IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v19y2022i19p12641-d932559.html
   My bibliography  Save this article

Experiences of Organisations of (or That Serve) Persons with Disabilities during the COVID-19 Pandemic and National Lockdown Period in South Africa

Author

Listed:
  • Naomi Hlongwane

    (Centre for Disability and Rehabilitation Studies, Department of Global Health, Faculty of Medicine & Health Sciences, Stellenbosch University, Cape Town 7602, South Africa
    These authors contributed equally to this work.)

  • Lieketseng Ned

    (Centre for Disability and Rehabilitation Studies, Department of Global Health, Faculty of Medicine & Health Sciences, Stellenbosch University, Cape Town 7602, South Africa
    These authors contributed equally to this work.)

  • Emma McKinney

    (Interdisciplinary Centre for Sports Science and Development, Community and Health Sciences, University of the Western Cape, Cape Town 7535, South Africa)

  • Vic McKinney

    (Department of Health and Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Cape Town 7700, South Africa)

  • Leslie Swartz

    (Department of Psychology, Faculty of Arts and Social Sciences, Stellenbosch University, Stellenbosch 7602, South Africa)

Abstract

Organisations have long played an effective role in advocating for and actioning crucial developmental and humanitarian functions around the world, often under challenging conditions, as well as servicing the health needs of persons with disabilities. This article reports on the experiences of organisations of (or that serve) persons with disabilities, hereafter called service providers, during the COVID-19 lockdown period in South Africa beginning 26 March 2020. Organisations participated in an online survey as well as virtual narrative interviews to voice out their experiences. Five major themes emerged: (1) difficulties in keeping the doors open; (2) continued care under lockdown; (3) restructuring of care (4) government systems and policies; and (5) reaching out to offer and receive support. The findings demonstrate that the South African government failed to ensure targeted support to organisations of persons with disabilities. A remarkable feature of the organisations we interviewed for this small study was their agility in responding creatively to the challenges they faced, despite the difficulties. There is a need for government support to include targeted efforts to support organisation of persons with disabilities during pandemics to avoid worsening service gaps.

Suggested Citation

  • Naomi Hlongwane & Lieketseng Ned & Emma McKinney & Vic McKinney & Leslie Swartz, 2022. "Experiences of Organisations of (or That Serve) Persons with Disabilities during the COVID-19 Pandemic and National Lockdown Period in South Africa," IJERPH, MDPI, vol. 19(19), pages 1-16, October.
  • Handle: RePEc:gam:jijerp:v:19:y:2022:i:19:p:12641-:d:932559
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/19/19/12641/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/19/19/12641/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Lena M. Banks & Matthew Walsham & Hoang Van Minh & Doan Thi Thuy Duong & Tran Thu Ngan & Vu Quynh Mai & Karl Blanchet & Hannah Kuper, 2019. "Access to social protection among people with disabilities: Evidence from Viet Nam," International Social Security Review, John Wiley & Sons, vol. 72(1), pages 59-82, January.
    2. Krahn, G.L. & Walker, D.K. & Correa-De-Araujo, R., 2015. "Persons with disabilities as an unrecognized health disparity population," American Journal of Public Health, American Public Health Association, vol. 105, pages 198-206.
    3. Lena Morgon Banks & Matthew Walsham & Shailes Neupane & Saurav Neupane & Yogendra Pradhananga & Mahesh Maharjan & Karl Blanchet & Hannah Kuper, 2019. "Access to Social Protection Among People with Disabilities: Mixed Methods Research from Tanahun, Nepal," The European Journal of Development Research, Palgrave Macmillan;European Association of Development Research and Training Institutes (EADI), vol. 31(4), pages 929-956, September.
    4. Tiago S. Jesus & Sutanuka Bhattacharjya & Christina Papadimitriou & Yelena Bogdanova & Jacob Bentley & Juan Carlos Arango-Lasprilla & Sureshkumar Kamalakannan & The Refugee Empowerment Task Force, Int, 2021. "Lockdown-Related Disparities Experienced by People with Disabilities during the First Wave of the COVID-19 Pandemic: Scoping Review with Thematic Analysis," IJERPH, MDPI, vol. 18(12), pages 1-24, June.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Josephine E. Prynn & Sarah Polack & Islay Mactaggart & Lena Morgon Banks & Shaffa Hameed & Carlos Dionicio & Shailes Neupane & GVS Murthy & Joseph Oye & Jonathan Naber & Hannah Kuper, 2021. "Disability among Older People: Analysis of Data from Disability Surveys in Six Low- and Middle-Income Countries," IJERPH, MDPI, vol. 18(13), pages 1-13, June.
    2. Reshma Parvin Nuri & Setareh Ghahari & Heather Michelle Aldersey & Ahmed Shafiqul Huque, 2020. "Exploring access to government-led support for children with disabilities in Bangladesh," PLOS ONE, Public Library of Science, vol. 15(7), pages 1-18, July.
    3. Islay Mactaggart & Ammar Hasan Bek & Lena Morgon Banks & Tess Bright & Carlos Dionicio & Shaffa Hameed & Shailes Neupane & GVS Murthy & Ahmed Orucu & Joseph Oye & Jonathan Naber & Tom Shakespeare & An, 2021. "Interrogating and Reflecting on Disability Prevalence Data Collected Using the Washington Group Tools: Results from Population-Based Surveys in Cameroon, Guatemala, India, Maldives, Nepal, Turkey and ," IJERPH, MDPI, vol. 18(17), pages 1-14, August.
    4. Jong Eun Park & So Young Kim & Se Hee Kim & Eun Ju Jeoung & Jong Hyock Park, 2020. "Household Food Insecurity: Comparison between Families with and without Members with Disabilities," IJERPH, MDPI, vol. 17(17), pages 1-16, August.
    5. Park, Keunhyun & Chamberlain, Brent & Song, Ziqi & Nasr Esfahani, Hossein & Sheen, Jeff & Larsen, Teresa & Long Novack, Valerie & Licon, Carlos & Christensen, Keith, 2022. "A double jeopardy: COVID-19 impacts on the travel behavior and community living of people with disabilities," Transportation Research Part A: Policy and Practice, Elsevier, vol. 156(C), pages 24-35.
    6. Mónica Rojas-Chaves & Manuel Lucas-Matheu & Gracia Castro-Luna & Tesifón Parrón-Carreño & Bruno José Nievas-Soriano, 2022. "Validation of a Scale on Society’s Attitudes towards the Sexuality of Women with Intellectual Disabilities—Survey Study," IJERPH, MDPI, vol. 19(20), pages 1-10, October.
    7. Herberholz, Chantal & Phuntsho, Sonam, 2021. "Medical, transportation and spiritual out-of-pocket health expenditure on outpatient and inpatient visits in Bhutan," Social Science & Medicine, Elsevier, vol. 273(C).
    8. Hye Jin Nam & Ju Young Yoon, 2021. "Linking Health Literacy to Self-Care in Hypertensive Patients with Physical Disabilities: A Path Analysis Using a Multi-Mediation Model," IJERPH, MDPI, vol. 18(7), pages 1-15, March.
    9. Yashoda Sharma & Alison Whiting & Tilak Dutta, 2022. "A Survey of the Challenges Faced by Individuals with Disabilities and Unpaid Caregivers during the COVID-19 Pandemic," IJERPH, MDPI, vol. 19(16), pages 1-17, August.
    10. Han-Nu-Ri Kang & Kang-Sook Lee & JuYeon Koh & YuJin Park & HyunKyung Shin, 2021. "The Factors Associated with Attempted Smoking Cessation and Successful Four-Week Smoking Abstinence According to the Types of Disability in Seoul, Korea," IJERPH, MDPI, vol. 18(7), pages 1-14, March.
    11. Nkiruka C. Atuegwu & Mark D. Litt & Suchitra Krishnan-Sarin & Reinhard C. Laubenbacher & Mario F. Perez & Eric M. Mortensen, 2021. "E-Cigarette Use in Young Adult Never Cigarette Smokers with Disabilities: Results from the Behavioral Risk Factor Surveillance System Survey," IJERPH, MDPI, vol. 18(10), pages 1-13, May.
    12. Marjolein Thijssen & Maud J. L. Graff & Monique A. S. Lexis & Maria W. G. Nijhuis-van der Sanden & Kate Radford & Pip A. Logan & Ramon Daniels & Wietske Kuijer-Siebelink, 2023. "Collaboration for Developing and Sustaining Community Dementia-Friendly Initiatives: A Realist Evaluation," IJERPH, MDPI, vol. 20(5), pages 1-24, February.
    13. Xanthe Hunt & Melissa Bradshaw & Steyn Lodewyk Vogel & Alberto Vasquez Encalada & Shanice Eksteen & Marguerite Schneider & Kelly Chunga & Leslie Swartz, 2022. "Community Support for Persons with Disabilities in Low- and Middle-Income Countries: A Scoping Review," IJERPH, MDPI, vol. 19(14), pages 1-17, July.
    14. Nicola Fortune & Rosamond H. Madden & Shane Clifton, 2021. "Health and Access to Health Services for People with Disability in Australia: Data and Data Gaps," IJERPH, MDPI, vol. 18(21), pages 1-15, November.
    15. Pearse McCusker & Lauren Gillespie & Gavin Davidson & Sarah Vicary & Kevin Stone, 2023. "The United Nations Convention on the Rights of Persons with Disabilities and Social Work: Evidence for Impact?," IJERPH, MDPI, vol. 20(20), pages 1-18, October.
    16. Rosemary B. Hughes & Susan Robinson-Whelen & Carly Knudson, 2022. "Cancer Disparities Experienced by People with Disabilities," IJERPH, MDPI, vol. 19(15), pages 1-9, July.
    17. Sureshkumar Kamalakannan & Sutanuka Bhattacharjya & Yelena Bogdanova & Christina Papadimitriou & Juan Carlos Arango-Lasprilla & Jacob Bentley & Tiago S. Jesus & Refugee Empowerment Task Force, Interna, 2021. "Health Risks and Consequences of a COVID-19 Infection for People with Disabilities: Scoping Review and Descriptive Thematic Analysis," IJERPH, MDPI, vol. 18(8), pages 1-17, April.
    18. James H. Rimmer, 2022. "Addressing Disability Inequities: Let’s Stop Admiring the Problem and Do Something about It," IJERPH, MDPI, vol. 19(19), pages 1-8, September.
    19. Amilon, Anna & Hansen, Kasper M. & Kjær, Agnete Aslaug & Steffensen, Tinne, 2021. "Estimating disability prevalence and disability-related inequalities: Does the choice of measure matter?," Social Science & Medicine, Elsevier, vol. 272(C).
    20. Robin G. Lanzi & Riddhi A. Modi & James Rimmer, 2023. "A Disability-Inclusive Healthcare-to-Well-Being Translational Science Framework," IJERPH, MDPI, vol. 21(1), pages 1-13, December.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:19:y:2022:i:19:p:12641-:d:932559. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.