IDEAS home Printed from https://ideas.repec.org/a/gam/jijerp/v18y2021i18p9757-d636825.html
   My bibliography  Save this article

From Digital Mental Health to Digital Social and Emotional Wellbeing: How Indigenous Community-Based Participatory Research Influenced the Australian Government’s Digital Mental Health Agenda

Author

Listed:
  • James Bennett-Levy

    (University Centre for Rural Health, The University of Sydney, Lismore 2480, Australia)

  • Judy Singer

    (University Centre for Rural Health, The University of Sydney, Lismore 2480, Australia)

  • Darlene Rotumah

    (Gnibi College of Indigenous Australian Peoples, Southern Cross University, Lismore 2480, Australia)

  • Sarah Bernays

    (School of Public Health, The University of Sydney, Sydney 2006, Australia
    London School of Hygiene and Tropical Medicine, London WC1E 7HT, UK)

  • David Edwards

    (University Centre for Rural Health, The University of Sydney, Lismore 2480, Australia)

Abstract

This paper describes the first six years of a government-initiated project to train Indigenous health professionals in digital mental health (d-MH). It illustrates how community-based participatory research (CBPR) methods were used to enable this “top-down” project to be transformed into a ‘ground-up’ community-guided process; and how, in turn, the guidance from the local Indigenous community partners went on to influence the national government’s d-MH agenda. The CBPR partnership between five community partners and a university rural health department is described, with illustrations of how CBPR harnessed the community’s voice in making the project relevant to their wellbeing needs. The local Indigenous community’s involvement led to a number of unexpected outcomes, which impacted locally and nationally. At an early stage, the conceptual framework of the project was changed from d-MH to the culturally-relevant Indigenous framework of digital social and emotional wellbeing (d-SEWB). This led to a significant expansion of the range and type of digital resources; and to other notable outcomes such as successful advocacy for an Aboriginal-specific online therapy program and for a dedicated “one-stop-shop” d-SEWB website, Wellmob , which was funded by the Australian government in 2019–2021. Some of the implications of this project for future Indigenous CBPR projects are discussed.

Suggested Citation

  • James Bennett-Levy & Judy Singer & Darlene Rotumah & Sarah Bernays & David Edwards, 2021. "From Digital Mental Health to Digital Social and Emotional Wellbeing: How Indigenous Community-Based Participatory Research Influenced the Australian Government’s Digital Mental Health Agenda," IJERPH, MDPI, vol. 18(18), pages 1-18, September.
  • Handle: RePEc:gam:jijerp:v:18:y:2021:i:18:p:9757-:d:636825
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/1660-4601/18/18/9757/pdf
    Download Restriction: no

    File URL: https://www.mdpi.com/1660-4601/18/18/9757/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Morton Ninomiya, Melody E. & Pollock, Nathaniel J., 2017. "Reconciling community-based Indigenous research and academic practices: Knowing principles is not always enough," Social Science & Medicine, Elsevier, vol. 172(C), pages 28-36.
    2. Nancy L. Winterbauer & Betty Bekemeier & Lisa VanRaemdonck & Anna G. Hoover, 2016. "Applying Community-Based Participatory Research Partnership Principles to Public Health Practice-Based Research Networks," SAGE Open, , vol. 6(4), pages 21582440166, November.
    3. Roz Walker & Kim Usher & Debra Jackson & Corinne Reid & Katrina Hopkins & Carrington Shepherd & Reakeeta Smallwood & Rhonda Marriott, 2021. "Connection to... Addressing Digital Inequities in Supporting the Well-Being of Young Indigenous Australians in the Wake of COVID-19," IJERPH, MDPI, vol. 18(4), pages 1-14, February.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Kalinda Griffiths & Abbey Diaz & Lisa J. Whop & Joan Cunningham, 2021. "The Health and Wellbeing of Indigenous and Tribal Peoples around the Globe: Ensuring and Promoting Best Practice in Research," IJERPH, MDPI, vol. 19(1), pages 1-9, December.
    2. Tamara Butler & Alana Gall & Gail Garvey & Khwanruethai Ngampromwongse & Debra Hector & Scott Turnbull & Kerri Lucas & Caroline Nehill & Anna Boltong & Dorothy Keefe & Kate Anderson, 2022. "A Comprehensive Review of Optimal Approaches to Co-Design in Health with First Nations Australians," IJERPH, MDPI, vol. 19(23), pages 1-38, December.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Patterson, Kaitlin & Sargeant, Jan & Yang, Seungmi & McGuire-Adams, Tricia & Berrang-Ford, Lea & Lwasa, Shuaib & Communities, Batwa & Steele, Vivienne & Harper, Sherilee L., 2022. "Are Indigenous research principles incorporated into maternal health research? A scoping review of the global literature," Social Science & Medicine, Elsevier, vol. 292(C).
    2. Le Grande, M. & Ski, C.F. & Thompson, D.R. & Scuffham, P. & Kularatna, S. & Jackson, A.C. & Brown, A., 2017. "Social and emotional wellbeing assessment instruments for use with Indigenous Australians: A critical review," Social Science & Medicine, Elsevier, vol. 187(C), pages 164-173.
    3. Alba Antequera & Daeria O. Lawson & Stephen G. Noorduyn & Omar Dewidar & Marc Avey & Zulfiqar A. Bhutta & Catherine Chamberlain & Holly Ellingwood & Damian Francis & Sarah Funnell & Elizabeth Ghogomu , 2021. "Improving Social Justice in COVID-19 Health Research: Interim Guidelines for Reporting Health Equity in Observational Studies," IJERPH, MDPI, vol. 18(17), pages 1-12, September.
    4. Donna L. Schminkey & Xiaoyue Liu & Sandra Annan & Erika Metzler Sawin, 2019. "Contributors to Health Inequities in Rural Latinas of Childbearing Age: An Integrative Review Using an Ecological Framework," SAGE Open, , vol. 9(1), pages 21582440188, January.
    5. Hunter Culbong & Ashton Ramirez-Watkins & Shae Anderson & Tiana Culbong & Nikayla Crisp & Glenn Pearson & Ashleigh Lin & Michael Wright, 2023. "“Ngany Kamam, I Speak Truly”: First-Person Accounts of Aboriginal Youth Voices in Mental Health Service Reform," IJERPH, MDPI, vol. 20(11), pages 1-14, May.
    6. Ward, Leonor M. & Hill, Mary Janet & Chreim, Samia & Poker, Christine & Olsen Harper, Anita & Wells, Samantha, 2020. "Developing an Innu framework for health research: The canoe trip as a metaphor for a collaborative approach centered on valuing Indigenous knowledges," Social Science & Medicine, Elsevier, vol. 266(C).
    7. Brisbois, Ben & Hoogeveen, Dawn & Allison, Sandra & Cole, Donald & Fyfe, Trina M. & Harder, Henry G. & Parkes, Margot W., 2021. "Storylines of research on resource extraction and health in Canada: A modified metanarrative synthesis," Social Science & Medicine, Elsevier, vol. 277(C).
    8. Dai Pu & Victoria Palmer & Louise Greenstock & Cathie Pigott & Anna Peeters & Lena Sanci & Michele Callisaya & Colette Browning & Wendy Chapman & Terry Haines, 2023. "Identifying Public Healthcare Priorities in Virtual Care for Older Adults: A Participatory Research Study," IJERPH, MDPI, vol. 20(5), pages 1-18, February.
    9. Haynes, Emma & Marawili, Minitja & Marika, Brendan Makungun & Mitchell, Alice G. & Phillips, Jodi & Bessarab, Dawn & Walker, Roz & Cook, Jeff & Ralph, Anna P., 2019. "Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project," Evaluation and Program Planning, Elsevier, vol. 74(C), pages 38-53.
    10. Deborah Juarbe-Rey & Adriana Obén Pérez & Roberto Papo Christian P. Santoni & Melissa Ramírez Ramírez & Mildred Vera, 2018. "Using Risk Communication Strategies for Zika Virus Prevention and Control Driven by Community-Based Participatory Research," IJERPH, MDPI, vol. 15(11), pages 1-11, November.
    11. Maeri, Irene & Eyul, Patrick & Getahun, Monica & Hatchett, Khalela & Owino, Lawrence & Akatukwasa, Cecilia & Itiakorit, Harriet & Gutin, Sarah A. & Johnson-Peretz, Jason & Ssali, Sarah & Cohen, Craig , 2023. "Nothing about us without us: Community-based participatory research to improve HIV care for mobile patients in Kenya and Uganda," Social Science & Medicine, Elsevier, vol. 318(C).
    12. Patricia Dudgeon & Jemma R. Collova & Kate Derry & Stewart Sutherland, 2023. "Lessons Learned during a Rapidly Evolving COVID-19 Pandemic: Aboriginal and Torres Strait Islander-Led Mental Health and Wellbeing Responses Are Key," IJERPH, MDPI, vol. 20(3), pages 1-15, January.
    13. Mikraszewicz, Kathleen & Richmond, Chantelle, 2019. "Paddling the Biigtig: Mino biimadisiwin practiced through canoeing," Social Science & Medicine, Elsevier, vol. 240(C).
    14. Tara Erb & Krista Stelkia, 2023. "Best Practices to Support the Self-Determination of Indigenous Communities, Collectives, and Organizations in Health Research through a Provincial Health Research Network Environment in British Columb," IJERPH, MDPI, vol. 20(15), pages 1-11, August.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jijerp:v:18:y:2021:i:18:p:9757-:d:636825. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.