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Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review

Author

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  • Jan Domaradzki

    (Laboratory of Health Sociology and Social Pathology, Karol Marcinkowski University of Medical Sciences, 60-806 Poznań, Poland)

  • Jakub Pawlikowski

    (Independent Laboratory of Sociology of Medicine, Medical University of Lublin, 20-059 Lublin, Poland
    Biobanking and Biomolecular Resources Research Infrastructure Poland, BBMRI.pl Consortium, 54-066 Wrocław, Poland)

Abstract

Background : During the past few decades there has been a growing interest on the part of many governments in the creation of biobanks. Nevertheless, this would be impossible without participation of many donors who offer samples of their biological material for scientific research. Therefore, the aim of this paper is to provide an overview of the existing research on social attitudes towards biobanking. Material and Methods : A literature search was conducted in the database of MEDLINE (PubMed). 61 papers were included in the analysis. The retrieved articles were assessed using a thematic analysis. Results : Eight main themes were identified: (1) public knowledge about biobanks, (2) public views on biobanking, (3) willingness to donate, (4) donors’ motivations, (5) perceived benefits and risks of biobanking, (6) preferred type of consent, (7) trust toward biobanks, and (8) demographic characteristics of potential donors. Conclusions : Although the public lacks knowledge about biobanking, many individuals declare willingness to donate. Their will is influenced by: their knowledge about biobanking, the type of donated tissue, research purpose, concerns over the safety of the data, preferred type of consent, and trust towards biobanks.

Suggested Citation

  • Jan Domaradzki & Jakub Pawlikowski, 2019. "Public Attitudes toward Biobanking of Human Biological Material for Research Purposes: A Literature Review," IJERPH, MDPI, vol. 16(12), pages 1-11, June.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:12:p:2209-:d:242078
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    References listed on IDEAS

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    1. George Gaskell & Herbert Gottweis, 2011. "Biobanks need publicity," Nature, Nature, vol. 471(7337), pages 159-160, March.
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    Cited by:

    1. Jakub Pawlikowski & Michał Wiechetek & Anita Majchrowska, 2022. "Associations between the Willingness to Donate Samples to Biobanks and Selected Psychological Variables," IJERPH, MDPI, vol. 19(5), pages 1-11, February.
    2. Abdelbaset Buhmeida & Mourad Assidi & Omar Alyazidi & Duaa Ibrahim Olwi & Ahmed Althuwaylimi & Fatimah M. Yahya & Leila Arfaoui & Leena Merdad & Adel Mohammad Abuzenadah, 2022. "Assessment of Biobanking Knowledge and Attitudes towards Biospecimen Donation among Healthcare Providers in Saudi Arabia," IJERPH, MDPI, vol. 19(19), pages 1-14, September.
    3. Chiara Aleni & Carmela Rinaldi & Valentina Bettio & Eleonora Mazzucco & Annamaria Antona & Cristina Meini & Emiliano Loria & Paolo Bonvicini & Silvia Vittoria Cracas & Silvia Caristia & Antonio Rimedi, 2022. "Public Attitude towards Biobanking: An Italian University Survey," IJERPH, MDPI, vol. 19(20), pages 1-10, October.

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