IDEAS home Printed from https://ideas.repec.org/p/rsw/rswwps/rswwps80.html
   My bibliography  Save this paper

New Methods in Human Subjects Research: Do We Need a New Ethics?

Author

Listed:
  • Karsten Weber

Abstract

Online surveys and interviews, the observations of chat rooms or online games, data mining, knowledge discovery in databases (KDD), collecting biomarkers, employing biometrics, using RFID technology - even as implants in the human body - and other related processes all seem to be more promising, cheaper, faster, and comprehensive than conventional methods of human subjects research. But at the same time these new means of gathering information may pose powerful threats to privacy, autonomy, and informed consent. Online research, particularly involving children and minors but also other vulnerable groups such as ethnic or religious minorities, is in urgent need of an adequate research ethics that can provide reasonable and morally justified constraints for human subjects research. The paper at hand seeks to provide some clarification of these new means of information gathering and the challenges they present to moral concepts like -privacy, autonomy, informed consent, beneficence, and justice. Some existing codes of conduct and ethical guidelines are examined to determine whether they provide answers to those challenges and/or whether they can be helpful in the development of principles and regulations governing human subjects research. Finally, some conclusions and recommendations are presented that can help in the ask of formulating an adequate research ethics for human subjects research.

Suggested Citation

  • Karsten Weber, 2009. "New Methods in Human Subjects Research: Do We Need a New Ethics?," Working Paper Series of the German Council for Social and Economic Data 80, German Council for Social and Economic Data (RatSWD).
  • Handle: RePEc:rsw:rswwps:rswwps80
    as

    Download full text from publisher

    File URL: http://www.ratswd.de/download/RatSWD_WP_2009/RatSWD_WP_80.pdf
    Download Restriction: no

    More about this item

    Keywords

    Human Subjects Research; Online Research; Biomarkers; Biometrics; Autonomy; Privacy; Informed Consent; Research Ethics;

    NEP fields

    This paper has been announced in the following NEP Reports:

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:rsw:rswwps:rswwps80. See general information about how to correct material in RePEc.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: (RatSWD). General contact details of provider: http://edirc.repec.org/data/rtswdde.html .

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service hosted by the Research Division of the Federal Reserve Bank of St. Louis . RePEc uses bibliographic data supplied by the respective publishers.