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Patients’ Experiences of Person-Centered Care in the Context of Allogenic Stem Cell Transplantation

Author

Listed:
  • Anna O’Sullivan
  • Carina Lundh Hagelin
  • Katarina Holmberg
  • Karin Bergkvist
  • Sidona-Valentina Bala
  • Yvonne Wengström
  • Annika Malmborg Kisch
  • Jeanette Winterling

Abstract

Studies addressing patients’ experiences of person-centered care (PCC) in the context of allogeneic hematopoietic stem cell transplantation (allo-HSCT) are scarce; hence, this study aimed to explore patients’ experiences of PCC, and its associations with individual characteristics and health-related quality of life, in the context of allogeneic stem cell transplantation. It is a cross-sectional survey study, in patients who had undergone an allo-HSCT at one center in Sweden. The PCC instrument for outpatient care in rheumatology (PCCoc/rheum) was used. Descriptive and analytical statistics were employed. The study had 126 participants, evenly distributed males and females, 18–79 years old (>60% were 50–69 years old), and most were (>70%) married or cohabiting. The sum score for all items on PCCoc/rheum ranged from 20 to 72 (higher score = higher degree of PCC), with a mean value of 62.67 (SD: 9.863). Most participants (87–99%) agreed with the level of person-centeredness for 22 of the 24 items. Of the participants, 83.3% agreed that they had undisturbed conversations, that their problems had been taken seriously (79.0%), that they had an opportunity to tell their story (77.8%), and collaboration with the nurse was good (77.6%). A sizeable proportion disagreed that the care environment was welcoming (11.9%), family members’ involvement (13.7%), and the possibility to influence the care (15.5%). The fulfillment of PCC was rated as high, but the results indicate that there is room for improvement regarding the possibility of influencing the care and family members’ involvement.

Suggested Citation

  • Anna O’Sullivan & Carina Lundh Hagelin & Katarina Holmberg & Karin Bergkvist & Sidona-Valentina Bala & Yvonne Wengström & Annika Malmborg Kisch & Jeanette Winterling, 2025. "Patients’ Experiences of Person-Centered Care in the Context of Allogenic Stem Cell Transplantation," Clinical Nursing Research, , vol. 34(2), pages 86-94, February.
    • Handle: RePEc:sae:clnure:v:34:y:2025:i:2:p:86-94
    DOI: 10.1177/10547738241302393
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    References listed on IDEAS

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    1. Jesús Molina-Mula & Julia Gallo-Estrada, 2020. "Impact of Nurse-Patient Relationship on Quality of Care and Patient Autonomy in Decision-Making," IJERPH, MDPI, vol. 17(3), pages 1-24, January.
    2. Pirhonen, Laura & Olofsson, Elisabeth Hansson & Fors, Andreas & Ekman, Inger & Bolin, Kristian, 2017. "Effects of person-centred care on health outcomes—A randomized controlled trial in patients with acute coronary syndrome," Health Policy, Elsevier, vol. 121(2), pages 169-179.
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