Evidence-based activism: Patients’ organisations, users’ and activist’s groups in knowledge society
AbstractThis article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It shows how these groups engage with, and articulate a variety of credentialed knowledge and ‘experiential knowledge’ with a view to explore concerned people’s situations, to make themselves part and parcel of the networks of expertise on their conditions in their national contexts, and to elaborate evidence on the issues they deem important to address both at an individual and a collective level.
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Bibliographic InfoPaper provided by Centre de Sociologie de l'Innovation (CSI), Mines ParisTech in its series CSI Working Papers Series with number 033.
Length: 27 pages
Date of creation: May 2013
Date of revision:
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evidence-based activism; patients’ and health activists’ groups; expertise; healthcare policies; collective inquiry; technological democracies;
Find related papers by JEL classification:
- I18 - Health, Education, and Welfare - - Health - - - Government Policy; Regulation; Public Health
- Z18 - Other Special Topics - - Cultural Economics - - - Public Policy
This paper has been announced in the following NEP Reports:
- NEP-ALL-2013-05-24 (All new papers)
- NEP-CDM-2013-05-24 (Collective Decision-Making)
- NEP-KNM-2013-05-24 (Knowledge Management & Knowledge Economy)
- NEP-NET-2013-05-24 (Network Economics)
Please report citation or reference errors to , or , if you are the registered author of the cited work, log in to your RePEc Author Service profile, click on "citations" and make appropriate adjustments.:
- Landzelius, Kyra, 2006. "Introduction: Patient organization movements and new metamorphoses in patienthood," Social Science & Medicine, Elsevier, vol. 62(3), pages 529-537, February.
- Rabeharisoa, Vololona, 2006. "From representation to mediation: The shaping of collective mobilization on muscular dystrophy in France," Social Science & Medicine, Elsevier, vol. 62(3), pages 564-576, February.
- Cambrosio, Alberto & Keating, Peter & Schlich, Thomas & Weisz, George, 2006. "Regulatory objectivity and the generation and management of evidence in medicine," Social Science & Medicine, Elsevier, vol. 63(1), pages 189-199, July.
- Barker, Kristin K., 2011. "Listening to Lyrica: contested illnesses and pharmaceutical determinism," Social Science & Medicine, Elsevier, vol. 73(6), pages 833-842, September.
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