IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v387y2025ics0277953625009955.html

Defining infertility: The varied criteria people in two regions of Uganda use to identify infertility in themselves and others

Author

Listed:
  • Bell, Suzanne O.
  • Kibira, Simon P.S.
  • Thomas, Haley L.
  • Nabukeera, Sarah
  • Slivesteri, Sande
  • Tenda, Irene
  • Kennedy, Caitlin
  • Moreau, Caroline

Abstract

Understanding how individuals define infertility is significant given associated stigma and psychosocial consequences, particularly in sub-Saharan Africa where infertility functions as both a medical condition and social phenomenon. Merely being perceived as infertile can trigger repercussions. A better understanding of socially defined infertility in this context will provide insight into related stigma and negative repercussions, as well as opportunities to intervene. In this study, we explore how men and women in two districts of Uganda define infertility and the criteria they use to identify it, examining how these differ by infertility type (primary, secondary) and gender. We conducted 48 in-depth interviews and 8 focus group discussions with reproductive-aged women and men across two Ugandan districts. Participants were purposively selected to balance sex, residence, parity, and infertility experiences. Data were analyzed using thematic analysis with constant comparison to identify patterns, supported by coding, memoing, and regular team discussions. Three key themes emerged: First, infertility was commonly viewed as permanent—conceptually equivalent to sterility—making secondary infertility seem paradoxical to many. Second, temporality in identifying infertility varied widely from months to decades, with notable gender differences. Third, participants employed numerous relational criteria to identify infertility, including partner characteristics, person-dependent factors (age, gender), and peer comparisons. Results suggest Ugandans use diverse and often multiple criteria to identify infertility, reflecting a complex interplay between temporal, contextual, and relational factors. This work describes the nuances of infertility as a socially constructed phenomenon in the Ugandan context, with important implications for future research and programs.

Suggested Citation

  • Bell, Suzanne O. & Kibira, Simon P.S. & Thomas, Haley L. & Nabukeera, Sarah & Slivesteri, Sande & Tenda, Irene & Kennedy, Caitlin & Moreau, Caroline, 2025. "Defining infertility: The varied criteria people in two regions of Uganda use to identify infertility in themselves and others," Social Science & Medicine, Elsevier, vol. 387(C).
  • Handle: RePEc:eee:socmed:v:387:y:2025:i:c:s0277953625009955
    DOI: 10.1016/j.socscimed.2025.118664
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953625009955
    Download Restriction: Full text for ScienceDirect subscribers only

    File URL: https://libkey.io/10.1016/j.socscimed.2025.118664?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to

    for a different version of it.

    References listed on IDEAS

    as
    1. Karp, Celia & Wood, Shannon N. & Galadanci, Hadiza & Sebina Kibira, Simon Peter & Makumbi, Fredrick & Omoluabi, Elizabeth & Shiferaw, Solomon & Seme, Assefa & Tsui, Amy & Moreau, Caroline, 2020. "‘I am the master key that opens and locks’: Presentation and application of a conceptual framework for women's and girls' empowerment in reproductive health," Social Science & Medicine, Elsevier, vol. 258(C).
    2. Bornstein, Marta & Gipson, Jessica D. & Failing, Gates & Banda, Venson & Norris, Alison, 2020. "Individual and community-level impact of infertility-related stigma in Malawi," Social Science & Medicine, Elsevier, vol. 251(C).
    3. Hampshire, Katherine R. & Blell, Mwenza T. & Simpson, Bob, 2012. "‘Everybody is moving on’: Infertility, relationality and the aesthetics of family among British-Pakistani Muslims," Social Science & Medicine, Elsevier, vol. 74(7), pages 1045-1052.
    4. White, Lynn & McQuillan, Julia & Greil, Arthur L. & Johnson, David R., 2006. "Infertility: Testing a helpseeking model," Social Science & Medicine, Elsevier, vol. 62(4), pages 1031-1041, February.
    5. Shireen Assaf & Lwendo Moonzwe Davis, 2022. "Unrealized fertility among women in low and middle-income countries," PLOS ONE, Public Library of Science, vol. 17(11), pages 1-19, November.
    6. Hollos, Marida & Larsen, Ulla & Obono, Oka & Whitehouse, Bruce, 2009. "The problem of infertility in high fertility populations: Meanings, consequences and coping mechanisms in two Nigerian communities," Social Science & Medicine, Elsevier, vol. 68(11), pages 2061-2068, June.
    7. Ulla Larsen & Jane Menken, 1989. "Measuring sterility from incomplete birth histories," Demography, Springer;Population Association of America (PAA), vol. 26(2), pages 185-201, May.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Sara Yeatman & Emily Smith-Greenaway, 2025. "Unrealized fertility in demography," Demographic Research, Max Planck Institute for Demographic Research, Rostock, Germany, vol. 53(36), pages 1145-1172.
    2. Hampshire, Katherine R. & Blell, Mwenza T. & Simpson, Bob, 2012. "‘Everybody is moving on’: Infertility, relationality and the aesthetics of family among British-Pakistani Muslims," Social Science & Medicine, Elsevier, vol. 74(7), pages 1045-1052.
    3. Athena Pantazis & Samuel J. Clark, 2014. "Male and female sterility in Zambia," Demographic Research, Max Planck Institute for Demographic Research, Rostock, Germany, vol. 30(14), pages 413-428.
    4. Daniele Vignoli & Valentina Tocchioni & Ester Lazzari & Marco Cozzani, 2026. "Polarization and Flexibility in Attitudes Toward Assisted Reproduction: A Vignette Study," Econometrics Working Papers Archive 2026_02, Universita' degli Studi di Firenze, Dipartimento di Statistica, Informatica, Applicazioni "G. Parenti".
    5. Jan van Bavel, 2004. "Diffusion Effects in the European Fertility Transition: Historical Evidence from Within a Belgian Town (1846–1910)," European Journal of Population, Springer;European Association for Population Studies, vol. 20(1), pages 63-85, March.
    6. Nahar, Papreen, 2010. "Health seeking behaviour of childless women in Bangladesh: An ethnographic exploration for the special issue on: Loss in child bearing," Social Science & Medicine, Elsevier, vol. 71(10), pages 1780-1787, November.
    7. Jan Van Bavel & Jan Kok, 2004. "Birth Spacing in the Netherlands. The Effects of Family Composition, Occupation and Religion on Birth Intervals, 1820–1885," European Journal of Population, Springer;European Association for Population Studies, vol. 20(2), pages 119-140, June.
    8. Jasmine Fledderjohann, 2017. "Difficulties Conceiving and Relationship Stability in Sub-Saharan Africa: The Case of Ghana," European Journal of Population, Springer;European Association for Population Studies, vol. 33(1), pages 129-152, February.
    9. Ben Malinga John & Sara Yeatman, 2025. "Marital dissolution, repartnering, and the realization of fertility desires in Sub-Saharan Africa," MPIDR Working Papers WP-2025-031, Max Planck Institute for Demographic Research, Rostock, Germany.
    10. Slauson-Blevins, Kathleen S. & McQuillan, Julia & Greil, Arthur L., 2013. "Online and in-person health-seeking for infertility," Social Science & Medicine, Elsevier, vol. 99(C), pages 110-115.
    11. Karina Shreffler & Tiffany Spierling & Stacy Tiemeyer & Arthur Greil & Julia McQuillan & Cassandra Dorius, 2016. "Infertility and fertility intentions, desires, and outcomes among US women," Demographic Research, Max Planck Institute for Demographic Research, Rostock, Germany, vol. 35(39), pages 1149-1168.
    12. Arthur L. Greil & Desmond D. Wallace & Jasmin Passet-Wittig & Julia McQuillan & Martin Bujard & Michele H. Lowry, 2024. "Self-Perceived Infertility is Not Always Associated with Having Fewer Children: Evidence from German Panel Data," European Journal of Population, Springer;European Association for Population Studies, vol. 40(1), pages 1-26, December.
    13. Hough, Carolyn A., 2010. "Loss in childbearing among Gambia's kanyalengs: Using a stratified reproduction framework to expand the scope of sexual and reproductive health," Social Science & Medicine, Elsevier, vol. 71(10), pages 1757-1763, November.
    14. Greil, Arthur L. & McQuillan, Julia & Lowry, Michele & Shreffler, Karina M., 2011. "Infertility treatment and fertility-specific distress: A longitudinal analysis of a population-based sample of U.S. women," Social Science & Medicine, Elsevier, vol. 73(1), pages 87-94, July.
    15. Osmani, Ahmad Reshad & Okunade, Albert, 2025. "Impact of supply-side conditional cash transfers on household family planning decisions: Evidence from a field experiment in Afghanistan," Social Science & Medicine, Elsevier, vol. 383(C).
    16. Johnson, Katherine M. & Fledderjohann, Jasmine, 2012. "Revisiting “her” infertility: Medicalized embodiment, self-identification and distress," Social Science & Medicine, Elsevier, vol. 75(5), pages 883-891.
    17. Katherine M. Johnson & Arthur L. Greil & Karina M. Shreffler & Julia McQuillan, 2018. "Fertility and Infertility: Toward an Integrative Research Agenda," Population Research and Policy Review, Springer;Southern Demographic Association (SDA), vol. 37(5), pages 641-666, October.
    18. Anatoli Yashin & Ivan Iachine & Kirill Andreev & Ulla Larsen, 1998. "Multistate models of postpartum infecundity, fecundability and sterility by age and parity: Methodological issues," Mathematical Population Studies, Taylor & Francis Journals, vol. 7(1), pages 51-78.
    19. Greil, Arthur & McQuillan, Julia & Benjamins, Maureen & Johnson, David R. & Johnson, Katherine M. & Heinz, Chelsea R., 2010. "Specifying the effects of religion on medical helpseeking: The case of infertility," Social Science & Medicine, Elsevier, vol. 71(4), pages 734-742, August.
    20. Passet-Wittig, Jasmin & Greil, Arthur L., 2021. "Factors associated with medical help-seeking for infertility in developed countries: A narrative review of recent literature," Social Science & Medicine, Elsevier, vol. 277(C).

    More about this item

    Keywords

    ;
    ;
    ;
    ;

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:387:y:2025:i:c:s0277953625009955. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.