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Inclusion of People with Intellectual Disabilities in Health Literacy: Lessons Learned from Three Participative Projects for Future Initiatives

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  • Änne-Dörte Latteck

    (Bielefeld University of Applied Sciences, Institute of Education and Health Care Research, Department of Nursing and Health, Faculty of Business and Health, 33619 Bielefeld, Germany)

  • Dirk Bruland

    (Bielefeld University of Applied Sciences, Institute of Education and Health Care Research, Department of Nursing and Health, Faculty of Business and Health, 33619 Bielefeld, Germany)

Abstract

Background : People with intellectual disabilities (IDs) constitute a high-risk group in relation to several diseases. Promoting their health literacy (HL) could be highly beneficial in the management of health information and making informed decisions. However, there are varying ranges of cognitive, communication and literacy levels in people with IDs. According to our literature review, a HL concept for this target group has not been adequately conceptualized. Methods : To increase knowledge about the target group, adapted HL results from three innovative (research) projects are presented. Results : The key factors are: a) target group orientation; b) social context and everyday life; c) individual resources, like communication and literacy levels; d) a multi-modal strategy to strengthen HL; and e) the self-determination and participation of people with IDs. Conclusions : The projects illustrate that the HL of people with IDs has been successfully addressed by taking these key factors into account. A target-group-orientated HL concept could affect more than positive health outcomes; it could also empower a high-risk group in relation to health problems. However, to develop successful action concepts and strategies, valid data are crucial. The heterogeneity of people with IDs is one of the biggest challenges in obtaining such data. Future studies will need to face these challenges.

Suggested Citation

  • Änne-Dörte Latteck & Dirk Bruland, 2020. "Inclusion of People with Intellectual Disabilities in Health Literacy: Lessons Learned from Three Participative Projects for Future Initiatives," IJERPH, MDPI, vol. 17(7), pages 1-13, April.
    • Handle: RePEc:gam:jijerp:v:17:y:2020:i:7:p:2455-:d:341196
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    References listed on IDEAS

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    1. Cornelia Geukes & Janine Bröder & Änne-Dörte Latteck, 2019. "Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse," IJERPH, MDPI, vol. 16(3), pages 1-11, February.
    2. Kristine Crondahl & Leena Eklund Karlsson, 2016. "The Nexus Between Health Literacy and Empowerment," SAGE Open, , vol. 6(2), pages 21582440166, April.
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    Cited by:

    1. Timo Dins & Caren Keeley, 2022. "Recognising Basic Health Literacy Capabilities: An Explorative Study on the Relevance of Health-Related Information in the Support of People with Profound Intellectual and Multiple Disabilities," IJERPH, MDPI, vol. 19(24), pages 1-26, December.
    2. Tetine Sentell & Sandra Vamos & Orkan Okan, 2020. "Interdisciplinary Perspectives on Health Literacy Research Around the World: More Important Than Ever in a Time of COVID-19," IJERPH, MDPI, vol. 17(9), pages 1-13, April.
    3. Joanne Nicholson & Shayna Mazel & Kristen Faughnan & Allie Silverman, 2023. "Mothers with Intellectual/Developmental Disabilities and Behavioral Health Conditions and Community Experts Provide Recommendations for Treatment/Services, Systems, and Research," IJERPH, MDPI, vol. 20(10), pages 1-19, May.
    4. Sureshkumar Kamalakannan & Sutanuka Bhattacharjya & Yelena Bogdanova & Christina Papadimitriou & Juan Carlos Arango-Lasprilla & Jacob Bentley & Tiago S. Jesus & Refugee Empowerment Task Force, Interna, 2021. "Health Risks and Consequences of a COVID-19 Infection for People with Disabilities: Scoping Review and Descriptive Thematic Analysis," IJERPH, MDPI, vol. 18(8), pages 1-17, April.

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