Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe
Author
Abstract
Suggested Citation
DOI: 10.1007/s10198-016-0784-3
Download full text from publisher
As the access to this document is restricted, you may want to search for a different version of it.
References listed on IDEAS
- Tarricone, Rosanna, 2006. "Cost-of-illness analysis: What room in health economics?," Health Policy, Elsevier, vol. 77(1), pages 51-63, June.
- Julie Chevalier & Gérard Pouvourville, 2013. "Valuing EQ-5D using Time Trade-Off in France," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 14(1), pages 57-66, February.
- Sergi Jiménez-Martín & Cristina Prieto, 2012.
"The trade-off between formal and informal care in Spain,"
The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 13(4), pages 461-490, August.
- Jimenez-Martin, S & Prieto, C. V, 2008. "Trade-off between formal and informal care in Spain," Health, Econometrics and Data Group (HEDG) Working Papers 08/13, HEDG, c/o Department of Economics, University of York.
- Sergi Jiménez-Martín & Cristina Vilaplana Prieto, 2008. "Trade-off between formal and informal care in Spain," Economics Working Papers 1096, Department of Economics and Business, Universitat Pompeu Fabra.
- Sergi Jiménez Martín & Cristina Vilaplana, 2008. "Trade-off between formal and informal care in Spain," Working Papers 2008-22, FEDEA.
- Bernard Berg & Werner Brouwer & Marc Koopmanschap, 2004. "Economic valuation of informal care," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 5(1), pages 36-45, February.
Citations
Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
Cited by:
- Valentin Brodszky & Zsuzsanna Beretzky & Petra Baji & Fanni Rencz & Márta Péntek & Alexandru Rotar & Konstantin Tachkov & Susanne Mayer & Judit Simon & Maciej Niewada & Rok Hren & László Gulácsi, 2019. "Cost-of-illness studies in nine Central and Eastern European countries," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(1), pages 155-172, June.
- Alvaro Rafael Villar Hernández & Fernando Molero Alonso & Álvaro Jesús Aguado Marín & Manuel Posada de la Paz, 2022. "Transcultural Validation of a Spanish Version of the Quality of Life in Epidermolysis Bullosa Questionnaire," IJERPH, MDPI, vol. 19(12), pages 1-11, June.
- Takeya Adachi & Ayman W. El-Hattab & Ritu Jain & Katya A. Nogales Crespo & Camila I. Quirland Lazo & Maurizio Scarpa & Marshall Summar & Duangrurdee Wattanasirichaigoon, 2023. "Enhancing Equitable Access to Rare Disease Diagnosis and Treatment around the World: A Review of Evidence, Policies, and Challenges," IJERPH, MDPI, vol. 20(6), pages 1-37, March.
- Michela Meregaglia & Elena Nicod & Michael Drummond, 2023. "The estimation of health state utility values in rare diseases: do the approaches in submissions for NICE technology appraisals reflect the existing literature? A scoping review," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 24(7), pages 1151-1216, September.
- Khadka, Jyoti & Kwon, Joseph & Petrou, Stavros & Lancsar, Emily & Ratcliffe, Julie, 2019. "Mind the (inter-rater) gap. An investigation of self-reported versus proxy-reported assessments in the derivation of childhood utility values for economic evaluation: A systematic review," Social Science & Medicine, Elsevier, vol. 240(C).
- Isaac Aranda-Reneo & Luz María Peña-Longobardo & Juan Oliva-Moreno & Svenja Litzkendorf & Isabelle Durand-Zaleski & Eduardo F. Tizzano & Julio López-Bastida, 2020. "The Burden of Spinal Muscular Atrophy on Informal Caregivers," IJERPH, MDPI, vol. 17(23), pages 1-12, December.
- Marialuisa Saviano & Sergio Barile & Francesco Caputo & Mattia Lettieri & Stefania Zanda, 2019. "From Rare to Neglected Diseases: A Sustainable and Inclusive Healthcare Perspective for Reframing the Orphan Drugs Issue," Sustainability, MDPI, vol. 11(5), pages 1-21, March.
- Javier Güeita-Rodriguez & Pilar Famoso-Pérez & Jaime Salom-Moreno & Pilar Carrasco-Garrido & Jorge Pérez-Corrales & Domingo Palacios-Ceña, 2020. "Challenges Affecting Access to Health and Social Care Resources and Time Management among Parents of Children with Rett Syndrome: A Qualitative Case Study," IJERPH, MDPI, vol. 17(12), pages 1-16, June.
- López-Bastida, J. & Ramos-Goñi, J.M. & Aranda-Reneo, I. & Trapero-Bertran, M. & Kanavos, P. & Rodriguez Martin, B., 2019. "Using a stated preference discrete choice experiment to assess societal value from the perspective of decision-makers in Europe. Does it work for rare diseases?," Health Policy, Elsevier, vol. 123(2), pages 152-158.
- Yllka Kodra & Marianna Cavazza & Marta de Santis & Andrea Guala & Maria-Elena Liverani & Patrizio Armeni & Maura Masini & Domenica Taruscio, 2020. "Social Economic Costs, Health-Related Quality of Life and Disability in Patients with Cri Du Chat Syndrome," IJERPH, MDPI, vol. 17(16), pages 1-14, August.
- Alicia Aurora Rodríguez & Óscar Martínez & Imanol Amayra & Juan Francisco López-Paz & Mohammad Al-Rashaida & Esther Lázaro & Patricia Caballero & Manuel Pérez & Sarah Berrocoso & Maitane García & Paul, 2021. "Diseases Costs and Impact of the Caring Role on Informal Carers of Children with Neuromuscular Disease," IJERPH, MDPI, vol. 18(6), pages 1-16, March.
- Eve Wittenberg & Lyndon P. James & Lisa A. Prosser, 2019. "Spillover Effects on Caregivers’ and Family Members’ Utility: A Systematic Review of the Literature," PharmacoEconomics, Springer, vol. 37(4), pages 475-499, April.
- Alicia Aurora Rodríguez & Imanol Amayra & Juan Francisco López-Paz & Oscar Martínez & Maitane García & Mónika Salgueiro & Mohammad Al-Rashaida & Paula María Luna & Paula Pérez-Nuñez & Nicole Passi & I, 2022. "The Role of Associations in Reducing the Emotional and Financial Impact on Parents Caring for Children with Duchenne Muscular Dystrophy: A Cross-Cultural Study," IJERPH, MDPI, vol. 19(19), pages 1-15, September.
- Patrizio Armeni & Marianna Cavazza & Entela Xoxi & Domenica Taruscio & Yllka Kodra, 2021. "Reflections on the Importance of Cost of Illness Analysis in Rare Diseases: A Proposal," IJERPH, MDPI, vol. 18(3), pages 1-18, January.
- Petra Baji & Dominik Golicki & Valentina Prevolnik-Rupel & Werner B. F. Brouwer & Zsombor Zrubka & László Gulácsi & Márta Péntek, 2019. "The burden of informal caregiving in Hungary, Poland and Slovenia: results from national representative surveys," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(1), pages 5-16, June.
- Luz María Peña-Longobardo & Isaac Aranda-Reneo & Juan Oliva-Moreno & Svenja Litzkendorf & Isabelle Durand-Zaleski & Eduardo Tizzano & Julio López-Bastida, 2020. "The Economic Impact and Health-Related Quality of Life of Spinal Muscular Atrophy. An Analysis across Europe," IJERPH, MDPI, vol. 17(16), pages 1-12, August.
Most related items
These are the items that most often cite the same works as this one and are cited by the same works as this one.- Karine Chevreul & Morgane Michel & Karen Berg Brigham & Julio López-Bastida & Renata Linertová & Juan Oliva-Moreno & Pedro Serrano-Aguilar & Manuel Posada-de-la-Paz & Domenica Taruscio & Arrigo Schiep, 2016. "Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(1), pages 7-18, April.
- Allison Larg & John Moss, 2011. "Cost-of-Illness Studies," PharmacoEconomics, Springer, vol. 29(8), pages 653-671, August.
- Torbica, Aleksandra & Calciolari, Stefano & Fattore, Giovanni, 2015. "Does informal care impact utilization of healthcare services? Evidence from a longitudinal study of stroke patients," Social Science & Medicine, Elsevier, vol. 124(C), pages 29-38.
- L. M. Peña-Longobardo & B. Rodríguez-Sánchez & J. Oliva-Moreno & I. Aranda-Reneo & J. López-Bastida, 2019. "How relevant are social costs in economic evaluations? The case of Alzheimer’s disease," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 20(8), pages 1207-1236, November.
- Marianna Cavazza & Yllka Kodra & Patrizio Armeni & Marta De Santis & Julio López-Bastida & Renata Linertová & Juan Oliva-Moreno & Pedro Serrano-Aguilar & Manuel Posada-de-la-Paz & Domenica Taruscio & , 2016. "Social/economic costs and quality of life in patients with haemophilia in Europe," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(1), pages 53-65, April.
- Juan Oliva-Moreno & Luz María Peña-Longobardo & Leticia García-Mochón & María del Río Lozano & Isabel Mosquera Metcalfe & María del Mar García-Calvente, 2019. "The economic value of time of informal care and its determinants (The CUIDARSE Study)," PLOS ONE, Public Library of Science, vol. 14(5), pages 1-15, May.
- Bernhard Michalowsky & Steffen Flessa & Tilly Eichler & Johannes Hertel & Adina Dreier & Ina Zwingmann & Diana Wucherer & Henriette Rau & Jochen René Thyrian & Wolfgang Hoffmann, 2018. "Healthcare utilization and costs in primary care patients with dementia: baseline results of the DelpHi-trial," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(1), pages 87-102, January.
- Bauer, Jan Michael & Sousa-Poza, Alfonso, 2015. "Impacts of Informal Caregiving on Caregiver Employment, Health, and Family," IZA Discussion Papers 8851, Institute of Labor Economics (IZA).
- Joanna M Charles & Deirdre M Harrington & Melanie J Davies & Charlotte L Edwardson & Trish Gorely & Danielle H Bodicoat & Kamlesh Khunti & Lauren B Sherar & Thomas Yates & Rhiannon Tudor Edwards, 2019. "Micro-costing and a cost-consequence analysis of the ‘Girls Active’ programme: A cluster randomised controlled trial," PLOS ONE, Public Library of Science, vol. 14(8), pages 1-17, August.
- McDonald, Rebecca & Powdthavee, Nattavudh, 2018. "The Shadow Prices of Voluntary Caregiving: Using Panel Data of Well-Being to Estimate the Cost of Informal Care," IZA Discussion Papers 11545, Institute of Labor Economics (IZA).
- Marguerite Kandel & Aurélie Bardet & Stéphane Dalle & Clara Allayous & Laurent Mortier & Bernard Guillot & Caroline Dutriaux & Marie-Thérèse Leccia & Sophie Dalac & Henri Montaudié & Philippe Saiag & , 2022. "Cost-Effectiveness Analysis of Sequential Treatment Strategies for Advanced Melanoma in Real Life in France," Post-Print hal-04049403, HAL.
- Bremer, Patrick & Cabrera, Esther & Leino-Kilpi, Helena & Lethin, Connie & Saks, Kai & Sutcliffe, Caroline & Soto, Maria & Zwakhalen, Sandra M.G. & Wübker, Ansgar, 2015. "Informal dementia care: Consequences for caregivers’ health and health care use in 8 European countries," Health Policy, Elsevier, vol. 119(11), pages 1459-1471.
- Chien-Yuan Sher & Ho Ting Wong & Yu-Chun Lin, 2020. "The Impact of Dengue on Economic Growth: The Case of Southern Taiwan," IJERPH, MDPI, vol. 17(3), pages 1-12, January.
- García-Gómez, Pilar & Hernández-Quevedo, Cristina & Jiménez-Rubio, Dolores & Oliva-Moreno, Juan, 2015.
"Inequity in long-term care use and unmet need: Two sides of the same coin,"
Journal of Health Economics, Elsevier, vol. 39(C), pages 147-158.
- Garcia-Gomez, P. & Hernandez-Quevedo, C. & Jimenez-Rubio, D. & Oliva, J., 2014. "Inequity in long-term care use and unmet need: two sides of the same coin," Health, Econometrics and Data Group (HEDG) Working Papers 14/02, HEDG, c/o Department of Economics, University of York.
- García-Gómez, Pilar & Hernández-Quevedo, Cristina & Jiménez-Rubio, Dolores & Oliva-Moreno, Juan, 2015. "Inequity in long-term care use and unmet need: two sides of the same coin," LSE Research Online Documents on Economics 60789, London School of Economics and Political Science, LSE Library.
- García-Gómez, Pilar & Hernandez-Quevedo, Christina & Jiménez-Rubio, Dolores & Oliva, Juan, 2014. "Inequity in long-term care use and unmet need: two sides of the same coin," LSE Research Online Documents on Economics 55429, London School of Economics and Political Science, LSE Library.
- Hanna Gyllensten & Michael Wiberg & Kristina Alexanderson & Anders Norlund & Emilie Friberg & Jan Hillert & Olivia Ernstsson & Petter Tinghög, 2018. "Costs of illness of multiple sclerosis in Sweden: a population-based register study of people of working age," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(3), pages 435-446, April.
- Urwin, Sean & Lau, Yiu-Shing & Grande, Gunn & Sutton, Matt, 2021. "The extent and predictors of discrepancy between provider and recipient reports of informal caregiving," Social Science & Medicine, Elsevier, vol. 277(C).
- Lena Flyckt & Anna Löthman & Leif Jörgensen & Anders Rylander & Thomas Koernig, 2013. "Burden of informal care giving to patients with psychoses: A descriptive and methodological study," International Journal of Social Psychiatry, , vol. 59(2), pages 137-146, March.
- Emmanouil Mentzakis & Mandy Ryan & Paul McNamee, 2011. "Using discrete choice experiments to value informal care tasks: exploring preference heterogeneity," Health Economics, John Wiley & Sons, Ltd., vol. 20(8), pages 930-944, August.
- Donna Rowen & Simon Dixon & Mónica Hernández-Alava & Clara Mukuria, 2016. "Estimating informal care inputs associated with EQ-5D for use in economic evaluation," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(6), pages 733-744, July.
- Matthias Firgo & Klaus Nowotny & Alexander Braun, 2020.
"Informal, formal, or both? Assessing the drivers of home care utilization in Austria using a simultaneous decision framework,"
Applied Economics, Taylor & Francis Journals, vol. 52(40), pages 4440-4456, August.
- Matthias Firgo & Klaus Nowotny & Alexander Braun, 2017. "Informal, Formal, or Both? Assessing the Drivers of Home Care Utilization in Austria Using a Simultaneous Decision Framework," WIFO Working Papers 533, WIFO.
More about this item
Keywords
Fragile X syndrome; Economic burden; Cost analysis; Quality of life;All these keywords.
Statistics
Access and download statisticsCorrections
All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:eujhec:v:17:y:2016:i:1:d:10.1007_s10198-016-0784-3. See general information about how to correct material in RePEc.
If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.
If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .
If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.
For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com .
Please note that corrections may take a couple of weeks to filter through the various RePEc services.