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Estimation of a Preference-Based Carer Experience Scale

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  • Hareth Al-Janabi
  • Terry N. Flynn
  • Joanna Coast

Abstract

Background. There is growing interest in incorporating the effects of interventions on unpaid carers in economic evaluation. Current methods focus on using health measures (which neglect important aspects of care-related quality of life) or using carer-specific sum score measures (which are not preference based). Objective. To estimate preference-based index values for a profile measure of the caring experience (the Carer Experience Scale). Methods. Eighteen profiles from the Carer Experience Scale were included in a best-worst scaling experiment. In each profile, respondents were asked to pick the best and worst attribute level from the profiles. The choice task was completed in a postal questionnaire by 162 unpaid carers of older people from 5 geographical locations in the United Kingdom. Logistic regression was used to estimate utility weights for the attribute levels of the Carer Experience Scale. Alternative modeling assumptions were employed to determine the stability of the parameter estimates. These parameter estimates were rescaled so that the profile index values for the Carer Experience Scale lay on a 0-to-100 scale. Results. The results indicate that low levels of “activities†and “getting on†result in larger decrements to utility than other attributes of the caring experience. In general, greater value is placed on differences between the bottom and middle levels of attributes than between the middle and top levels. Alternative modeling approaches had a negligible effect on the index values. Conclusion. The index values reported in this study offer a new preference-based approach to incorporating the effects on carers in economic evaluation, focusing on care (rather than health)–related quality of life.

Suggested Citation

  • Hareth Al-Janabi & Terry N. Flynn & Joanna Coast, 2011. "Estimation of a Preference-Based Carer Experience Scale," Medical Decision Making, , vol. 31(3), pages 458-468, May.
    • Handle: RePEc:sae:medema:v:31:y:2011:i:3:p:458-468
    DOI: 10.1177/0272989X10381280
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    1. Drummond, Michael F. & Sculpher, Mark J. & Torrance, George W. & O'Brien, Bernie J. & Stoddart, Greg L., 2005. "Methods for the Economic Evaluation of Health Care Programmes," OUP Catalogue, Oxford University Press, edition 3, number 9780198529453.
    2. McKenzie, Lynda & Cairns, John & Osman, Liesl, 2001. "Symptom-based outcome measures for asthma: the use of discrete choice methods to assess patient preferences," Health Policy, Elsevier, vol. 57(3), pages 193-204, September.
    3. van den Berg, Bernard & Al, Maiwenn & Brouwer, Werner & van Exel, Job & Koopmanschap, Marc, 2005. "Economic valuation of informal care: The conjoint measurement method applied to informal caregiving," Social Science & Medicine, Elsevier, vol. 61(6), pages 1342-1355, September.
    4. McCabe, Christopher & Brazier, John & Gilks, Peter & Tsuchiya, Aki & Roberts, Jennifer & O'Hagan, Anthony & Stevens, Katherine, 2006. "Using rank data to estimate health state utility models," Journal of Health Economics, Elsevier, vol. 25(3), pages 418-431, May.
    5. Grewal, Ini & Lewis, Jane & Flynn, Terry & Brown, Jackie & Bond, John & Coast, Joanna, 2006. "Developing attributes for a generic quality of life measure for older people: Preferences or capabilities?," Social Science & Medicine, Elsevier, vol. 62(8), pages 1891-1901, April.
    6. Bowling, Ann, 1995. "What things are important in people's lives? A survey of the public's judgements to inform scales of health related quality of life," Social Science & Medicine, Elsevier, vol. 41(10), pages 1447-1462, November.
    7. Louviere,Jordan J. & Hensher,David A. & Swait,Joffre D. With contributions by-Name:Adamowicz,Wiktor, 2000. "Stated Choice Methods," Cambridge Books, Cambridge University Press, number 9780521788304.
    8. Wiseman, Virginia, 1997. "Caring: the neglected health outcome? or input?," Health Policy, Elsevier, vol. 39(1), pages 43-53, January.
    9. Wimo, Anders & von Strauss, Eva & Nordberg, Gunilla & Sassi, Franco & Johansson, Lennarth, 2002. "Time spent on informal and formal care giving for persons with dementia in Sweden," Health Policy, Elsevier, vol. 61(3), pages 255-268, September.
    10. Hall, Jane & Viney, Rosalie & Haas, Marion & Louviere, Jordan, 2004. "Using stated preference discrete choice modeling to evaluate health care programs," Journal of Business Research, Elsevier, vol. 57(9), pages 1026-1032, September.
    11. Bernard van denBerg & Werner Brouwer & Job van Exel & Marc Koopmanschap, 2005. "Economic valuation of informal care: the contingent valuation method applied to informal caregiving," Health Economics, John Wiley & Sons, Ltd., vol. 14(2), pages 169-183, February.
    12. Coast, Joanna & Flynn, Terry N. & Natarajan, Lucy & Sproston, Kerry & Lewis, Jane & Louviere, Jordan J. & Peters, Tim J., 2008. "Valuing the ICECAP capability index for older people," Social Science & Medicine, Elsevier, vol. 67(5), pages 874-882, September.
    13. Brouwer, Werner B.F. & Exel, N. Job A. van & Berg, Bernard van den & Bos, Geertruidis A.M. van den & Koopmanschap, Marc A., 2005. "Process utility from providing informal care: the benefit of caring," Health Policy, Elsevier, vol. 74(1), pages 85-99, September.
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    2. Kaambwa, Billingsley & Lancsar, Emily & McCaffrey, Nicola & Chen, Gang & Gill, Liz & Cameron, Ian D. & Crotty, Maria & Ratcliffe, Julie, 2015. "Investigating consumers' and informal carers' views and preferences for consumer directed care: A discrete choice experiment," Social Science & Medicine, Elsevier, vol. 140(C), pages 81-94.
    3. Donna Rowen & Simon Dixon & Mónica Hernández-Alava & Clara Mukuria, 2016. "Estimating informal care inputs associated with EQ-5D for use in economic evaluation," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 17(6), pages 733-744, July.
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    5. Hristov, Hristo & Kuhar, Ales, 2014. "Young urban adults preference for wine information sources: An exploratory study for Republic of Macedonia," 2014 International Congress, August 26-29, 2014, Ljubljana, Slovenia 184855, European Association of Agricultural Economists.
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    7. Saha, Sanjib & Gerdtham, Ulf-G. & Toresson, Håkan & Minthon, Lennart & Jarl, Johan, 2018. "Economic Evaluation of Management of Dementia Patients - A Systematic Literature Review," Working Papers 2018:41, Lund University, Department of Economics.
    8. Al-Janabi, Hareth & Wittenberg, Eve & Donaldson, Cam & Brouwer, Werner, 2022. "The relative value of carer and patient quality of life: A person trade-off (PTO) study," Social Science & Medicine, Elsevier, vol. 292(C).
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    10. Hristov, Hristo & Kuhar, Ales, 2014. "Young urban adults preference for wine information sources: An exploratory study for Republic of Macedonia," 2014 International Congress, August 26-29, 2014, Ljubljana, Slovenia 183078, European Association of Agricultural Economists.
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    12. Lukasz Tanajewski & Matthew Franklin & Georgios Gkountouras & Vladislav Berdunov & Rowan H Harwood & Sarah E Goldberg & Lucy E Bradshaw & John R F Gladman & Rachel A Elliott, 2015. "Economic Evaluation of a General Hospital Unit for Older People with Delirium and Dementia (TEAM Randomised Controlled Trial)," PLOS ONE, Public Library of Science, vol. 10(12), pages 1-20, December.
    13. Nishit Dhanji & Werner Brouwer & Cam Donaldson & Eve Wittenberg & Hareth Al‐Janabi, 2021. "Estimating an exchange‐rate between care‐related and health‐related quality of life outcomes for economic evaluation: An application of the wellbeing valuation method," Health Economics, John Wiley & Sons, Ltd., vol. 30(11), pages 2847-2857, November.
    14. Osman, Ahmed M.Y. & Wu, Jing & He, Xiaoning & Chen, Gang, 2021. "Eliciting SF-6Dv2 health state utilities using an anchored best-worst scaling technique," Social Science & Medicine, Elsevier, vol. 279(C).
    15. van den Berg, Bernard & Fiebig, Denzil G. & Hall, Jane, 2014. "Well-being losses due to care-giving," Journal of Health Economics, Elsevier, vol. 35(C), pages 123-131.
    16. Lea de Jong & Jan Zeidler & Kathrin Damm, 2022. "A systematic review to identify the use of stated preference research in the field of older adult care," European Journal of Ageing, Springer, vol. 19(4), pages 1005-1056, December.

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