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Who Cares at the End of Life? Unmet care needs across 32 Countries

Author

Listed:
  • Long, Chengxu
  • Lin, Zhuoer
  • Swearinger, Hazal
  • Ailshire, Jennifer
  • Qian, Yuting
  • Ming, Wai-Kit
  • Zhao, Huitong
  • Hou, Xiaohui
  • Wu, Bei
  • Yang, Wei
  • Chen, Xi
  • Chen, Shanquan

Abstract

Despite the growing global demand for end-of-life care resulting from rapid social transformations, significant gaps exist in cross-national research examining unmet end-of-life care needs. Using harmonized end-of-life survey data (2010-2021) from the United States, 28 European countries, South Korea, China, and Mexico, here we show that the United States, Europe, and South Korea exhibited higher overall unmet end-of-life care needs than China and Mexico, where limited formal care provision was compensated with high levels of informal care. Death at institutions was associated with lower overall unmet end-of-life care needs in the United States and South Korea, with Mexico presenting an exception. Similarly, urban areas in Europe and South Korea exhibited lower unmet formal end-of-life care needs compared to rural areas. Among married individuals, only Mexico exhibited significantly lower unmet overall end-of-life care needs compared to unmarried individuals. Having children was consistently linked to lower unmet informal end-of-life care needs across the United States, Europe, and South Korea. Our findings highlight the complex interplay between care systems and family demographic structures in shaping end-of-life care access, and underscore the need for tailored policy approaches that strengthen both formal and informal care systems while addressing sociodemographic disparities in care access.

Suggested Citation

  • Long, Chengxu & Lin, Zhuoer & Swearinger, Hazal & Ailshire, Jennifer & Qian, Yuting & Ming, Wai-Kit & Zhao, Huitong & Hou, Xiaohui & Wu, Bei & Yang, Wei & Chen, Xi & Chen, Shanquan, 2026. "Who Cares at the End of Life? Unmet care needs across 32 Countries," GLO Discussion Paper Series 1842, Global Labor Organization (GLO).
  • Handle: RePEc:zbw:glodps:1842
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    JEL classification:

    • I14 - Health, Education, and Welfare - - Health - - - Health and Inequality
    • I18 - Health, Education, and Welfare - - Health - - - Government Policy; Regulation; Public Health
    • J14 - Labor and Demographic Economics - - Demographic Economics - - - Economics of the Elderly; Economics of the Handicapped; Non-Labor Market Discrimination
    • D13 - Microeconomics - - Household Behavior - - - Household Production and Intrahouse Allocation
    • O57 - Economic Development, Innovation, Technological Change, and Growth - - Economywide Country Studies - - - Comparative Studies of Countries

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