IDEAS home Printed from https://ideas.repec.org/a/gam/jscscx/v14y2025i6p322-d1661997.html
   My bibliography  Save this article

Comment on Grace et al. (2024). Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research. Social Sciences 13: 37

Author

Listed:
  • Nicola C. Grove

    (Rix Inclusive Research, Docklands Campus, University of East London, London E16 2RD, UK)

  • Karen T. Bunning

    (Norwich Research Park, University of East Anglia, Norwich NR4 7TJ, UK)

  • Susan Buell

    (School of Health Sciences, University of Dundee, Dundee DD1 4HN, UK)

  • Fiona M. Poland

    (Norwich Research Park, University of East Anglia, Norwich NR4 7TJ, UK)

  • Gosia M. Kwiatkowska

    (Rix Inclusive Research, Docklands Campus, University of East London, London E16 2RD, UK)

  • Darren D. Chadwick

    (School of Psychology, Liverpool John Moores University, Liverpool L3 3AF, UK)

  • Juliet L. Goldbart

    (School of Psychology, Manchester Metropolitan University, Manchester M15 6BX, UK)

Abstract

This article is a response to a paper, published last year in this journal, by Grace, Nind, de Haas and Hope. The authors sought to “question how we create knowledge and challenge underlying assumptions about valid forms of knowing” (p. 3). Their focus is on inclusive research with people who have profound intellectual and multiple disabilities (PIMDs). They describe their approach as “being with”, aligned with the experience of meaning, as opposed to doing research with people, which they locate in knowledge extraction. Recognising the authors’ commitment to foregrounding the personhood of people with PIMDs, a critique is developed in order to open a debate around issues of ethical research practices, decolonisation and conceptualisation of ‘deep knowledge’.

Suggested Citation

  • Nicola C. Grove & Karen T. Bunning & Susan Buell & Fiona M. Poland & Gosia M. Kwiatkowska & Darren D. Chadwick & Juliet L. Goldbart, 2025. "Comment on Grace et al. (2024). Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research. Social Sciences 13:," Social Sciences, MDPI, vol. 14(6), pages 1-15, May.
    • Handle: RePEc:gam:jscscx:v:14:y:2025:i:6:p:322-:d:1661997
    as

    Download full text from publisher

    File URL: https://www.mdpi.com/2076-0760/14/6/322/pdf
    Download Restriction: no
    File URL: https://www.mdpi.com/2076-0760/14/6/322/
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. Joanna Grace & Melanie Nind & Catherine de Haas & Joanna Hope, 2024. "Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research," Social Sciences, MDPI, vol. 13(1), pages 1-12, January.
    2. Catherine de Haas & Joanna Grace & Joanna Hope & Melanie Nind, 2022. "Doing Research Inclusively: Understanding What It Means to Do Research with and Alongside People with Profound Intellectual Disabilities," Social Sciences, MDPI, vol. 11(4), pages 1-13, April.
    Full references (including those not matched with items on IDEAS)

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Lesley Verbeek & Mark Koning & Alice Schippers, 2024. "Understanding Epistemic Justice through Inclusive Research about Intellectual Disability and Sexuality," Social Sciences, MDPI, vol. 13(8), pages 1-11, August.
    2. Gregor Wolbring & Aspen Lillywhite, 2023. "Coverage of Allies, Allyship and Disabled People: A Scoping Review," Societies, MDPI, vol. 13(11), pages 1-38, November.
    3. Joanna Grace & Melanie Nind & Catherine de Haas & Joanna Hope, 2024. "Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and Multiple Disabilities and Decolonising Research," Social Sciences, MDPI, vol. 13(1), pages 1-12, January.
    4. Rachelle D. Hole & Leyton Schnellert, 2024. "Disability Theatre as Critical Participatory Action Research: Lessons for Inclusive Research," Social Sciences, MDPI, vol. 13(2), pages 1-13, February.
    5. Timo Dins & Caren Keeley, 2022. "Recognising Basic Health Literacy Capabilities: An Explorative Study on the Relevance of Health-Related Information in the Support of People with Profound Intellectual and Multiple Disabilities," IJERPH, MDPI, vol. 19(24), pages 1-26, December.
    6. Fields, Diana & Fox, Laura & Asbury, Kathryn, 2024. "‘Step into her world’: Including the voices of learning disabled children and young people in research," OSF Preprints cw3ub, Center for Open Science.
    7. repec:osf:osfxxx:cw3ub_v1 is not listed on IDEAS

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:gam:jscscx:v:14:y:2025:i:6:p:322-:d:1661997. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: MDPI Indexing Manager (email available below). General contact details of provider: https://www.mdpi.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.