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Conceptualisation and Measurement of Quality of Life Based on Schalock and Verdugo’s Model: A Cross-Disciplinary Review of the Literature

Author

Listed:
  • Nele Van Hecke

    (Ghent University)

  • Claudia Claes

    (Ghent University College)

  • Wouter Vanderplasschen

    (Ghent University)

  • Jessica De Maeyer

    (Ghent University College)

  • Nico De Witte

    (Ghent University College)

  • Stijn Vandevelde

    (Ghent University)

Abstract

Researchers in the medical and social sciences have shown a rapidly growing interest in the concept of Quality of Life (QoL) in the past few decades. Reasons include its potential as an outcome measure of service delivery, and the opportunity of using a shared language both within and between different disciplines. Despite the widespread use of QoL in research, practice and policy development, there is little agreement on the defining aspects, as well as on the operationalization of the concept. In an attempt to broaden the knowledge on QoL and to give an overview of interdisciplinary consensus- and discussion aspects, a review of peer-reviewed QoL-reviews, indexed in Web of Science, and published from 2000 to 2013 (n = 75) was carried out. Theoretical and measurement principles, derived from the QoL-framework of Schalock and Verdugo (Handbook on quality of life for human service practitioners, American Association on Mental Retardation, Washington, 2002) were systematically explored. Results indicate a growing interdisciplinary consensus on QoL as (1) a multidimensional construct, (2) composed of both objective and subjective dimensions, (3) with an emphasis on the subjective evaluation of one’s life circumstances, (4) which is dynamic in nature and (5) which can be influenced and enhanced by a variety of factors, implying a positive view on social services. Contrary, debate is still going on (1) the ideal method to assess QoL, (2) the use of proxies in QoL-measurement and (3) the preference for a general or on the contrary disease- or target group specific QoL-instrument.

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  • Nele Van Hecke & Claudia Claes & Wouter Vanderplasschen & Jessica De Maeyer & Nico De Witte & Stijn Vandevelde, 2018. "Conceptualisation and Measurement of Quality of Life Based on Schalock and Verdugo’s Model: A Cross-Disciplinary Review of the Literature," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(1), pages 335-351, May.
    • Handle: RePEc:spr:soinre:v:137:y:2018:i:1:d:10.1007_s11205-017-1596-2
    DOI: 10.1007/s11205-017-1596-2
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    References listed on IDEAS

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    1. Schalock, Robert L. & Bonham, Gordon S. & Verdugo, Miguel A., 2008. "The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities," Evaluation and Program Planning, Elsevier, vol. 31(2), pages 181-190, May.
    2. Robert Cummins, 2010. "Subjective Wellbeing, Homeostatically Protected Mood and Depression: A Synthesis," Journal of Happiness Studies, Springer, vol. 11(1), pages 1-17, March.
    3. Melanie Davern & Robert Cummins & Mark Stokes, 2007. "Subjective Wellbeing as an Affective-Cognitive Construct," Journal of Happiness Studies, Springer, vol. 8(4), pages 429-449, December.
    4. Laura Gómez & Elsa Peña & Benito Arias & Miguel Verdugo, 2016. "Impact of Individual and Organizational Variables on Quality of Life," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 125(2), pages 649-664, January.
    5. Robert Cummins & Helen Nistico, 2002. "Maintaining Life Satisfaction: The Role of Positive Cognitive Bias," Journal of Happiness Studies, Springer, vol. 3(1), pages 37-69, March.
    6. Ann Bowling & Zahava Gabriel, 2004. "An Integrational Model of Quality of Life in Older Age. Results from the ESRC/MRC HSRC Quality of Life Survey in Britain," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 69(1), pages 1-36, October.
    7. Jessica De Maeyer & Wouter Vanderplasschen & Eric Broekaert, 2009. "Exploratory Study on Drug Users’ Perspectives on Quality of Life: More than Health-Related Quality of Life?," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 90(1), pages 107-126, January.
    8. Laura Gomez & Benito Arias & Miguel Verdugo & Patricia Navas, 2012. "An Outcomes-Based Assessment of Quality of Life in Social Services," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 106(1), pages 81-93, March.
    9. van Loon, Jos H.M. & Bonham, Gordon S. & Peterson, Dale D. & Schalock, Robert L. & Claes, Claudia & Decramer, Adelien E.M., 2013. "The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability," Evaluation and Program Planning, Elsevier, vol. 36(1), pages 80-87.
    10. Laura Gómez & Miguel Verdugo & Benito Arias & Víctor Arias, 2011. "A Comparison of Alternative Models of Individual Quality of Life for Social Service Recipients," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 101(1), pages 109-126, March.
    11. Sprangers, Mirjam A. G. & Schwartz, Carolyn E., 1999. "Integrating response shift into health-related quality of life research: a theoretical model," Social Science & Medicine, Elsevier, vol. 48(11), pages 1507-1515, June.
    12. Robert Cummins, 1998. "The Second Approximation to an International Standard for Life Satisfaction," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 43(3), pages 307-334, March.
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    Cited by:

    1. Juan Carlos García & Emiliano Díez & Dominika Z. Wojcik & Mónica Santamaría, 2020. "Communication Support Needs in Adults with Intellectual Disabilities and Its Relation to Quality of Life," IJERPH, MDPI, vol. 17(20), pages 1-16, October.
    2. Lore Van Damme & Wouter Vanderplasschen & Clare-Ann Fortune & Stijn Vandevelde & Olivier F. Colins, 2021. "Determinants of Female Adolescents’ Quality of Life Before, during and after Detention: a Four-Wave Follow-Up Study Examining a Theory of Individual Quality of Life," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 16(1), pages 401-434, February.
    3. Chris Swerts & Laura E. Gómez & Margo Dewitte & Jessica Maeyer & Wouter Vanderplasschen, 2023. "Quality of Life Outcomes for Adolescents in Youth Care," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 16(5), pages 1987-2011, October.
    4. Lieve J. Hoeyberghs & Jos M. G. A. Schols & Dominique Verté & Nico Witte, 2020. "Psychological Frailty and Quality of Life of Community Dwelling Older People: a Qualitative Study," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 15(5), pages 1395-1412, November.
    5. Víctor M. Giménez-Bertomeu & Yolanda Domenech-López & Miguel A. Mateo-Pérez & Nicolás de-Alfonseti-Hartmann, 2019. "Empirical Evidence for Professional Practice and Public Policies: An Exploratory Study on Social Exclusion in Users of Primary Care Social Services in Spain," IJERPH, MDPI, vol. 16(23), pages 1-15, November.
    6. Chris Swerts & Laura E. Gómez & Jessica Maeyer & Goedele Nil & Wouter Vanderplasschen, 2022. "Development of the Quality of Life in Youth Services Scale (QOLYSS): Content-Related Validity Evidence Based on Adolescents’ and Expert Reviewers’ Perspectives," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 17(2), pages 593-612, April.

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