From consent to institutions: Designing adaptive governance for genomic biobanks
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References listed on IDEAS
- Haddow, Gillian & Laurie, Graeme & Cunningham-Burley, Sarah & Hunter, Kathryn G., 2007. "Tackling community concerns about commercialisation and genetic research: A modest interdisciplinary proposal," Social Science & Medicine, Elsevier, vol. 64(2), pages 272-282, January.
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- Nicol, Dianne & Critchley, Christine & McWhirter, Rebekah & Whitton, Tess, 2016. "Understanding public reactions to commercialization of biobanks and use of biobank resources," Social Science & Medicine, Elsevier, vol. 162(C), pages 79-87.
- Douglas, Conor M.W. & Wilcox, Elizabeth & Burgess, Michael & Lynd, Larry D., 2015. "Why orphan drug coverage reimbursement decision-making needs patient and public involvement," Health Policy, Elsevier, vol. 119(5), pages 588-596.
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KeywordsBiobanks Governance Trust Health research Publics Research participants Public engagement British Columbia Canada;
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