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Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies

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  • Viberg Johansson, Jennifer
  • Shah, Nisha
  • Haraldsdóttir, Eik
  • Bentzen, Heidi Beate
  • Coy, Sarah
  • Kaye, Jane
  • Mascalzoni, Deborah
  • Veldwijk, Jorien

Abstract

Discrete Choice Experiment (DCE) is a well-established technique to elicit individual preferences, but it has rarely been used to elicit governance preferences for health data sharing.

Suggested Citation

  • Viberg Johansson, Jennifer & Shah, Nisha & Haraldsdóttir, Eik & Bentzen, Heidi Beate & Coy, Sarah & Kaye, Jane & Mascalzoni, Deborah & Veldwijk, Jorien, 2021. "Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies," Technology in Society, Elsevier, vol. 66(C).
    • Handle: RePEc:eee:teinso:v:66:y:2021:i:c:s0160791x21001007
    DOI: 10.1016/j.techsoc.2021.101625
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    References listed on IDEAS

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    1. Mandy Ryan & Karen Gerard & Gillian Currie, 2012. "Using Discrete Choice Experiments in Health Economics," Chapters, in: Andrew M. Jones (ed.), The Elgar Companion to Health Economics, Second Edition, chapter 41, Edward Elgar Publishing.
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    13. Anna Rydén & Stephanie Chen & Emuella Flood & Beverly Romero & Susan Grandy, 2017. "Discrete Choice Experiment Attribute Selection Using a Multinational Interview Study: Treatment Features Important to Patients with Type 2 Diabetes Mellitus," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 10(4), pages 475-487, August.
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    2. Taufick, Roberto D., 2021. "The underdeterrence, underperformance response to privacy, data protection laws," Technology in Society, Elsevier, vol. 67(C).

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