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The impact of institution use on the wellbeing of Alzheimer's disease patients and their caregivers

Author

Listed:
  • Thomas Rapp

    (LIRAES - EA 4470 - Laboratoire Interdisciplinaire de Recherche Appliquée en Economie de la Santé - UPD5 - Université Paris Descartes - Paris 5)

  • Bénédicte Apouey

    (PSE - Paris School of Economics - UP1 - Université Paris 1 Panthéon-Sorbonne - ENS-PSL - École normale supérieure - Paris - PSL - Université Paris Sciences et Lettres - EHESS - École des hautes études en sciences sociales - ENPC - École nationale des ponts et chaussées - CNRS - Centre National de la Recherche Scientifique - INRAE - Institut National de Recherche pour l’Agriculture, l’Alimentation et l’Environnement, PJSE - Paris Jourdan Sciences Economiques - UP1 - Université Paris 1 Panthéon-Sorbonne - ENS-PSL - École normale supérieure - Paris - PSL - Université Paris Sciences et Lettres - INRA - Institut National de la Recherche Agronomique - EHESS - École des hautes études en sciences sociales - ENPC - École nationale des ponts et chaussées - CNRS - Centre National de la Recherche Scientifique)

  • Claudia Senik

    (PSE - Paris School of Economics - UP1 - Université Paris 1 Panthéon-Sorbonne - ENS-PSL - École normale supérieure - Paris - PSL - Université Paris Sciences et Lettres - EHESS - École des hautes études en sciences sociales - ENPC - École nationale des ponts et chaussées - CNRS - Centre National de la Recherche Scientifique - INRAE - Institut National de Recherche pour l’Agriculture, l’Alimentation et l’Environnement, PJSE - Paris Jourdan Sciences Economiques - UP1 - Université Paris 1 Panthéon-Sorbonne - ENS-PSL - École normale supérieure - Paris - PSL - Université Paris Sciences et Lettres - INRA - Institut National de la Recherche Agronomique - EHESS - École des hautes études en sciences sociales - ENPC - École nationale des ponts et chaussées - CNRS - Centre National de la Recherche Scientifique, UP4 - Université Paris-Sorbonne)

Abstract

In France, temporary institutionalization solutions for dependent elders have been encouraged since the early 2000s. They are targeting patients who are maintained at home, but may need temporary solutions to adjust the constraints of caregivers, e.g. to facilitate transitions between several informal care providers or to allow informal caregivers to leave for holidays. However, the influence of these solutions on dependent elders and their caregivers has not been explored yet. We use French longitudinal data (REAL.FR, 686 elders and their primary caregivers followed between 2000 and 2006) to explore the impact of institution placement on the wellbeing of both Alzheimer's disease patients and their primary informal caregivers. The data distinguishes permanent placements in institution from temporary stays. Using fixed-effect models, we quantify the change in patients' quality of life and caregivers' burden of care following the placement of patients. We find that permanent and temporary stays are associated with a decrease in informal caregivers' burden. However, only permanent stays lead to an improvement of patients' quality of life. Hence, taken together, the results suggest that while long-run placements may maximize the wellbeing of all the members of a household (patient and caregiver), this is not necessarily the case of short-term placements.

Suggested Citation

  • Thomas Rapp & Bénédicte Apouey & Claudia Senik, 2018. "The impact of institution use on the wellbeing of Alzheimer's disease patients and their caregivers," Post-Print hal-01784313, HAL.
  • Handle: RePEc:hal:journl:hal-01784313
    DOI: 10.1016/j.socscimed.2018.04.014
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    Cited by:

    1. Judith Bom & Pieter Bakx & Sara Rellstab, 2022. "Well‐being right before and after a permanent nursing home admission," Health Economics, John Wiley & Sons, Ltd., vol. 31(12), pages 2558-2574, December.
    2. Claudia Senik & Guglielmo Zappalà & Carine Milcent & Chloé Gerves-Pinquié & Patricia Dargent-Molina, 2022. "Happier Elderly Residents. The Positive Impact of Physical Activity on Objective and Subjective Health Condition of Elderly People in Nursing Homes. Evidence from a Multi-Site Randomized Controlled Tr," Applied Research in Quality of Life, Springer;International Society for Quality-of-Life Studies, vol. 17(2), pages 1091-1111, April.
    3. Rapp, Thomas & Jena, Anupam B. & Costa-Font, Joan & Grabowski, David C., 2023. "Caregiving across generations: Do older adults with more grandchildren get another bite at the “sandwich” generation?," Social Science & Medicine, Elsevier, vol. 334(C).
    4. Bénédicte Apouey, 2018. "Les attentes en termes de services pour les seniors : le rôle de l’altruisme et de l’anticipation de la dépendance," Revue française d'économie, Presses de Sciences-Po, vol. 0(2), pages 15-74.
    5. Elena Bassoli & Mathieu Lefebvre & Jérôme Schoenmaeckers, 2025. "Home vs. nursing care: Unpacking the impact on health and well-being," Post-Print hal-05460270, HAL.
    6. Bénédicte Apouey & Isabelle Chort, 2018. "Are rising house prices really good for your brain? House value and cognitive functioning among older Europeans," Working Papers hal-02141060, HAL.

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