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Living with chronic illness in adults: a concept analysis

Author

Listed:
  • Leire Ambrosio
  • Juana Maria Senosiain García
  • Mario Riverol Fernández
  • Sagrario Anaut Bravo
  • Sara Díaz De Cerio Ayesa
  • María Eugenia Ursúa Sesma
  • Neus Caparrós
  • Mari Carmen Portillo

Abstract

Aims and objectives To report an analysis of the concept of Living with chronic illness in adults, using Rodger's evolutionary analytical methodology. Background In the literature, several qualitative studies exist that address the question of Living with chronic illness from the adult patient's perspective. However, the lack of clarity and consensus among the existing studies renders this concept ambiguous when it is analysed in depth. Design A narrative review. Methods A systematic search has been carried out on electronic databases such as Medline (PubMed), Cinahl (Ebsco), Cochrane Library, PsycINFO (Ovid), Embase, Cuiden, Dialnet and Scielo. This was limited to articles published in either Spanish or English, from 2003–2013. Results Living with chronic illness is a complex, dynamic, cyclic and multidimensional process, and involves the development of five different attributes: Acceptance, Coping, Self‐management, Integration and Adjustment. Depending on how these attributes operate, there are four different ways of living which can result from the process of Living with chronic illness: (1) Disavowal, (2) False Normality, (3) The New Normal and (4) Disruption. Conclusions This paper contributes to the understanding of the concept ‘Living with chronic illness’. Findings in this analysis have to be evaluated with caution and further research is needed on this topic to confirm them. Also, more studies in evaluating how patients live a long‐term condition are recommended to foster patient‐centred care. Relevance to clinical practice Findings generated from this concept analysis can raise awareness of Living with chronic illness so that this process could be assessed in a correct and uniform way in the clinical community and improved when needed.

Suggested Citation

  • Leire Ambrosio & Juana Maria Senosiain García & Mario Riverol Fernández & Sagrario Anaut Bravo & Sara Díaz De Cerio Ayesa & María Eugenia Ursúa Sesma & Neus Caparrós & Mari Carmen Portillo, 2015. "Living with chronic illness in adults: a concept analysis," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(17-18), pages 2357-2367, September.
    • Handle: RePEc:wly:jocnur:v:24:y:2015:i:17-18:p:2357-2367
    DOI: 10.1111/jocn.12827
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    References listed on IDEAS

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    1. Stewart, David C. & Sullivan, Thomas J., 1982. "Illness behavior and the sick role in chronic disease : The case of multiple sclerosis," Social Science & Medicine, Elsevier, vol. 16(15), pages 1397-1404, January.
    2. Sharpe, Louise & Curran, Leah, 2006. "Understanding the process of adjustment to illness," Social Science & Medicine, Elsevier, vol. 62(5), pages 1153-1166, March.
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    1. Christina Petersson & Ramona Fust & Carina Hagstedt & Per Wågström & Åsa Nilsdotter‐Augustinsson, 2018. "“Experiences of the burden of treatment”—Patient reports of facilitated subcutaneous immunoglobulin treatment in adults with immunodeficiency," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(23-24), pages 4270-4278, December.
    2. Leire Ambrosio & Mari Carmen Portillo & Carmen Rodriguez‐Blazquez & Jose Manuel Rojo & Pablo Martinez‐Martin & EC‐PC Validation Group, 2019. "Influencing factors when living with Parkinson’s disease: A cross‐sectional study," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(17-18), pages 3168-3176, September.
    3. E. Ann Holmes & Cathy Banwell & Robyn M Lucas & Joanna Hawkes & David Moore & Rachael Rodney Harris, 2021. "Experiences of Adolescents Who Are Living with Inflammatory Bowel Disease," Global Journal of Health Science, Canadian Center of Science and Education, vol. 13(4), pages 1-49, April.
    4. Angela Odero & Manon Pongy & Louis Chauvel & Bernard Voz & Elisabeth Spitz & Benoit Pétré & Michèle Baumann, 2020. "Core Values that Influence the Patient—Healthcare Professional Power Dynamic: Steering Interaction towards Partnership," IJERPH, MDPI, vol. 17(22), pages 1-17, November.
    5. Leire Ambrosio & M Victoria Navarta-Sánchez & Ana Carvajal & Cristina Garcia-Vivar, 2021. "Living with Chronic Illness from the Family Perspective:An Integrative Review," Clinical Nursing Research, , vol. 30(5), pages 579-590, June.
    6. Christopher J Gerry & Maria Kaneva, 2021. "Adapting to the Challenges of Chronic Non-communicable Diseases: Evidence from Russia," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 16(4), pages 1537-1553, August.
    7. Ivana Maria Rosi & Francesca Bombardieri & Daniele Steri & Mimma Sternativo & Stefania Rancati, 2021. "“Those Plates That Save Me†: Experiences of Italian Patients With Implantable Cardioverter Defibrillator," Clinical Nursing Research, , vol. 30(5), pages 616-624, June.
    8. Dot Brown & John Oetzel & Alison Henderson, 2016. "Communication networks of men facing a diagnosis of prostate cancer," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(21-22), pages 3266-3278, November.
    9. Maria Hjorth & Anncarin Svanberg & Daniel Sjöberg & Fredrik Rorsman & Elenor Kaminsky, 2020. "Liver cirrhosis turns life into an unpredictable roller coaster: A qualitative interview study," Journal of Clinical Nursing, John Wiley & Sons, vol. 29(23-24), pages 4532-4543, December.
    10. Ansuk Jeong & Ju-Hong Min & Yu Kyoung Kang & Juhyeon Kim & Misong Choi & Jin Myoung Seok & Byung Joon Kim, 2018. "Factors associated with quality of life of people with Myasthenia Gravis," PLOS ONE, Public Library of Science, vol. 13(11), pages 1-8, November.
    11. Silvia Corchon & Carmen Rodríguez-Blázquez & Alfonso Meneses & Marta Aranda-Gallardo & Lorena López & Maria Eugenia Ursúa & Maria Victoria Navarta-Sanchez & Mari Carmen Portillo & Leire Ambrosio, 2021. "The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study," IJERPH, MDPI, vol. 18(19), pages 1-11, October.
    12. Patricia Marín-Maicas & Silvia Corchón & Leire Ambrosio & Mari Carmen Portillo, 2021. "Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis," IJERPH, MDPI, vol. 18(14), pages 1-22, July.
    13. Leire Ambrosio & David Perez-Manchon & Gloria Carvajal-Carrascal & Alejandra Fuentes-Ramirez & Neus Caparros & Manuel Ignacio Ruiz de Ocenda & Eva Timonet & Maria Victoria Navarta-Sanchez & Carmen Rod, 2021. "Psychometric Validation of the Living with Chronic Illness Scale in Patients with Chronic Heart Failure," IJERPH, MDPI, vol. 18(2), pages 1-14, January.

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