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Evidence-based activism: Patients’ organisations, users’ and activist’s groups in knowledge society

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  • Vololona Rabeharisoa

    (Centre de Sociologie de l'Innovation, Mines ParisTech)

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    Abstract

    This article proposes the notion of ‘evidence-based activism’ to capture patients’ and health activists’ groups’ focus on knowledge production and knowledge mobilisation in the governance of health issues. It shows how these groups engage with, and articulate a variety of credentialed knowledge and ‘experiential knowledge’ with a view to explore concerned people’s situations, to make themselves part and parcel of the networks of expertise on their conditions in their national contexts, and to elaborate evidence on the issues they deem important to address both at an individual and a collective level.

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    File URL: http://www.csi.mines-paristech.fr/working-papers/DLWP.php?wp=WP_CSI_033.pdf
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    Bibliographic Info

    Paper provided by Centre de Sociologie de l'Innovation (CSI), Mines ParisTech in its series CSI Working Papers Series with number 033.

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    Length: 27 pages
    Date of creation: May 2013
    Date of revision:
    Handle: RePEc:emn:wpaper:033

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    Related research

    Keywords: evidence-based activism; patients’ and health activists’ groups; expertise; healthcare policies; collective inquiry; technological democracies;

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    1. Cambrosio, Alberto & Keating, Peter & Schlich, Thomas & Weisz, George, 2006. "Regulatory objectivity and the generation and management of evidence in medicine," Social Science & Medicine, Elsevier, vol. 63(1), pages 189-199, July.
    2. Rabeharisoa, Vololona, 2006. "From representation to mediation: The shaping of collective mobilization on muscular dystrophy in France," Social Science & Medicine, Elsevier, vol. 62(3), pages 564-576, February.
    3. Haas, Peter M., 1992. "Introduction: epistemic communities and international policy coordination," International Organization, Cambridge University Press, vol. 46(01), pages 1-35, December.
    4. Landzelius, Kyra, 2006. "Introduction: Patient organization movements and new metamorphoses in patienthood," Social Science & Medicine, Elsevier, vol. 62(3), pages 529-537, February.
    5. Barker, Kristin K., 2011. "Listening to Lyrica: contested illnesses and pharmaceutical determinism," Social Science & Medicine, Elsevier, vol. 73(6), pages 833-842, September.
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