IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v60y2005i7p1423-1435.html
   My bibliography  Save this article

Lay perceptions of type 2 diabetes in Scotland: bringing health services back in

Author

Listed:
  • Lawton, Julia
  • Peel, Elizabeth
  • Parry, Odette
  • Araoz, Gonzalo
  • Douglas, Margaret

Abstract

The growing prevalence of type 2 diabetes is placing Scottish health services under considerable strain. Consequently, diabetes services are undergoing a major process of reorganisation, including the devolvement of routine diabetes care/diabetic review from secondary to primary healthcare settings. This qualitative study was devised to explore newly diagnosed type 2 diabetes patients' perceptions of their disease and the health services they receive at a time when this restructuring of services is taking place. The sample comprised 40 patients resident in Lothian, Scotland, who had diverse experiences of services, some receiving GP-based care only, others having varying contact with hospital diabetes clinics. In-depth interviews were undertaken with patients, three times at six monthly intervals over 1 year, enabling their experiences to be tracked at critical junctures during the post-diagnostic period. Disease perceptions and health service delivery were found to be mutually informing and effecting. Not only did (different types of) health service delivery influence the ways in which patients thought about and self-managed their disease, over time patients' disease perceptions also informed their expectations of, and preferences for, diabetes services. We thus argue that there is a need for a reconceptualisation within the medical social sciences to take into account the context of healthcare and the economic/policy factors that inform health service delivery when looking at patients' disease perceptions. We also discuss the logistical and ethical challenges of drawing upon patients' perspectives, preferences and views in the design and delivery of future health services.

Suggested Citation

  • Lawton, Julia & Peel, Elizabeth & Parry, Odette & Araoz, Gonzalo & Douglas, Margaret, 2005. "Lay perceptions of type 2 diabetes in Scotland: bringing health services back in," Social Science & Medicine, Elsevier, vol. 60(7), pages 1423-1435, April.
  • Handle: RePEc:eee:socmed:v:60:y:2005:i:7:p:1423-1435
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277-9536(04)00398-3
    Download Restriction: Full text for ScienceDirect subscribers only
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Linn, Margaret W. & Linn, Bernard S. & Stein, Shayna R., 1982. "Beliefs about causes of cancer in cancer patients," Social Science & Medicine, Elsevier, vol. 16(7), pages 835-839, January.
    2. Cohen, Marlene Zichi & Tripp-Reimer, Toni & Smith, Christopher & Sorofman, Bernard & Lively, Sonja, 1994. "Explanatory models of diabetes: Patient practitioner variation," Social Science & Medicine, Elsevier, vol. 38(1), pages 59-66, January.
    3. Blaxter, Mildred, 1983. "The causes of disease : Women talking," Social Science & Medicine, Elsevier, vol. 17(2), pages 59-69, January.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Ross Barnett, J. & Pearce, Jamie & Howes, Pamela, 2006. "'Help, educate, encourage?': Geographical variations in the provision and utilisation of diabetes education in New Zealand," Social Science & Medicine, Elsevier, vol. 63(5), pages 1328-1343, September.
    2. Gately, Claire & Rogers, Anne & Sanders, Caroline, 2007. "Re-thinking the relationship between long-term condition self-management education and the utilisation of health services," Social Science & Medicine, Elsevier, vol. 65(5), pages 934-945, September.
    3. Lawton, Julia & Peel, Elizabeth & Parry, Odette & Douglas, Margaret, 2008. "Shifting accountability: A longitudinal qualitative study of diabetes causation accounts," Social Science & Medicine, Elsevier, vol. 67(1), pages 47-56, July.
    4. Lehoux, Pascale & Poland, Blake & Daudelin, Genevieve, 2006. "Focus group research and "the patient's view"," Social Science & Medicine, Elsevier, vol. 63(8), pages 2091-2104, October.
    5. Wyke, Sally & Adamson, Joy & Dixon, Diane & Hunt, Kate, 2013. "Consultation and illness behaviour in response to symptoms: A comparison of models from different disciplinary frameworks and suggestions for future research directions," Social Science & Medicine, Elsevier, vol. 86(C), pages 79-87.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Lawton, Julia & Peel, Elizabeth & Parry, Odette & Douglas, Margaret, 2008. "Shifting accountability: A longitudinal qualitative study of diabetes causation accounts," Social Science & Medicine, Elsevier, vol. 67(1), pages 47-56, July.
    2. Garthwaite, Kayleigh & Bambra, Clare, 2017. "“How the other half live”: Lay perspectives on health inequalities in an age of austerity," Social Science & Medicine, Elsevier, vol. 187(C), pages 268-275.
    3. Ben Butlin & Keith Laws & Rebecca Read & Matthew D Broome & Shivani Sharma, 2019. "Concepts of mental disorders in the United Kingdom: Similarities and differences between the lay public and psychiatrists," International Journal of Social Psychiatry, , vol. 65(6), pages 507-514, September.
    4. Naemiratch, Bhensri & Manderson, Lenore, 2006. "Control and adherence: Living with diabetes in Bangkok, Thailand," Social Science & Medicine, Elsevier, vol. 63(5), pages 1147-1157, September.
    5. Ajit K. Dalal, 2000. "Living with a Chronic Disease: Healing and Psychological Adjustment in Indian Society," Psychology and Developing Societies, , vol. 12(1), pages 67-81, March.
    6. Kinderman, Peter & Setzu, Erika & Lobban, Fiona & Salmon, Peter, 2006. "Illness beliefs in schizophrenia," Social Science & Medicine, Elsevier, vol. 63(7), pages 1900-1911, October.
    7. Weller, Susan C. & Baer, Roberta D. & Garcia de Alba Garcia, Javier & Salcedo Rocha, Ana L., 2012. "Explanatory models of diabetes in the U.S. and Mexico: The patient–provider gap and cultural competence," Social Science & Medicine, Elsevier, vol. 75(6), pages 1088-1096.
    8. Skea, Zoë C. & Entwistle, Vikki A. & Watt, Ian & Russell, Elizabeth, 2008. "'Avoiding harm to others' considerations in relation to parental measles, mumps and rubella (MMR) vaccination discussions - An analysis of an online chat forum," Social Science & Medicine, Elsevier, vol. 67(9), pages 1382-1390, November.
    9. Dixon-Woods, Mary & Ashcroft, Richard E. & Jackson, Clare J. & Tobin, Martin D. & Kivits, Joelle & Burton, Paul R. & Samani, Nilesh J., 2007. "Beyond "misunderstanding": Written information and decisions about taking part in a genetic epidemiology study," Social Science & Medicine, Elsevier, vol. 65(11), pages 2212-2222, December.
    10. Madden, Sue & Sim, Julius, 2006. "Creating meaning in fibromyalgia syndrome," Social Science & Medicine, Elsevier, vol. 63(11), pages 2962-2973, December.
    11. Olafsdottir, Sigrun & Pescosolido, Bernice A., 2011. "Constructing illness: How the public in eight Western nations respond to a clinical description of "schizophrenia"," Social Science & Medicine, Elsevier, vol. 73(6), pages 929-938, September.
    12. Hodgins, Margaret & Millar, Michelle & M Barry, Margaret, 2006. ""...it's all the same no matter how much fruit or vegetables or fresh air we get": Traveller women's perceptions of illness causation and health inequalities," Social Science & Medicine, Elsevier, vol. 62(8), pages 1978-1990, April.
    13. Neena Kohli & Ajit K. Dalal, 1998. "Culture as a Factor in Causal Understanding of Illness : A Study of Cancer Patients," Psychology and Developing Societies, , vol. 10(2), pages 115-129, September.
    14. Everett, Margaret, 2011. "They say it runs in the family: Diabetes and inheritance in Oaxaca, Mexico," Social Science & Medicine, Elsevier, vol. 72(11), pages 1776-1783, June.
    15. KS Jacob, 2017. "Insight in psychosis: Standards, science, ethics and value judgment," International Journal of Social Psychiatry, , vol. 63(4), pages 345-351, June.
    16. Alberts, Jantina F. & Sanderman, Robbert & Gerstenbluth, Izzy & van den Heuvel, Wim J. A., 1998. "Sociocultural variations in help-seeking behavior for everyday symptoms and chronic disorders," Health Policy, Elsevier, vol. 44(1), pages 57-72, April.
    17. Robinson, Jude & Kirkcaldy, Andrew J., 2007. "'You think that I'm smoking and they're not': Why mothers still smoke in the home," Social Science & Medicine, Elsevier, vol. 65(4), pages 641-652, August.
    18. Cynthia K. Russell & Therese Geraci & Anne Hooper & Linda Shull & David M. Gregory, 1998. "Patients' Explanatory Models for Heart Failure and COPD Exacerbations," Clinical Nursing Research, , vol. 7(2), pages 164-188, May.
    19. Mackenzie, Catherine Ruth, 2014. "‘It is hard for mums to put themselves first’: How mothers diagnosed with breast cancer manage the sociological boundaries between paid work, family and caring for the self," Social Science & Medicine, Elsevier, vol. 117(C), pages 96-106.
    20. Emslie, Carol & Hunt, Kate, 2008. "The weaker sex? Exploring lay understandings of gender differences in life expectancy: A qualitative study," Social Science & Medicine, Elsevier, vol. 67(5), pages 808-816, September.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:60:y:2005:i:7:p:1423-1435. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.