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The expression of ‘policy’ in palliative care: A critical review

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  • Whitelaw, Sandy
  • Bell, Anthony
  • Clark, David

Abstract

The importance of ‘policy’ within palliative care has steadily increased over the past 25 years. Whilst this has been welcomed within the palliative care field and seen as a route to greater recognition, we focus here on a more critical perspective that challenge the effectiveness of a ‘policy turn’ in palliative care. Applying Bacchi's “What's the Problem Represented to Be?” (WPR) framework to data from a systematic search, we address the research question, “in what ways has ‘policy’ been articulated in palliative care literature?”. The paper describes the construction of ‘the problem’ context and reflects critically on the robustness and pragmatic utility of such representations. In particular, we identify five elements as prominent and problematic: (1) a lack of empirical evidence that connects policy to practice; (2) the dominance of ‘Global North’ approaches; (3) the use of a policy narrative based on ‘catastrophe’ in justifying the need for palliative care; (4) the use of idealistic and aspirational ‘calls to action’; and (5) a disengaged and antagonistic orientation to existing health systems. We conclude by suggesting that the efficacy of palliative care policy could be enhanced via greater emphases on ‘Global South’ perspectives, ‘assets-based’ approaches and attention to pragmatic implementation.

Suggested Citation

  • Whitelaw, Sandy & Bell, Anthony & Clark, David, 2022. "The expression of ‘policy’ in palliative care: A critical review," Health Policy, Elsevier, vol. 126(9), pages 889-898.
  • Handle: RePEc:eee:hepoli:v:126:y:2022:i:9:p:889-898
    DOI: 10.1016/j.healthpol.2022.06.010
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    References listed on IDEAS

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    1. Hibbert, Derek & Hanratty, Barbara & May, Carl & Mair, Frances & Litva, Andrea & Capewell, Simon, 2003. "Negotiating palliative care expertise in the medical world," Social Science & Medicine, Elsevier, vol. 57(2), pages 277-288, July.
    2. Burgess, Teresa & Braunack-Mayer, Annette & Crawford, Gregory B. & Beilby, Justin, 2014. "Australian health policy and end of life care for people with chronic disease: An analysis," Health Policy, Elsevier, vol. 115(1), pages 60-67.
    3. May, Peter & Hynes, Geralyn & McCallion, Philip & Payne, Sheila & Larkin, Philip & McCarron, Mary, 2014. "Policy analysis: Palliative care in Ireland," Health Policy, Elsevier, vol. 115(1), pages 68-74.
    4. George Weisz & Etienne Vignola-Gagné, 2015. "The World Health Organization and the Globalization of Chronic Noncommunicable Disease," Population and Development Review, The Population Council, Inc., vol. 41(3), pages 507-532, September.
    5. Zaman, Shahaduz & Inbadas, Hamilton & Whitelaw, Alexander & Clark, David, 2017. "Common or multiple futures for end of life care around the world? Ideas from the ‘waiting room of history’," Social Science & Medicine, Elsevier, vol. 172(C), pages 72-79.
    6. Frieden, T.R., 2010. "A framework for public health action: The health impact pyramid," American Journal of Public Health, American Public Health Association, vol. 100(4), pages 590-595.
    7. Mark Evans, 2001. "Understanding Dialectics in Policy Network Analysis," Political Studies, Political Studies Association, vol. 49(3), pages 542-550, August.
    8. Devi Vijay & Philippe Monin, 2018. "Poisedness for social innovation : The genesis and propagation of community-based palliative care in Kerala (India)," Post-Print hal-02312268, HAL.
    9. Chattoo, Sangeeta & Atkin, Karl M., 2009. "Extending specialist palliative care to people with heart failure: Semantic, historical and practical limitations to policy guidelines," Social Science & Medicine, Elsevier, vol. 69(2), pages 147-153, July.
    10. Carol Bacchi, 2016. "Problematizations in Health Policy," SAGE Open, , vol. 6(2), pages 21582440166, June.
    11. Sørensen, Claus Hedegaard & Isaksson, Karolina & Macmillen, James & Åkerman, Jonas & Kressler, Florian, 2014. "Strategies to manage barriers in policy formation and implementation of road pricing packages," Transportation Research Part A: Policy and Practice, Elsevier, vol. 60(C), pages 40-52.
    12. Sudbury-Riley, Lynn & Hunter-Jones, Philippa, 2021. "Facilitating inter-professional integration in palliative care: A service ecosystem perspective," Social Science & Medicine, Elsevier, vol. 277(C).
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