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Preferences and Experiences of People with Chronic Illness in Using Different Sources of Health Information: Results of a Mixed-Methods Study

Author

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  • Svea Gille

    (Interdisciplinary Centre for Health Literacy Research, School of Public Health, Bielefeld University, 33615 Bielefeld, Germany
    Department Public Health and Education, Hertie School, 10117 Berlin, Germany)

  • Lennert Griese

    (Interdisciplinary Centre for Health Literacy Research, School of Public Health, Bielefeld University, 33615 Bielefeld, Germany)

  • Doris Schaeffer

    (Interdisciplinary Centre for Health Literacy Research, School of Public Health, Bielefeld University, 33615 Bielefeld, Germany)

Abstract

Background: People with chronic illness are particularly dependent on adequate health literacy (HL), but often report difficulties in accessing, understanding, appraising, and applying health information. To strengthen the HL of people with chronic illness, in-depth knowledge about how they deal with health information is crucial. Methods: To this end, quantitative data from the Second Health Literacy Survey Germany (HLS-GER 2) and qualitative data from seven focus group discussions were used to examine the interest in health information, preferred sources of information as well as experiences and challenges with information management among people with chronic illness. Results: The results show that people with chronic illness have a great interest in health information and use very different sources of health information, preferring personal information from physicians most. The results also point to several challenges in health information management that seem to be influenced by the illness duration as well as by the experiences made with the respective sources. Conclusions: Overall, the study provides important starting points for intervention development for the provision and communication of health-related information, but also to research on health information behavior and HL.

Suggested Citation

  • Svea Gille & Lennert Griese & Doris Schaeffer, 2021. "Preferences and Experiences of People with Chronic Illness in Using Different Sources of Health Information: Results of a Mixed-Methods Study," IJERPH, MDPI, vol. 18(24), pages 1-16, December.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:24:p:13185-:d:702141
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    References listed on IDEAS

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    1. Jany Rademakers & Monique Heijmans, 2018. "Beyond Reading and Understanding: Health Literacy as the Capacity to Act," IJERPH, MDPI, vol. 15(8), pages 1-12, August.
    2. Orkan Okan & Torsten Michael Bollweg & Eva-Maria Berens & Klaus Hurrelmann & Ullrich Bauer & Doris Schaeffer, 2020. "Coronavirus-Related Health Literacy: A Cross-Sectional Study in Adults during the COVID-19 Infodemic in Germany," IJERPH, MDPI, vol. 17(15), pages 1-20, July.
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    Cited by:

    1. Jonas Lander & Marie-Luise Dierks & Melanie Hawkins, 2022. "Health Literacy Development among People with Chronic Diseases: Advancing the State of the Art and Learning from International Practices," IJERPH, MDPI, vol. 19(12), pages 1-5, June.

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