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Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study

Author

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  • Silvana B. Napoli

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • María Paula Vitale

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • Pablo J. Cafiero

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • María Belén Micheletti

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • Paula Pedernera Bradichansky

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • Celina Lejarraga

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • Maria Gabriela Urinovsky

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • Anabella Escalante

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • Estela Rodriguez

    (Division of Interdisciplinary Clinics, Child Developmental Pediatric Unit, Children Hospital JP Garrahan, Buenos Aires C 1245 AAM C.A.B.A, Argentina)

  • Verónica Schiariti

    (Division of Medical Sciences, University of Victoria, Victoria, BC V8W 2Y2, Canada)

Abstract

Background: Autism spectrum disorder (ASD) affects the daily functioning of children and their families; however, in Argentina, there are no standardized tools to guide the description, evaluation, and follow-up of functioning and disability of children with ASD. To fill this gap, the overarching purpose of this study was to create a novel tool guided by the International Classification of Functioning, Disability, and Health (ICF) Core Sets for ASD for clinical practice. Methods: A multistep methodology was used to identify the most relevant ICF categories for an Argentinian clinical setting. The content of this ICF-based shortlist was piloted and revised according to the results. Subsequently, a toolbox of measures was proposed to operationalize each ICF category. Finally, profiles of the functioning of 100 children with ASD were created. Results: An ICF-based tool called TEA-CIFunciona was created, consisting of 32 ICF categories (10 body functions, 15 activities and participation, 7 environmental factors categories). The application of TEA-CIFunciona incorporated a family-centered approach in ASD evaluations and helped identify functional needs. Conclusions: TEA-CIFunciona is the first ICF-based instrument that guides the description of functioning of children with ASD in Argentina. TEA-CIFunciona standardizes collaborative assessments in pediatric ASD populations in Latin American contexts.

Suggested Citation

  • Silvana B. Napoli & María Paula Vitale & Pablo J. Cafiero & María Belén Micheletti & Paula Pedernera Bradichansky & Celina Lejarraga & Maria Gabriela Urinovsky & Anabella Escalante & Estela Rodriguez , 2021. "Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study," IJERPH, MDPI, vol. 18(7), pages 1-18, April.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:7:p:3720-:d:529220
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    References listed on IDEAS

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    1. Haryelle Náryma Confessor Ferreira & Veronica Schiariti & Isabelly Cristina Rodrigues Regalado & Klayton Galante Sousa & Silvana Alves Pereira & Carla Patrícia Novaes dos Santos Fechine & Egmar Longo, 2018. "Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection," IJERPH, MDPI, vol. 15(6), pages 1-14, May.
    2. Verónica Schiariti & Egmar Longo & Alexander Shoshmin & Ludmila Kozhushko & Yanina Besstrashnova & Maria Król & Taynah Neri Correia Campos & Haryelle Náryma Confessor Ferreira & Cláudia Verissimo & Da, 2018. "Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning," IJERPH, MDPI, vol. 15(9), pages 1-19, September.
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