“Not all my fault”: Genetics, stigma, and personal responsibility for women with eating disorders
Medical researchers and clinicians increasingly understand and present eating disorders (anorexia and bulimia nervosa) as biologically-based psychiatric disorders, with genetic risk factors established by high heritability estimates in twin studies. But there has been no research on interpretation of genetic involvement by people with eating disorders, who may hold other views. Their interpretations are particularly important given the frequent presumption that biogenetic framing will reduce stigma, and recent findings that it exacerbates stigma for other mental illnesses. To identify implications of genetic framing in eating disorders, I conducted semi-structured interviews with 50 US women with a history of eating disorders (half recovered, half in treatment; interviewed 2008–9 in the USA). Interviews introduced the topic of genetics, but not stigma per se. Analysis followed the general principles of grounded theory to identify perceived implications of genetic involvement; those relevant to stigma are reported here. Most anticipated that genetic reframing would help reduce stigma from personal responsibility (i.e., blame and guilt for eating disorder as ongoing choice). A third articulated ways it could add stigma, including novel forms of stigma related to genetic-essentialist effacing of social factors. Despite welcoming reductions in blame and guilt, half also worried genetic framing could hamper recovery, by encouraging fatalistic self-fulfilling prophecies and genetic excuses. This study is the first to elicit perceptions of genetic involvement by those with eating disorders, and contributes to an emerging literature on perceptions of psychiatric genetics by people with mental illness.
Volume (Year): 75 (2012)
Issue (Month): 8 ()
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- Schulze, Beate & Angermeyer, Matthias C., 2003. "Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals," Social Science & Medicine, Elsevier, vol. 56(2), pages 299-312, January.
- Schnittker, Jason, 2008. "An uncertain revolution: Why the rise of a genetic model of mental illness has not increased tolerance," Social Science & Medicine, Elsevier, vol. 67(9), pages 1370-1381, November.
- Meiser, Bettina & Mitchell, Philip B. & McGirr, H. & Van Herten, M. & Schofield, Peter R., 2005. "Implications of genetic risk information in families with a high density of bipolar disorder: an exploratory study," Social Science & Medicine, Elsevier, vol. 60(1), pages 109-118, January.
- Yang, Lawrence Hsin & Kleinman, Arthur & Link, Bruce G. & Phelan, Jo C. & Lee, Sing & Good, Byron, 2007. "Culture and stigma: Adding moral experience to stigma theory," Social Science & Medicine, Elsevier, vol. 64(7), pages 1524-1535, April.
- Bayer, Ronald, 2008. "Stigma and the ethics of public health: Not can we but should we," Social Science & Medicine, Elsevier, vol. 67(3), pages 463-472, August.
- Zavestoski, Stephen & Brown, Phil & McCormick, Sabrina & Mayer, Brian & D'Ottavi, Maryhelen & Lucove, Jaime C., 2004. "Patient activism and the struggle for diagnosis: Gulf War illnesses and other medically unexplained physical symptoms in the US," Social Science & Medicine, Elsevier, vol. 58(1), pages 161-175, January.
- Jacoby, Ann, 1994. "Felt versus enacted stigma: A concept revisited: Evidence from a study of people with epilepsy in remission," Social Science & Medicine, Elsevier, vol. 38(2), pages 269-274, January.
- Sadler, Melody S. & Meagor, Elizabeth L. & Kaye, Kimberly E., 2012. "Stereotypes of mental disorders differ in competence and warmth," Social Science & Medicine, Elsevier, vol. 74(6), pages 915-922.
- Livingston, James D. & Boyd, Jennifer E., 2010. "Correlates and consequences of internalized stigma for people living with mental illness: A systematic review and meta-analysis," Social Science & Medicine, Elsevier, vol. 71(12), pages 2150-2161, December.
- Barker, Kristin K., 2011. "Listening to Lyrica: contested illnesses and pharmaceutical determinism," Social Science & Medicine, Elsevier, vol. 73(6), pages 833-842, September.
- Lippman, A., 1992. "Led (astray) by genetic maps: The cartography of the human genome and health care," Social Science & Medicine, Elsevier, vol. 35(12), pages 1469-1476, December.
- Shostak, Sara & Zarhin, Dana & Ottman, Ruth, 2011. "What's at stake? Genetic information from the perspective of people with epilepsy and their family members," Social Science & Medicine, Elsevier, vol. 73(5), pages 645-654, September.
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