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Lived experience of State-sponsored intra-national overseas therapeutic mobility for stem cell transplantation

Author

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  • Franchina, Loreley
  • Sarradon-Eck, Aline
  • Arnault, Yolande
  • Le Corroller, Anne-Gaëlle
  • Zunic, Patricia
  • Marino, Patricia

Abstract

This article focuses on the lived experience of patients with haematological cancer who were transferred from La Réunion (a French overseas Department) to mainland France to undergo allogeneic haematopoietic stem cell transplantation (allo-HSCT). Based on a qualitative study conducted between February 2020 and January 2021 with allo-HSCT recipients, their family caregivers and healthcare professionals, we examined the social, economic and cultural factors shaping the patients' complex experience. We have called this kind of State-sponsored intra-national medical transfer “overseas therapeutic mobility”. The patients' experience of this therapeutic journey beyond their geographical and cultural frontiers has some similarities with transnational therapeutic mobility. Overseas therapeutic mobility to undergo highly technical treatment requires considerable logistic efforts and mobility skills. The remoteness of their families and their affective and cultural environment give mobile patients a feeling of disorientation and causes them much social suffering. The two-fold condition of being a sick person with a possibly lethal disease and being treated overseas can be regarded as a double ordeal. In addition, the unfunded costs place a heavy burden on the patients and those whose families have limited resources. This study points to the cleavages which occur between post-colonial overseas regions and mainland France, and the territorial inequalities existing in patients’ access to specialized treatment due to French policies of healthcare centralization.

Suggested Citation

  • Franchina, Loreley & Sarradon-Eck, Aline & Arnault, Yolande & Le Corroller, Anne-Gaëlle & Zunic, Patricia & Marino, Patricia, 2022. "Lived experience of State-sponsored intra-national overseas therapeutic mobility for stem cell transplantation," Social Science & Medicine, Elsevier, vol. 301(C).
    • Handle: RePEc:eee:socmed:v:301:y:2022:i:c:s0277953622002635
    DOI: 10.1016/j.socscimed.2022.114957
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    References listed on IDEAS

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    1. Bochaton, Audrey, 2015. "Cross-border mobility and social networks: Laotians seeking medical treatment along the Thai border," Social Science & Medicine, Elsevier, vol. 124(C), pages 364-373.
    2. Huguet, Marius, 2020. "Centralization of care in high volume hospitals and inequalities in access to care," Social Science & Medicine, Elsevier, vol. 260(C).
    3. Heidi Kaspar, 2019. "Searching for therapies, seeking for hope: transnational cancer care in Asia," Mobilities, Taylor & Francis Journals, vol. 14(1), pages 120-136, January.
    4. Heidi Kaspar & Margaret Walton-Roberts & Audrey Bochaton, 2019. "Therapeutic mobilities," Mobilities, Taylor & Francis Journals, vol. 14(1), pages 1-19, January.
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    Cited by:

    1. Park, Hyanggi, 2022. "Can imaginary mobilities be conducive to mental health?," Social Science & Medicine, Elsevier, vol. 314(C).

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