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Understanding the costs of care for cystic fibrosis: an analysis by age and severity. CHERE Working Paper 2011/1


  • Kees Van Gool
  • Richard Norman

    () (CHERE, University of Technology, Sydney)

  • Martin B Delatycki
  • Jane Hall

    () (CHERE, University of Technology, Sydney)

  • John Massie


Cystic fibrosis (CF) is the most common life-shortening genetic disease, with an incidence of 1 in 2500 and carrier frequency of 1 in 25, amongst Caucasians (Welsh, Ramsey et al. 2001). With recent advances in treatment, most children with CF now can expect to survive into adulthood and life expectancy has improved considerably. CF is a progressive disease which affects many organ systems and as the disease progresses patients require more intensive health care that includes home based care and medications, along with more frequent and prolonged hospital admissions, and in around half of all cases lung transplantation.(Jason, Leah et al. 2009; Paul, Leah et al. 2009). As new and improving treatment options become available, the pattern of care will change, which will impact on the costs of treatment and on patient outcomes. For example, two of the key medications developed in the last 15 years, Pulmozyme and TOBI (not licensed for use in Australia) cost A$14,000 pa; and more sophisticated technology, such as gene-based treatments will be equally, or more expensive. Thus health care policy makers and funders will expect rigorous assessments of the cost-effectiveness of new treatments.

Suggested Citation

  • Kees Van Gool & Richard Norman & Martin B Delatycki & Jane Hall & John Massie, 2011. "Understanding the costs of care for cystic fibrosis: an analysis by age and severity. CHERE Working Paper 2011/1," Working Papers 2011/1, CHERE, University of Technology, Sydney.
  • Handle: RePEc:her:chewps:2011/1

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    Cited by:

    1. Ilene L. Hollin & Karen A. Robinson, 2016. "A Scoping Review of Healthcare Costs for Patients with Cystic Fibrosis," Applied Health Economics and Health Policy, Springer, vol. 14(2), pages 151-159, April.
    2. Yuanyuan Gu & Sonia García-Pérez & John Massie & Kees Gool, 2015. "Cost of care for cystic fibrosis: an investigation of cost determinants using national registry data," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 16(7), pages 709-717, September.

    More about this item


    Cystic Fibrosis; costs; cost effectiveness;

    JEL classification:

    • I19 - Health, Education, and Welfare - - Health - - - Other

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