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Determinants of Burden and Satisfaction in Informal Caregivers: Two Sides of the Same Coin? The CUIDAR-SE Study

Author

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  • Leticia García-Mochón

    (Escuela Andaluza de Salud Pública (EASP), 18080 Granada, Spain
    Instituto de Investigación Biosanitaria de Granada ibs.GRANADA, 18012 Granada, Spain
    CIBER en Epidemiología y Salud Pública (CIBERESP), 28029 Madrid, Spain)

  • Luz María Peña-Longobardo

    (Departamento de Análisis Económico y Seminario de Investigación en Economía y Salud (SIES), Universidad de Castilla-La mancha, 45071 Toledo, Spain)

  • María del Río-Lozano

    (Escuela Andaluza de Salud Pública (EASP), 18080 Granada, Spain
    Instituto de Investigación Biosanitaria de Granada ibs.GRANADA, 18012 Granada, Spain)

  • Juan Oliva-Moreno

    (Departamento de Análisis Económico y Seminario de Investigación en Economía y Salud (SIES), Universidad de Castilla-La mancha, 45071 Toledo, Spain)

  • Isabel Larrañaga-Padilla

    (Departamento de Salud del Gobierno Vasco, 20010 San Sebastián (Gipuzkoa), Spain)

  • María del Mar García-Calvente

    (Escuela Andaluza de Salud Pública (EASP), 18080 Granada, Spain
    Instituto de Investigación Biosanitaria de Granada ibs.GRANADA, 18012 Granada, Spain)

Abstract

The aim of this study conducted in Spain was to analyze and compare burden, severe burden, and satisfaction among informal caregivers in relation to health-related quality of life (HRQoL), type and duration of caregiving, perceived social support, and use of social and health care services. We performed multivariate analyses to identify variables associated with caregiver burden, severe burden, and satisfaction with caregiving, stratified by gender. The results showed that secondary or third-level education, performance of ungratifying tasks, negative coping with caregiving, and more years providing care were associated with greater burden. Variables with protective effect were better perceived health of the person being cared for, better caregiver HRQoL, and high perceived social support. Women were 75% more likely to experience severe burden compared with male caregivers. Burden was reduced by high perceived social support in the case of women and by high caregiver HRQoL in the case of men. The main determinant of caregiving satisfaction for both men and women was perceived social support (OR = 3.11 and OR = 6.64). This study shows the need for interventions that promote gender equality and social support as a means of relieving burden and severe burden and improving satisfaction in both male and female caregivers.

Suggested Citation

  • Leticia García-Mochón & Luz María Peña-Longobardo & María del Río-Lozano & Juan Oliva-Moreno & Isabel Larrañaga-Padilla & María del Mar García-Calvente, 2019. "Determinants of Burden and Satisfaction in Informal Caregivers: Two Sides of the Same Coin? The CUIDAR-SE Study," IJERPH, MDPI, vol. 16(22), pages 1-13, November.
    • Handle: RePEc:gam:jijerp:v:16:y:2019:i:22:p:4378-:d:285236
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    References listed on IDEAS

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    2. Federico Montero-Cuadrado & Miguel Ángel Galán-Martín & Javier Sánchez-Sánchez & Enrique Lluch & Agustín Mayo-Iscar & Ántonio Cuesta-Vargas, 2020. "Effectiveness of a Physical Therapeutic Exercise Programme for Caregivers of Dependent Patients: A Pragmatic Randomised Controlled Trial from Spanish Primary Care," IJERPH, MDPI, vol. 17(20), pages 1-23, October.
    3. Raquel Sánchez-Recio & Cristina García-Ael & Gabriela Topa, 2021. "Influence of Gender Determinants on Informal Care and Health Service Utilization in Spain: Ten Years after the Approval of the Equality Law," Administrative Sciences, MDPI, vol. 11(2), pages 1-21, April.
    4. Luz María Peña-Longobardo & María Del Río-Lozano & Juan Oliva-Moreno & Isabel Larrañaga-Padilla & María del Mar García-Calvente, 2021. "Health, Work, and Social Problems in Spanish Informal Caregivers: Does Gender Matter? (The CUIDAR-SE Study)," IJERPH, MDPI, vol. 18(14), pages 1-17, July.
    5. Longobardo, Luz María Peña & Rodríguez-Sánchez, Beatriz & Oliva, Juan, 2023. "Does becoming an informal caregiver make your health worse? A longitudinal analysis across Europe," Economics & Human Biology, Elsevier, vol. 50(C).

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