IDEAS home Printed from https://ideas.repec.org/a/sae/clnure/v21y2012i2p213-223.html
   My bibliography  Save this article

Development of the HD-Teen Inventory

Author

Listed:
  • Martha Driessnack
  • Janet K. Williams
  • J. Jackson Barnette
  • Kathleen J. Sparbel
  • Jane S. Paulsen

Abstract

Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk for HD but also are witness to its onset and devastating clinical progression as their parent declines. To date, no mechanism has been developed to direct health care providers to the atypical adolescent experiences of these teens. The purpose of this report is to describe the process of developing the HD-Teen Inventory clinical assessment tool. Forty-eight teens and young adults from 19 U.S. states participated in the evaluation of the HD-Teen Inventory tool. Following item analysis, the number of items was reduced and item frequency and reaction scales were combined, based on the strong correlation ( r = .94). The resultant tool contains 15 inventory and 2 open-ended response items. The HD-Teen Inventory emerged as a more compact and efficient tool for identifying the most salient concerns of at-risk teens in HD families in research and/or clinical practice.

Suggested Citation

  • Martha Driessnack & Janet K. Williams & J. Jackson Barnette & Kathleen J. Sparbel & Jane S. Paulsen, 2012. "Development of the HD-Teen Inventory," Clinical Nursing Research, , vol. 21(2), pages 213-223, May.
    • Handle: RePEc:sae:clnure:v:21:y:2012:i:2:p:213-223
    DOI: 10.1177/1054773811409397
    as

    Download full text from publisher

    File URL: https://journals.sagepub.com/doi/10.1177/1054773811409397
    Download Restriction: no
    File URL: https://libkey.io/10.1177/1054773811409397?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    References listed on IDEAS

    as
    1. Forrest Keenan, Karen & van Teijlingen, Edwin & McKee, Lorna & Miedzybrodzka, Zosia & Simpson, Sheila A., 2009. "How young people find out about their family history of Huntington's disease," Social Science & Medicine, Elsevier, vol. 68(10), pages 1892-1900, May.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Huniche, Lotte, 2011. "Moral landscapes and everyday life in families with Huntington's disease: Aligning ethnographic description and bioethics," Social Science & Medicine, Elsevier, vol. 72(11), pages 1810-1816, June.
    2. Kavanaugh, Melinda S. & Cho, Chi & Maeda, Hotaka & Swope, Chandler, 2017. "“I am no longer alone”: Evaluation of the first North American camp for youth living in families with Huntington's disease," Children and Youth Services Review, Elsevier, vol. 79(C), pages 325-332.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:sae:clnure:v:21:y:2012:i:2:p:213-223. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: SAGE Publications (email available below). General contact details of provider: .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.