a successful marketing technique, the ‘Voice of the Customer’, in a clinical setting elicits non-obvious attributes that highlight unique patient decision-making concerns. Use of this method in the development of decision aids may result in more effective decision support.

Suggested Citation

  • Christopher S. Saigal & Sylvia I. Lambrechts & V. Seenu Srinivasan & Ely Dahan, 2017. "The Voice of the Patient Methodology: A Novel Mixed-Methods Approach to Identifying Treatment Goals for Men with Prostate Cancer," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(3), pages 345-352, June.
    • Handle: RePEc:spr:patien:v:10:y:2017:i:3:d:10.1007_s40271-016-0203-y
    DOI: 10.1007/s40271-016-0203-y
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    1. Charles, Cathy & Gafni, Amiram & Whelan, Tim, 1997. "Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango)," Social Science & Medicine, Elsevier, vol. 44(5), pages 681-692, March.
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