How Patients Experience and Give Meaning to Their Cancer-related Fatigue?
Fatigue is a common experience occurring in 70% to 100% of advanced cancer patients with a great impact on quality of life and survival. Despite the complexity of this phenomenon, fatigue¡¯s psychosocial dimensions are still not well understood. The aim of this study was to deepen how Italian patients perceive and give meaning to their cancer-related fatigue through the analysis of their language. The study was designed using ethnoscience, an approach that allows to explore how meaning is conveyed through language. We interviewed 16 cancer patients with different level of fatigue (5 mild, 5 moderate, 6 severe). The data analysis showed that fatigue affected three experiential dimensions (mind, body and interpersonal relationships) which are characterized by different symptomatic manifestations depending on the level of fatigue. Patients¡¯ causal attributions also varied across levels of fatigue: patients with mild and moderate fatigue attributed their fatigue to psychological and contextual causes, whereas patients with severe fatigue attributed their fatigue to physical and medical causes. As fatigue affects multiple areas of patients' lives, this study suggests the importance of holistic treatments with a multidisciplinary approach able to support patient engagement and activation in their healthcare. This study also shows the importance of considering patients' causal attributions about fatigue, as these appeared to play a role in how patients managed fatigue. Finally, our data highlighted the importance of using a shared language when speaking with patients about fatigue as this may help patients to feel more understood and supported, thus also improving their quality of life and engagement in their care & cure process.
Volume (Year): 1 (2013)
Issue (Month): 2 (October)
|Contact details of provider:|| Postal: CDM - CEMI, Odyssea, Station 5, CH - 1015 Lausanne|
Phone: +41 21 693 0036
Fax: +41 21 693 0020
Web page: http://ijsss.redfame.com
More information through EDIRC
When requesting a correction, please mention this item's handle: RePEc:rfa:journl:v:1:y:2013:i:2:p:8-19. See general information about how to correct material in RePEc.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: (Redfame publishing)
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If references are entirely missing, you can add them using this form.
If the full references list an item that is present in RePEc, but the system did not link to it, you can help with this form.
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your profile, as there may be some citations waiting for confirmation.
Please note that corrections may take a couple of weeks to filter through the various RePEc services.