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Patients’ Perception of Patient–Provider Communication in Fertility Preservation Decision Making Among Young Women With Cancer

Author

Listed:
  • Aakrati Mathur
  • E. Robert Orellana
  • Amy Frohnmayer
  • Pauline Jivanjee
  • Lillian Nail
  • Brandon Hayes-Lattin
  • Rebecca G. Block

Abstract

Fertility preservation (FP) for patients with cancer is an emerging field. With the advancement of technology, patients may face a complex decision-making process about whether to preserve fertility. The purpose of this article is to explore how young women with cancer perceive patient–provider communication in FP decision making. In this study, 25 women between the ages of 18 and 39 were interviewed retrospectively. They were interviewed one time to learn about their decision-making process related to FP. Results of this analysis indicate that patients seek support and involvement from providers throughout the process of decision making. They prefer providers to be directive when referring to the fertility clinic. Later in the process, they expect a supportive style of communication from providers. Patient-accessible language, supportive and reassuring styles of communication, and an existing relationship with providers may enhance well-being of the patients.

Suggested Citation

  • Aakrati Mathur & E. Robert Orellana & Amy Frohnmayer & Pauline Jivanjee & Lillian Nail & Brandon Hayes-Lattin & Rebecca G. Block, 2013. "Patients’ Perception of Patient–Provider Communication in Fertility Preservation Decision Making Among Young Women With Cancer," SAGE Open, , vol. 3(3), pages 21582440135, September.
    • Handle: RePEc:sae:sagope:v:3:y:2013:i:3:p:2158244013505293
    DOI: 10.1177/2158244013505293
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    References listed on IDEAS

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    1. Blanchard, Christina G. & Labrecque, Mark S. & Ruckdeschel, John C. & Blanchard, Edward B., 1988. "Information and decision-making preferences of hospitalized adult cancer patients," Social Science & Medicine, Elsevier, vol. 27(11), pages 1139-1145, January.
    2. Quinn, Gwendolyn P. & Vadaparampil, Susan T. & Bell-Ellison, Bethany A. & Gwede, Clement K. & Albrecht, Terrance L., 2008. "Patient-physician communication barriers regarding fertility preservation among newly diagnosed cancer patients," Social Science & Medicine, Elsevier, vol. 66(3), pages 784-789, February.
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    Cited by:

    1. Jennifer Chamberlain-Salaun & Kim Usher & Jane Mills, 2020. "Outsiders in the Experts’ World: A Grounded Theory Study of Consumers and the Social World of Health Care," SAGE Open, , vol. 10(1), pages 21582440209, January.
    2. Inhorn, Marcia C. & Birenbaum-Carmeli, Daphna & Patrizio, Pasquale, 2017. "Medical egg freezing and cancer patients’ hopes: Fertility preservation at the intersection of life and death," Social Science & Medicine, Elsevier, vol. 195(C), pages 25-33.

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