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Trapped like a butterfly in a spider's web: Experiences of female spousal caregivers in the care of husbands with severe mental illness

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  • Farnaz Rahmani
  • Hossein Ebrahimi
  • Naeimeh Seyedfatemi
  • Hossein Namdar Areshtanab
  • Fatemeh Ranjbar
  • Bill Whitehead

Abstract

Aims and objectives To explore the experiences of female spousal caregivers in the care of husbands with severe mental illness. Background Family involvement in the care of patients with chronic illness is essential to provide a backbone of support for them. However, little is known about how female spousal caregivers are confronted with challenges while taking care of their husbands with severe mental illness. Design An exploratory qualitative study. Methods Fourteen female spousal caregivers of people with severe mental illness (defined here as schizophrenia, schizoaffective disorders and bipolar affective disorders) were recruited using purposive sampling and were interviewed using a semistructured in‐depth interview method. Data were analysed by conventional content analysis until data saturation was achieved. Results Care of a husband with severe mental illness had a disruptive influence on the emotional relationships of the family and resulted in emotional detachment over time. Despite the caregivers’ struggle to protect their families, the lack of supportive resources caused emotional exhaustion. Caregiving tasks interfering with their many other responsibilities, along with being a reference for family matters, led to loss of self. Consequently, they experienced psychological distress because of the transition to a caregiver role without any supportive resources. Conclusion Constant caring, without supportive resources, forced them to do various roles and manage other issues within the family. Being unprepared for a caregiving role led to the psychological distress of female spousal caregivers. Therefore, adequate information, education and supportive resources must be provided for spouses to facilitate their transition to caregiving roles. Relevance to clinical practice It is necessary to pay close attention to the spousal caregivers’ own mental health problems while they care for their mentally ill husbands. Mental health professionals should adopt a new approach to the prioritisation and planning of policies that support both family caregivers and patients.

Suggested Citation

  • Farnaz Rahmani & Hossein Ebrahimi & Naeimeh Seyedfatemi & Hossein Namdar Areshtanab & Fatemeh Ranjbar & Bill Whitehead, 2018. "Trapped like a butterfly in a spider's web: Experiences of female spousal caregivers in the care of husbands with severe mental illness," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1507-1518, April.
    • Handle: RePEc:wly:jocnur:v:27:y:2018:i:7-8:p:1507-1518
    DOI: 10.1111/jocn.14286
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    References listed on IDEAS

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    1. Elham Navab & Reza Negarandeh & Hamid Peyrovi, 2012. "Lived experiences of Iranian family member caregivers of persons with Alzheimer’s disease: caring as ‘captured in the whirlpool of time’," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(7‐8), pages 1078-1086, April.
    2. Sharon CH Tan & Ai Lean Yeoh & Irene BK Choo & Adeline PH Huang & Seng Hong Ong & Hafizah Ismail & Pei Pei Ang & Yiong Huak Chan, 2012. "Burden and coping strategies experienced by caregivers of persons with schizophrenia in the community," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(17‐18), pages 2410-2418, September.
    3. Hughes, Nic & Locock, Louise & Ziebland, Sue, 2013. "Personal identity and the role of ‘carer’ among relatives and friends of people with multiple sclerosis," Social Science & Medicine, Elsevier, vol. 96(C), pages 78-85.
    4. Martin Pinquart & Silvia Sörensen, 2006. "Gender Differences in Caregiver Stressors, Social Resources, and Health: An Updated Meta-Analysis," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 61(1), pages 33-45.
    5. Birgitta Andershed & Mats Ewertzon & Anita Johansson, 2017. "An isolated involvement in mental health care – experiences of parents of young adults," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(7-8), pages 1053-1065, April.
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    1. Mustafa Ozgun Atalay & Pınar Aydemir & Taner Acuner, 2022. "The Influence of Emotional Exhaustion on Organizational Cynicism: The Sequential Mediating Effect of Organizational Identification and Trust in Organization," SAGE Open, , vol. 12(2), pages 21582440221, April.
    2. Loujain Sharif & Shimaa Basri & Fidaa Alsahafi & Mashael Altaylouni & Shihanah Albugumi & Maram Banakhar & Alaa Mahsoon & Nofaa Alasmee & Rebecca J. Wright, 2020. "An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia—A Qualitative Study," IJERPH, MDPI, vol. 17(17), pages 1-15, September.

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