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Development of the Quality of Life in Youth Services Scale (QOLYSS): Content-Related Validity Evidence Based on Adolescents’ and Expert Reviewers’ Perspectives

Author

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  • Chris Swerts

    (HOGENT University of Applied Sciences and Arts)

  • Laura E. Gómez

    (University of Oviedo)

  • Jessica Maeyer

    (HOGENT University of Applied Sciences and Arts)

  • Goedele Nil

    (HOGENT University of Applied Sciences and Arts)

  • Wouter Vanderplasschen

    (Ghent University)

Abstract

Despite increased interest in the quality of life of younger populations, the quality of life of youngsters in vulnerable situations such as those in youth services remains under-researched. To gain insight into critical ingredients for understanding and enhancing the lives of these youngsters, appropriate assessment tools are needed. This study focuses on providing content-related validity evidence for the new Quality of Life in Youth Services Scale (QOLYSS) for adolescents in youth services. A sequential approach to item generation, refinement, and evaluation is presented. The initial item bank is devised by means of a thorough literature search and evaluated against findings from qualitative research among adolescents in youth services. In addition, a three-round international expert panel (N = 5) is convened to align identified items to the adopted quality of life framework, and to provide evidence on domain representation and relevance. Last, input is collected from adolescents in youth services themselves. More specifically, 20 group discussions and 13 individual interview sessions are organized to support 21 adolescents in critically assessing the content of the item bank on level of relevance, clarity, and coverage. The expert panel resulted in a provisional scale of 262 unique items that, based on adolescents’ input, is further reduced to a set of 88 items. Adolescents omitted items because of divergent reasons (e.g., content-overlap, self-evident character of the items, level of irrelevance). Explanatory qualitative information on the item selection process is provided. This study provides a detailed understanding of the content-related validity evidence of a new multidimensional quality of life scale. Moreover, it highlights the importance of acknowledging youngsters as critical partner in quality of life research and assessment.

Suggested Citation

  • Chris Swerts & Laura E. Gómez & Jessica Maeyer & Goedele Nil & Wouter Vanderplasschen, 2022. "Development of the Quality of Life in Youth Services Scale (QOLYSS): Content-Related Validity Evidence Based on Adolescents’ and Expert Reviewers’ Perspectives," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 17(2), pages 593-612, April.
    • Handle: RePEc:spr:ariqol:v:17:y:2022:i:2:d:10.1007_s11482-021-09921-x
    DOI: 10.1007/s11482-021-09921-x
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    References listed on IDEAS

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    1. Chris Swerts & Jessica De Maeyer & Marco Lombardi & Inge Waterschoot & Wouter Vanderplasschen & Claudia Claes, 2019. "“You Shouldn’t Look at Us Strangely”: An Exploratory Study on Personal Perspectives on Quality of Life of Adolescents with Emotional and Behavioral Disorders in Residential Youth Care," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 14(4), pages 867-889, September.
    2. Claudia Claes & Geert Hove & Jos Loon & Stijn Vandevelde & Robert Schalock, 2010. "Quality of Life Measurement in the Field of Intellectual Disabilities: Eight Principles for Assessing Quality of Life-Related Personal Outcomes," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 98(1), pages 61-72, August.
    3. Robert L. Schalock & Ruth Luckasson & Karrie A. Shogren, 2020. "Going beyond Environment to Context: Leveraging the Power of Context to Produce Change," IJERPH, MDPI, vol. 17(6), pages 1-14, March.
    4. Schalock, Robert L. & Verdugo, Miguel Angel & Gomez, Laura E., 2011. "Evidence-based practices in the field of intellectual and developmental disabilities: An international consensus approach," Evaluation and Program Planning, Elsevier, vol. 34(3), pages 273-282, August.
    5. Stephen Sireci, 1998. "The Construct of Content Validity," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 45(1), pages 83-117, November.
    6. Laura Gómez & Elsa Peña & Benito Arias & Miguel Verdugo, 2016. "Impact of Individual and Organizational Variables on Quality of Life," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 125(2), pages 649-664, January.
    7. Toby Fattore & Jan Mason & Elizabeth Watson, 2007. "Children’s conceptualisation(s) of their well-being," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 80(1), pages 5-29, January.
    8. Asher Ben-Arieh, 2005. "Where are the Children? Children’s Role in Measuring and Monitoring Their Well-Being," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 74(3), pages 573-596, December.
    9. Nele Van Hecke & Claudia Claes & Wouter Vanderplasschen & Jessica De Maeyer & Nico De Witte & Stijn Vandevelde, 2018. "Conceptualisation and Measurement of Quality of Life Based on Schalock and Verdugo’s Model: A Cross-Disciplinary Review of the Literature," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(1), pages 335-351, May.
    10. María Fernández & Miguel Ángel Verdugo & Laura E. Gómez & Virginia Aguayo & Benito Arias, 2018. "Core Indicators to Assess Quality of Life in Population with Brain Injury," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 137(2), pages 813-828, June.
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    Cited by:

    1. Mª Lucía Morán & Laura E. Gómez & Giulia Balboni & Alice Bacherini & Asunción Monsalve, 2024. "Quality of Life in Children and Adolescents with Cerebral Palsy and Intellectual Disability: Predictors and Personal Outcomes," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 17(1), pages 123-143, February.
    2. Chris Swerts & Laura E. Gómez & Margo Dewitte & Jessica Maeyer & Wouter Vanderplasschen, 2023. "Quality of Life Outcomes for Adolescents in Youth Care," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 16(5), pages 1987-2011, October.

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