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Continuity of Care in Adults Aging with Cerebral Palsy and Spina Bifida: The Importance of Community Healthcare and Socioeconomic Context

Author

Listed:
  • Anam M. Khan

    (Institute for Social Research, University of Michigan, Ann Arbor, MI 48106, USA)

  • Paul Lin

    (Institute for Healthcare Policy and Innovation, University of Michigan, Ann Arbor, MI 48109, USA)

  • Neil Kamdar

    (Institute for Healthcare Policy and Innovation, University of Michigan, Ann Arbor, MI 48109, USA
    Center for Disability Health and Wellness, University of Michigan, Ann Arbor, MI 48108, USA
    Department of Surgery, Michigan Medicine, University of Michigan, Ann Arbor, MI 48109, USA
    Department of Obstetrics and Gynecology, Michigan Medicine, University of Michigan, Ann Arbor, MI 48109, USA)

  • Elham Mahmoudi

    (Institute for Healthcare Policy and Innovation, University of Michigan, Ann Arbor, MI 48109, USA)

  • Philippa Clarke

    (Institute for Social Research, University of Michigan, Ann Arbor, MI 48106, USA
    Institute for Healthcare Policy and Innovation, University of Michigan, Ann Arbor, MI 48109, USA
    Center for Disability Health and Wellness, University of Michigan, Ann Arbor, MI 48108, USA)

Abstract

Continuity of care is considered a key metric of quality healthcare. Yet, continuity of care in adults aging with congenital disability and the factors that contribute to care continuity are largely unknown. Using data from a national private administrative health claims database in the United States (2007–2018). we examined continuity of care in 8596 adults (mean age 48.6 years) with cerebral palsy or spina bifida. Logistic regression models analyzed how proximity to health care facilities, availability of care providers, and community socioeconomic context were associated with more continuous care. We found that adults aging with cerebral palsy or spina bifida saw a variety of different physician specialty types and generally had discontinuous care. Individuals who lived in areas with more hospitals and residential care facilities received more continuous care than those with limited access to these resources. Residence in more affluent areas was associated with receiving more fragmented care. Findings suggest that over and above individual factors, community healthcare resources and socioeconomic context serve as important factors to consider in understanding continuity of care patterns in adults aging with cerebral palsy or spina bifida.

Suggested Citation

  • Anam M. Khan & Paul Lin & Neil Kamdar & Elham Mahmoudi & Philippa Clarke, 2023. "Continuity of Care in Adults Aging with Cerebral Palsy and Spina Bifida: The Importance of Community Healthcare and Socioeconomic Context," Disabilities, MDPI, vol. 3(2), pages 1-12, June.
    • Handle: RePEc:gam:jdisab:v:3:y:2023:i:2:p:19-306:d:1168920
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    References listed on IDEAS

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    1. Iezzoni, L.I. & McCarthy, E.P. & Davis, R.B. & Siebens, H., 2000. "Mobility impairments and use of screening and preventive services," American Journal of Public Health, American Public Health Association, vol. 90(6), pages 955-961.
    2. Ivan R. Molton & Kathryn M. Yorkston, 2017. "Growing Older With a Physical Disability: A Special Application of the Successful Aging Paradigm," The Journals of Gerontology: Series B, The Gerontological Society of America, vol. 72(2), pages 290-299.
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