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“You Shouldn’t Look at Us Strangely”: An Exploratory Study on Personal Perspectives on Quality of Life of Adolescents with Emotional and Behavioral Disorders in Residential Youth Care

Author

Listed:
  • Chris Swerts

    (University College Ghent)

  • Jessica De Maeyer

    (University College Ghent)

  • Marco Lombardi

    (University College Ghent
    Università Cattolica del Sacro Cuore)

  • Inge Waterschoot

    (vzw Diensten- en Begeleidingscentrum Openluchtopvoeding)

  • Wouter Vanderplasschen

    (Ghent University)

  • Claudia Claes

    (University College Ghent
    Ghent University)

Abstract

Adolescents with Emotional and Behavioral Disorders (EBD) have complex needs and experience challenges in various developmental areas and life domains. The majority of current studies regarding Quality of Life (QOL) among adolescents often adopt a quantitative design to assess health-related aspects of QOL. While considerable progress has been made in acknowledging the rights of children and adolescents to express their views on life and well-being, there remains a lack of research regarding adolescents with EBD and their personal perspectives on QOL. This qualitative study aims to address this gap. Focus groups (N = 6) were conducted with 25 adolescents aged 13 to 17 years living in a large-scale residential care organization. An expert panel, comprising six experts, was convened to classify the results from the focus groups (i.e., indicators) according to the QOL framework by Schalock and Verdugo (2002). An in-depth overview of the wide variety of aspects adolescents value with regard to their QOL was presented. The findings highlighted the importance of adopting a broad and holistic approach, instead of a traditional health-related and deficit-oriented one, when aiming to enhance the QOL of adolescents with EBD. Furthermore, several benefits for research and clinical practice relating to adolescents’ personal perspectives on QOL were discussed.

Suggested Citation

  • Chris Swerts & Jessica De Maeyer & Marco Lombardi & Inge Waterschoot & Wouter Vanderplasschen & Claudia Claes, 2019. "“You Shouldn’t Look at Us Strangely”: An Exploratory Study on Personal Perspectives on Quality of Life of Adolescents with Emotional and Behavioral Disorders in Residential Youth Care," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 14(4), pages 867-889, September.
    • Handle: RePEc:spr:ariqol:v:14:y:2019:i:4:d:10.1007_s11482-017-9534-7
    DOI: 10.1007/s11482-017-9534-7
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    References listed on IDEAS

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    Cited by:

    1. Chris Swerts & Laura E. Gómez & Jessica Maeyer & Goedele Nil & Wouter Vanderplasschen, 2022. "Development of the Quality of Life in Youth Services Scale (QOLYSS): Content-Related Validity Evidence Based on Adolescents’ and Expert Reviewers’ Perspectives," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 17(2), pages 593-612, April.
    2. Chris Swerts & Laura E. Gómez & Margo Dewitte & Jessica Maeyer & Wouter Vanderplasschen, 2023. "Quality of Life Outcomes for Adolescents in Youth Care," Child Indicators Research, Springer;The International Society of Child Indicators (ISCI), vol. 16(5), pages 1987-2011, October.
    3. Mira Aurora Marlow & Rita Sørly & Heli Kyllikki Kaatrakoski, 2022. "Personal Stories of Young Women in Residential Care: Health-Promoting Strategies and Wellbeing," IJERPH, MDPI, vol. 19(24), pages 1-12, December.

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