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Development and Validation of a Self-Reported Questionnaire On Users’ Opinions About Schizophrenia: a Participatory Research

Author

Listed:
  • Lorenza Magliano

    (Department of Psychiatry, University of Naples SUN, Naples, lorenza.magliano@unina2)

  • Andrea Fiorillo

    (Department of Psychiatry, University of Naples SUN, Naples)

  • Heidegret Del Vecchio

    (Department of Psychiatry, University of Naples SUN, Naples)

  • Claudio Malangone

    (Mental Health Centre of Ravello)

  • Corrado De Rosa

    (Mental Health Centre of Battipaglia)

  • Carla Bachelet

    (Mental Health Centre of Turin)

  • Giampiero Cesari

    (Mental Health Centre of Arezzo)

  • Rosa D'Ambrogio

    (Mental Health Centre of Rho)

  • Francesca Fulgosi Cigala

    (Mental Health Centre of Ferrara)

  • Franco Veltro

    (Mental Health Centre of Campobasso)

  • Paola Zanus

    (Mental Health Centre of Trieste)

  • Rosaria Pioli

    (Mental Health Centre of Fatebenefratelli Institute of Brescia)

  • Mario Maj

    (Department of Psychiatry, University of Naples SUN, Naples)

Abstract

Background: Although users’ involvement in mental health research has repeatedly been acknowledged as having a positive influence on research quality, this rarely happens. Aims: To develop and validate a Questionnaire on Users’ Opinions (QOU) about schizophrenia, in close collaboration with 279 persons affected by this disorder. Methods: A preliminary list of items concerning the opinions of users with schizophrenia regarding causes, treatments and psychosocial consequences of the disorder was developed by 38 users with schizophrenia and 40 professionals who attended a workshop. Psychometric properties of the QOU were tested on 241 users with schizophrenia, 149 of whom were randomly assigned to a test—retest study and 92 to a face-validity study. Content and construct validity were explored in the whole sample. Results: The final version of the QOU contains: (1) 24 items on the psychosocial consequences of schizophrenia, grouped into six subscales, whose Cronbach’s alpha ranged between 0.55 and 0.74; (2) five multiple choice items on the Italian psychiatric law; (3) 12 open questions; and (4) four yes/no skipping items. Items’ reliability, measured by Cohen’s kappa coefficient, ranged between 0.55 and 0.92. Conclusion: This questionnaire may be useful to assess patients’ beliefs about schizophrenia and to target psychosocial interventions for this mental disorder.

Suggested Citation

  • Lorenza Magliano & Andrea Fiorillo & Heidegret Del Vecchio & Claudio Malangone & Corrado De Rosa & Carla Bachelet & Giampiero Cesari & Rosa D'Ambrogio & Francesca Fulgosi Cigala & Franco Veltro & Paol, 2009. "Development and Validation of a Self-Reported Questionnaire On Users’ Opinions About Schizophrenia: a Participatory Research," International Journal of Social Psychiatry, , vol. 55(5), pages 425-441, September.
    • Handle: RePEc:sae:socpsy:v:55:y:2009:i:5:p:425-441
    DOI: 10.1177/0020764008099414
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    References listed on IDEAS

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    1. Schulze, Beate & Angermeyer, Matthias C., 2003. "Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals," Social Science & Medicine, Elsevier, vol. 56(2), pages 299-312, January.
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    3. Link, B.G. & Phelan, J.C. & Bresnahan, M. & Stueve, A. & Pescosolido, B.A., 1999. "Public conceptions of mental illness: Labels, causes, dangerousness, and social distance," American Journal of Public Health, American Public Health Association, vol. 89(9), pages 1328-1333.
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